The Ehlers-Danlos Syndrome Symposium at UVA is now underway, starting off with remarks by Dacre Knight and Lori McMahon. Watch the livestream here: https://ow.ly/TZkh50YGsn2
#ehlersdanlos #ehlersdanlossyndrome #chronicillness #eds

Online Resources for Understanding and Living With EDS and HSD Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect the skin, joints, and blood vessel walls. Because it is a complex and often misunderstood condition, finding reliable...

Have you been looking for information, resources, and support? Give our blog post a read. 🩵🦓🩵

linktr.ee/thezebraalliance #EDS #ehlersdanlossyndrome #ehlersdanlos #hEDS #HSD #hypermobilityspectrumdisorder #hypermobility #chronicillness #EDSresources

I’m tired of this grandpa 😭

#chronicillness #chronicpain #heds #ehlersdanlos #ehlersdanlossyndrome

Close up of asian person with short red and black hair and glasses. He is in a contemplative pose with the ball of his foot resting on his head.

Me finding out I have #ehlersdanlos like "hmm. Are we sure"

Sometimes I feel like I'm being lazy. And then I spend over an hour trying to fill prescriptions, only to realize I have at least 2 more hours of calls before I can hope to pick things up (from multiple pharmacies)

#spoonie #ehlersdanlos

I ordered a pregnancy pillow (aka u-shaped pillow). I’m not pregnant. But I am hypermobile and sleeping sucks most nights #hEDS #hypermobile #POTS #ehlersdanlos

My sona, who is a doll, has string joints that come loose when used too much. The flowers, a mix of Daffodils and irises, both symbolize pain while remaining beautiful.

"You're a doll. That's just what happens."

#hypermobility #ehlersdanlos

This debate on EDS and CCI has now started.

#EhlersDanlos 🦓

parliamentlive.tv/Event/Index/...

Make it Matter Integrate EDS and HSD with other overlapping conditions such as PoTS, Mast Cell Activation, ME/CFS and Long Covid, into NHS service specifications, long term conditions strategies, guidelines, templates and clinical frameworks.

If you’re UK-based and have the spoons, please ask your MP to attend the debate on Ehlers-Danlos syndromes and craniocervical instability (CCI)

Easy fill in the blank template, as well as MP postcode search + send here:
edsuk.eaction.org.uk/makeitmatter

#EDS #EhlersDanlos #CCI #MEcfs #SevereME

Recommended Books- Living and Coping with EDS and Related Diseases Recommended Books provides a listing or books and other reading resources for those living and coping with EDS, MCAD and other comorbid diseases. A must see and read list of books!

My list of some recommended books on #EhlersDanlos Syndromes & #Hypermobility: ohtwist.com/eds-resource...

#EDS #HSD #fibromyalgia #MedEd #doctors #nurses #patients #medicine #EhlersDanlos #SED #NEISvoid

Glorious art. So many of us understand.
#ME #CFS #EhlersDanlos #cancer #chemo #singleparents #elderly #oppressed #workingpoor #chronicillness #exhaustion

The Beighton Score as a measure of generalised joint hypermobility - Rheumatology International The Beighton Score (BS) is a set of manoeuvres in a nine-point scoring system, used as the standard method of assessment for Generalised Joint Hypermobility (GJH). It was originally developed as an…

The Beighton Score as a measure of generalized joint #hypermobility (a review) 2021 by Malek, Reinhold, Pearce buff.ly/2Syq5uV

#EhlersDanlos #EDS #hEDS #HSD #Fibromyalgia #fibro #Meded #FOAMed medicine #NEISvoid #MedTwitter #Doctors #Rheumatology #Genetics #MedSky

We Can Make an Impact. Create a national gastroparesis diagnostic and care pathway

Create a national #gastroparesis diagnostic and care pathway c.org/r8xbTyyjYK #EhlersDanlos #EDS #diabetes

Question for my fellow #EhlersDanlos #hEDS people: Do you struggle more with the musculoskeletal or the soft tissue pain?
I find it harder to ignore the soft tissue even though I am constantly subluxing and dislocating.

I think there are a lot of men with #EDS #EhlersDanlos who’ve been told or convinced themselves they have “beer bellies” or pot bellies because that’s how older men get

But they actually have untreated mast cell disorders, gastric and pelvic veinous compression syndromes and/or dysautonomias

something a little different as i got to draw something for my eds awareness boy
if you didn't know, i have #ehlersdanlos even it is is sometimes too hard to so things we keep pushing!
#zebra #eds #furryart #furryfandom

IT IS SNOWING
WHY THE FUCK IS IT SNOWING
IT WAS 84 DAMN DEGREES YESTERDAY
IT HURTS PRECIOUS
#chronicillness #chronicpain #eds #ehlersdanlos

Donate to Help Sophie get Life Saving Spinal surgery, organized by Dawn Carter Hello I’m writing this desperately hoping the kindest of others can save my dau… Dawn Carter needs your support for Help Sophie get Life Saving Spinal surgery

Sophie’s life has been turned upside down by two rare spinal conditions. She’s in constant pain and can’t even get out of bed. The surgery she needs is urgent but costly. Please share her story and consider helping. #CCI #AAI #EhlersDanlos gofund.me/9ae513de3

The Chronic Constellation- the Double Trifecta of Co-morbid Conditions The Chronic Constellation- a look at the collection of co-morbid conditions that we see common in the hypermobile and autistic community.

The RCCX hypothesis *may* explain why #hEDS and the #HSD come with so many comorbidities:

ohtwist.com/the-chronic-...

#EDS #CFS #meded #EhlersDanlos #hypermobility #CAH #ME #Spoonie #POTS #MCAS #MyalgicE #MedTwitter #NEISvoid

The Ehlers-Danlos syndromes GP Toolkit A guide for GP's to approaching the management of people who have EDS in a primary care setting, as well as indications for onward referral

Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!

gptoolkit.ehlers-danlos.org

#MedEd #FOAMed #MedTwitter #NEISvoid

Terugblik webinar ‘Ehlers-Danlos in de praktijk’ Op maandag 23 februari organiseerde de Nationale Vereniging ReumaZorg Nederland (RZN) een webinar over Ehlers-Danlos (EDS) en Hypermobiliteit Spectrum Aandoening (HSD). Fysiotherapeute Marieke van den...

Wat betekent Ehlers-Danlos (EDS) of HSD in het dagelijks leven?
Tijdens ons webinar gaf fysiotherapeute Marieke van den Bos uitleg over klachten en begeleiding.
Lees de terugblik:
reumazorgnederland.nl/terugblik-we...

#reuma #ehlersdanlos #fysiotherapie

I mention my tattoo in this ep, so here it is (as much as I'll show publicly 👀)

It's the path of my chronic pain (one of), the tat is a reclamation of sorts/honouring that. Also spot the all bruises that's a hEDS thing, the finally known cause of said pains lmao #disability #ehlersdanlos

Spectrum of respiratory involvement in Ehlers–Danlos syndrome: insights from a case report Vascular Ehlers–Danlos syndrome (vEDS) is a rare connective tissue disorder characterized by type III collagen deficiency and marked vascular fragilit…

Variedad del compromiso respiratorio en el síndrome de #EhlersDanlos: aportes a partir de un caso clínico www.sciencedirect.com/science/arti... #hvhebron #pneu #neuro #rad [Text complet]

Yesterday my dumbass thought a 4 mile hike was a good idea on day 3 of getting back to exercising.
It was not a good idea. I'm in bed and pain flared all to hell.
#chronicillness #chronicpain #eds #ehlersdanlos

Ehlers-Danlos Syndrome & the Zebras “When you hear the sound of hooves, think horses, not zebras.” This is what medical students are taught. In the medical field, the term "zebra" is used to describe rare diseases or conditions. To avoi...

"What is Ehlers-Danlos Syndrome, and what is up with the Zebras?" Give our post, Ehlers-Danlos Syndrome & the Zebras, a read to find out. Don't worry, it is short & sweet: Some "quick facts." 😉💙🦓💙

linktr.ee/thezebralliance
#ehlersdanlossyndrome #blog #ehlersdanlos #EDS #hEDS #vEDS #cEDS

#HyperMobile
#EhlersDanlos pardon my spelling 😬
#LosAngeles
#OrthopedicSurgeon
#HelpRequest

Considering I’m American living permanently outside of my home country, I travelled a lot until recently.

I loved flying . But I also have #EhlersDanlos with accompanying #PoTS ( postural tachycardia syndrome) and as I got older travelling by plane became much much harder

Post by @chicleeblair · 6 images 💬 0  🔁 0  ❤️ 0 · It’s my birthday week, so today we’re going to talk about what I don’t see in the cards: Myself. If you like my take on tarot, you can book a reading on my website! And if you’re…

The Disability that Isn't in the Cards

www.tumblr.com/chicleeblair...

#tarot #tarotblog #disability #eds #ehlersdanlos #dermatosparaxis #scarring #skindisorders #representation #disabilityrepresentation #disabilityawareness

The Chronic Constellation- the Double Trifecta of Co-morbid Conditions The Chronic Constellation- a look at the collection of co-morbid conditions that we see common in the hypermobile and autistic community.

The RCCX hypothesis *may* explain why #hEDS and the #HSD come with so many comorbidities:

ohtwist.com/the-chronic-...

#EDS #CFS #meded #EhlersDanlos #hypermobility #CAH #ME #Spoonie #POTS #MCAS #MyalgicE #MedTwitter #NEISvoid