#Carers #familycarers
'I was once told by my mother's doctor that because I cared for her at home -on my own; the country owed me a debt!'
Unpaid home-Carers, deserve more respect an monetary help but, as governments do best- they take advantage.
#Irespecthomecarers - do you?

My Business Life: Rosemary Daynes Kearney | ThinkBusiness Discover how Rosemary Daynes Kearney founded The Care Advocate, turning lived experience into a purpose‑driven consultancy supporting carers in the workplace.

“Care is like an iceberg in society. It is always there, looking small on the surface and we do not think about it until it affects us,” warns Rosemary Kearney, founder of The Care Advocate

Read more: www.thinkbusiness.ie/articles/my-...

#carers #familycarers #irish #business #womenentrepreneurs

Meet the Adult Carers Team! A snapshot of their most recent meeting, putting together some very exciting plans & ideas for adult carers. Stay tuned to find out and for our new Adult Carers Newsletter & Programme!

#solihullcarers #unpaidcarers #solihull #familycarers #adultcarers

Family carers are essential partners in integrated care.

Join our #IFICIreland webinar with Family Carers Ireland to explore how carers can be better recognised and supported.

📅Tuesday, 24 March |🕑2.00 - 3:00pm Dublin

🔗https://ow.ly/H3wA50Yp2gs

#IntegratedCare #FamilyCarers

Draw-Care, a Co-Designed Multilingual Digital Intervention for Family Carers of People Living With Dementia From Ethnically Diverse Communities: User-Testing Study Background: Technology can deliver culturally and linguistically appropriate resources to support ethnically diverse family carers (hereafter referred to as carers) of people living with dementia. However, carers’ involvement in research on the development and evaluation of such digital health interventions is limited. Objective: This study aims to user-test the co-designed Draw-Care multilingual, web-based dementia resource with and for carers. Methods: We evaluated the web-based resource through observation sessions to collect carer feedback, using a mixed methods approach. This comprised the online, validated eHealth Literacy Scale and survey questions assessing the perceived usefulness and importance of the internet for health-related decision-making and access to health resources. In addition, “think-aloud” website navigation sessions were conducted, and Hotjar analytics were used to capture participants’ behavior on the website. Quantitative and analytics data were analyzed descriptively, and qualitative data were analyzed using instant data analysis, followed by thematic analysis. Results: Between March and April 2023, a total of 30 carers participated in the user-testing sessions (women, n=20, 67%; mean age 61, SD 13.5 years). The mean eHealth Literacy Scale score was 30 (SD 6.1). Overall, 18 (60%) participants perceived the internet as useful, and laptops and tablets were the most commonly used devices for accessing resources, each used by 9 (30%) participants. Vietnamese (n=5, 17%), Mandarin (n=5, 17%), and English (n=5, 17%) were the top 3 languages the resource was accessed in. A total of 28 (93%) participants could navigate and log in to the website with little to no support. Qualitative results showed that overall, the Draw-Care web-based resource was acceptable, culturally responsive, engaging, and usable. However, navigation was more complicated for those using smaller screens (eg, smartphones and tablets). There were linguistic discrepancies arising from translation issues in Vietnamese and Mandarin, and 14 (46%) participants found it difficult to identify and use the chatbot (ie, virtual helper interface). Issues identified with the prototype Draw-Care website and the proposed improvements included eliminating the virtual helper, simplifying the rating scale from a 5-point smiling emoticon scale to a 3-star rating scale, improving the visibility of the feedback button, and ensuring translation accuracy. Conclusions: To our knowledge, this is the first study to evaluate a bespoke multilingual website delivering a novel, co-designed, and culturally adapted digital intervention in 10 languages for ethnically diverse family carers of people living with dementia. Findings from this user-testing study undertaken with carers uncovered #usability issues requiring remediation and emphasized the importance of inclusive, accessible, culturally sensitive, engaging, and beneficial content and design. Key revisions were implemented before the randomized controlled trial commenced.

JMIR Formative Res: Draw-Care, a Co-Designed Multilingual Digital Intervention for Family Carers of People Living With Dementia From Ethnically Diverse Communities: User-Testing Study #DementiaCare #FamilyCarers #DigitalHealth #MultilingualResources #EthnicallyDiverse

📝 New paper on PublicPolicy.ie by Prof Damien Brennan, Dr Maureen D’Eath, Prof Mary McCarron, Prof Philip McCallion, & Dr Ciara Henderson (TCD) examines care for adults with intellectual disabilities in Ireland.

🔗: publicpolicy.ie/papers/a-que...

#IntellectualDisabilities #FamilyCarers

🌟 Latest news 🌟

Age Space campaign urges people to ‘Prepare to Care’.

Age Space has launched a campaign encouraging families to begin conversations about future care needs.

Read more here:
buff.ly/p8cBnZt

#PrepareToCare #AgeSpace #FamilyCarers #LaterLife

Looking for the right #carehome can feel overwhelming — especially when decisions need to be made quickly.

Read what families consider most when choosing a care home, and how #BCOP helps make the process calmer and more supportive

Read more here:
buff.ly/Lo71KUl

#FamilyCarers #BirminghamCare

76% of family carers say caring brings happiness & purpose, up from 55%! 🌟

At @homeinsteadwlc.bsky.social, we see the joy these connections bring every day 💚

What part of caring brings you the most joy?

#FamilyCarers #CareWithHeart #NewAgeingIndex #CaringMatters

Red background with a snow globe illustration and text encouraging relatives unsure where to start for Christmas support, highlighting day 5 of 25 days to a fairer Christmas.

Many supporters aren’t “formal carers” they’re relatives saying, “I need help, but I don’t know how.”

Give monthly, guide a family www.accesscharity.org.uk/25-days-to-a-fairer-chri...

Join us for #FairerChristmas #FamilyCarers 💛

COFACE disability logo

We’re excited to be in Paris at @unapei.bsky.social today for the COFACE Disability Platform meeting!

Looking forward to exchanging ideas with our members and partners and advancing inclusive practices together.

#DisabilityRights #COFACE #InclusiveEurope #FamilyCarers

#Poetry #IrishPoetry #PoemsofActivism #IrishPoets #modernpoetry
#Alzheimers #WorldAlzheimersDay #DreamsOfReality
"Preservation" from 'Bedside Manners' written to raise awareness for #FamilyCarers of loved ones with #Dementia and #Alzheimers
#WorldAlzheimersDay #DreamsOfReality

Please share our Carer’s Guide to PSP & CBD with families you support. The guide features advice from family carers and provides support, knowledge, and encouragement. The guide is available to download from our website here: ow.ly/Hq2u50WA5m1 #CarersGuide #FamilyCarers #Carers #Resources #Leaflets

A Historic Milestone: A New Chapter for Unpaid Carers in Bangladesh We are proud to announce a landmark moment in the unpaid carers’ movement in Bangladesh: the signing of a Memorandum of Understanding (MoU) between Carers World

Through these activities, we aim to reduce the loneliness and isolation that unpaid carers often face.

You can read more about the partnership on our blog, Just head to 👉🏽 carersworldwide.org/blog/a-histo...

#Partnership #Collaboration #SmallCharity #BigImpact #UnpaidCarers #FamilyCarers

It’s #LearningDisabilityWeek! 🎉
We’re launching the What Matters to Me Toolkit — a powerful resource for supporting people with profound learning disabilities to be seen, heard & included.
👉 bit.ly/3TuOaPq
#Inclusion #WhatMattersToMe #LearningDisabilitySupport #FamilyCarers

Don’t know how much this gets talked about after being a family carer, but…alongside the grief, it’s the loss of sense of purpose that can be crippling. Just like grief, it appears out of nowhere. Over two years in and it can still hit me. Like this morning.
#familycarers #carer

#CarersWeek #LonelinessAwarenessWeek
#YoungCarers #UnpaidCarers #FamilyCarers #PIP
#SocialCareMatters #CaringForCarers #YouAreNotAlone #DeedsNotWords
#Letchworth #LetchworthGardenCity #Hertfordshire

Carers Week: View from a Dementia Specialist Admiral Nurse - The Queen's Institute of Community Nursing An interview with a dementia specialist Admiral Nurse for Carers Week.

2nd blog as Carer Champion @theqicn.bsky.social
for #CarersWeek raising awareness #UnpaidCarers and showcasing #ExtraordinaryQN . I met Rachel Murray a Dementia Specialist #AdmiralNurse to hear about her work with people living with #dementia and their #familycarers qicn.org.uk/carers-week-...

#CarersWeek Empowering families to speak up

Created in partnership with #FamilyCarers and professionals, our Family Carer #Advocacy Resource is here to support you with clear information and guidance if you ever need to advocate alongside or on behalf of your loved one.

DRAFT OXFORDSHIRE LEARNING DISABILITY PLAN 2025-2035,HAVE YOUR SAY. Please follow the link.

An Easy Read version with images is available on the right hand side of the page.

letstalk.oxfordshire.gov.uk/ld-plan-2025

#learningdisabilities #oxfordshire #survey #haveyoursay #familycarers

'Sitting on the margins, I can only achieve so much' - Ramandeep Kaur urges researchers and policy makers to work with, and for, people from marginalised communities, like her, and her son, Harry.

#AcademicSky #AutRes #EduSky #FamilyCarers

In this video Dr Jo Griffin and Debbie Austin discuss co-production in research with family carers of people with a learning disability

#coproduction #familycarers

youtu.be/61nH5drWSc4

Wellbeing of Family Carers of Adults With Intellectual Disabilities During the COVID‐19 Pandemic in the UK: Longitudinal Study Background Longitudinal studies of family carers of people with intellectual disabilities during the COVID-19 pandemic have been very rare. This study investigated trajectories of family-carer wellb...

New paper alert: Wellbeing of Family Carers of Adults With Intellectual Disabilities During the COVID-19 Pandemic in the UK: Longitudinal Study

#FamilyCarers #Carers #LearningDisabilityResearch #IntellectualDisabilityResearch #EduSky #AcademicSky

“To the Ones Who Hold Us Together: A Love Letter to Family Carers” Caring for a loved one with a chronic illness is like signing up for an escape room you can’t leave—except instead of puzzles and mysterious keys, you’re solving medication schedules, battling endless...

To the unsung heroes—family carers. Your love, patience, and strength hold us together in ways words can’t express. This is for you. 🫶

#FamilyCarers #CaregiverSupport #UnseenHeroes #ChronicIllness #EDS #InvisibleIllness #EhlersDanlos #UnremarkableMe
www.unremarkableme.com/post/to-the-...

Have a look at our new open access review article: Supportive Interventions Involving Family Carers of Patients With Delirium Superimposed on Dementia in Hospital: A Scoping Review.
#Geronurses #Olderadults #Delirium #Dementia #Familycarers.
https://buff.ly/3Xc5gUJ

#FamilyCarers

Elderly woman sitting in a chair and smiling. Her hands are reaching out and grasped affectionally by another person's hands, who is standing out of frame. CONTINUING HEALTHCARE ADULT carers WORKSHOP Monday 10th FEBRUARY 10.30AM - 12PM Solihull Carers Centre, 620 Streetsbrook Road, Solihull, B91 1QY Learn how to access free nhs funding for medical conditions! Register your place now: solihullcarers.org/whats-on

Join our FREE workshop to learn about Continuing Healthcare funding and how you could be eligible!

Register your place at: https://buff.ly/3BIdV9k

#solihullcarers #carerstrustsolihull #adultcarers #UnpaidCarers #FamilyCarers #continuinghealthcare #NHS @NHSEngland #solihullhealthcarepartnership

Parent Mental Health Day 30th January: At Anchor Point we support families after Brain Injury, including parents whose children have sadly experienced a brain injury: youtube.com/shorts/F7LMj... #BrainInjury #FamilyCarers #FamiliesAfterABI

To learn more about the mental health experiences of #FamilyCarers of people with #LearningDisabilities, check out the fabulous guide from the 'Tired of Spinning Plates?' project below: