Meds weren't cutting it and doing real damage.
Been using cold exposure on trail for years.
WHM gave it a framework.
Not a cure. Not perfect.
But enough pain relief to function.
buff.ly/FrXZNoW
#IntracranialHypertension #Autoimmunity #ChronicPain
I missed 4 days of work. 2 were intentional because I had company come in from Canada. The other 2 days were unexpected and due to being sick. #pseutumorcerebri #pseudotumor #intracranialhypertension #idiopathicintracranialhypertension #migraine #pcos #polycysticovariansyndrome #neurology
Third climb, it hit. Pounding pressure behind the eyes. Every heel strike magnified it. Intracranial pressure—vision, balance, judgment at stake. Ignoring isn't an option. Responding early is how you keep moving safely.
buff.ly/1hOXJp3
#IntracranialHypertension #POTS
💙💚
#iih #iihawareness #idiopathicintracranialhypertension #intracranialhypertension #invisibleillness
Can doctors please stop telling me that I'm so young and these should be the prime years of my life, and it's such a shame that I'm so sick?
Sorry to rant and be sad but it makes me feel so awful, I don't know what to do. I tried to get help when I was younger but no one listened to me.. :(
Transcranial doppler waveforms from the paper https://pubmed.ncbi.nlm.nih.gov/40445535/
Something borrowed: The brain shock index
pubmed.ncbi.nlm.nih....
#CCI #EDS #POTS #OI #BSI #IntracranialHypertension #TranscranialDoppler #Neurovascular #Dysautonomia #Capnography #AutonomicDysfunction #CerebralBloodFlow #Hypermobility #ChronicIllness
1/10
Transcranial doppler waveforms from the paper https://pubmed.ncbi.nlm.nih.gov/40445535/
Alles nur „geklaut“: The brain shock index
pubmed.ncbi.nlm.nih....
#CCI #EDS #POTS #OI #BSI #IntracranialHypertension #TranscranialDoppler #Neurovascular #Dysautonomia #Capnography #AutonomicDysfunction #CerebralBloodFlow #Hypermobility #ChronicIllness
1/10
I just want a break from this never-ending headache! It’s now 6 days old. I can only read in 10 minute bursts and then need an hour to recover, and at this rate I’m not even going to hit my ‘bare minimum’ reading goal for the year.
#headache #migraine #intracranialhypertension #chronicillness
due to the absence of sx associated with #intracranialhypertension . Yamada et al. identified distinct brain volume patterns in idiopathic normal-pressure hydrocephalus, Alzheimer’s, and mild cognitive impairment, aiding in differential diagnosis. buff.ly/gaFh79l @braincomms.bsky.social
Day 2 of my sisters neuro flare up. Her eyes are all bloodshot from the pressure, and she's having constant nosebleeds. #intracranialhypertension and #csfleak . So I am larping a victorian maid for her, so that she can fight through this. And I know that she will do the same the next time I flare up
2/2 Wants to do this again. But I’ve since had brain surgery, and have a VP shunt that could not be hidden behind this haircut. Part of me wants to show off my invisible illness, and another wants to keep it hidden. But I’ll always have this memory ♿️
#Intracranialhypertension
#iih
#hairstyle
Medical condition requiring me to start sleeping more elevated/upright. I have a "husband" style pillow but it is not tall enough to support my neck and head, and if I scoot down, there's no lower back support. But I hate to buy something new. 😭 Any ideas? #chronicillness #intracranialhypertension