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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
1 week ago
Severe acute COVID-19 and early long COVID signals in paediatric cohorts: an analysis of real-world data from two health departments, Germany — Schmidt et al "Increasing evidence suggests an association between severe acute COVID-19 in children and ME/CFS-like sequelae" "Although our cross-sectional design did not allow a formal diagnosis of ME/CFS or causal inference, the observed stepwise increase in the prevalence of persistent symptoms - from 0% among asymptomatic cases to 50% following severe COVID-19 - provides an exploratory signal."

Severe acute COVID-19 and early long COVID signals in paediatric cohorts: an analysis of real-world data from two health departments, Germany — Schmidt et al "Increasing evidence suggests an association between severe acute COVID-19 in children and ME/CFS-like sequelae" "Although our cross-sectional design did not allow a formal diagnosis of ME/CFS or causal inference, the observed stepwise increase in the prevalence of persistent symptoms - from 0% among asymptomatic cases to 50% following severe COVID-19 - provides an exploratory signal."

Severe acute COVID-19 and early long COVID signals in paediatric cohorts: an analysis of real-world data from two health departments, Germany

link.springer.com/article/10.1...

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids #LCKids

10 4 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
1 month ago
Pediatric long COVID is characterized by myeloid CCR6 suppression and immune dysregulation — Jon Izquierdo-Pujol et al. "Our findings indicate that pediatric long COVID is associated with a dysregulated immune response characterized by altered innate immunity and overactivated T-, B- and NK-cell responses."

Pediatric long COVID is characterized by myeloid CCR6 suppression and immune dysregulation — Jon Izquierdo-Pujol et al. "Our findings indicate that pediatric long COVID is associated with a dysregulated immune response characterized by altered innate immunity and overactivated T-, B- and NK-cell responses."

From 🇪🇸

"Our findings indicate pediatric long COVID is associated with a dysregulated immune response characterized by altered innate immunity & overactivated T-, B- and NK-cell responses."

insight.jci.org/articles/vie...

Screenshot from Science for ME weekly update

#LongCovidKids #LCKids

6 5 1 1
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
1 month ago
Back-to-School Guide With school now back for the year, a reminder of our “return to school” guide for people with energy limiting conditions like ME/CFS and long COVID. Our guide will help you to: Know your child or young person’s rights at school Develop helpful adjustments to manage school within the limits of their ME/CFS or long COVID Talk with your school around your child or young person’s ME/CFS or long COVID, how it affects them and what they might need. ACCESS THE GUIDE

Back-to-School Guide With school now back for the year, a reminder of our “return to school” guide for people with energy limiting conditions like ME/CFS and long COVID. Our guide will help you to: Know your child or young person’s rights at school Develop helpful adjustments to manage school within the limits of their ME/CFS or long COVID Talk with your school around your child or young person’s ME/CFS or long COVID, how it affects them and what they might need. ACCESS THE GUIDE

"Back-to-School Guide" from the Emerge Australia newsletter

emerge.org.au/your-child-o...

#MEcfs #LongCovid #LongCovidKids #LCKids #CFS #PwME

5 3 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
Functional Limitations and Illness-Related Absenteeism among School-Aged Children with and without Long COVID, United States, 2022–2023 - Volume 32, Supplement—February 2026 - Emerging Infectious Diseases journal - CDC — Nicole D. Ford et al. On the basis of the weighted samples, we estimated 1,538,000 (1.4%) school-aged children had long COVID at some point." "69.7% were 12–17 years of age, 59.4% were female and 40.6% were male, and 35.2% were experiencing long COVID symptoms at time of survey." "Compared with children who never had long COVID, children who had long COVID had a higher prevalence of functional limitations across 5 of the 6 functional domains."

Functional Limitations and Illness-Related Absenteeism among School-Aged Children with and without Long COVID, United States, 2022–2023 - Volume 32, Supplement—February 2026 - Emerging Infectious Diseases journal - CDC — Nicole D. Ford et al. On the basis of the weighted samples, we estimated 1,538,000 (1.4%) school-aged children had long COVID at some point." "69.7% were 12–17 years of age, 59.4% were female and 40.6% were male, and 35.2% were experiencing long COVID symptoms at time of survey." "Compared with children who never had long COVID, children who had long COVID had a higher prevalence of functional limitations across 5 of the 6 functional domains."

From the CDC:

Functional Limitations and Illness-Related Absenteeism among School-Aged Children with and without Long COVID, United States, 2022–2023

wwwnc.cdc.gov/eid/article/...

Screenshot from Science for ME weekly update

#LongCovid #LongCovidKids #LCKids #COVIDBrain #postcovid #postcovid19

8 3 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
Social Determinants of Health and Pediatric Long COVID in the US — Kyung E. Rhee et al. RECOVER study. "The results of this study demonstrate that long COVID is more prevalent among children living with economic instability and adverse social and community contexts. Given their young age and unclear trajectory of symptoms over the life course, the long-term economic effects and the health care needs of this population may be immense."

Social Determinants of Health and Pediatric Long COVID in the US — Kyung E. Rhee et al. RECOVER study. "The results of this study demonstrate that long COVID is more prevalent among children living with economic instability and adverse social and community contexts. Given their young age and unclear trajectory of symptoms over the life course, the long-term economic effects and the health care needs of this population may be immense."

2/
Social Determinants of Health and Pediatric Long COVID in the US

jamanetwork.com/journals/jam...

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids #LCKids

0 1 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
Exhaled breath-based clusters in children with post-COVID condition — Shahriyar Shahbazi Khamas et al. Compared to Cluster 1 (n=38), Cluster 2 (n=16) consisted predominantly of older girls (69%) with a median age of 16 years and exhibited more severe PPCC-related outcomes, including higher PROMIS fatigue scores. Six volatile organic compounds (VOCs) were identified as biomarkers that effectively differentiated the two clusters." "These VOCs, previously reported in the literature, highlight metabolic and inflammatory disruptions and demonstrated high discriminatory performance "

Exhaled breath-based clusters in children with post-COVID condition — Shahriyar Shahbazi Khamas et al. Compared to Cluster 1 (n=38), Cluster 2 (n=16) consisted predominantly of older girls (69%) with a median age of 16 years and exhibited more severe PPCC-related outcomes, including higher PROMIS fatigue scores. Six volatile organic compounds (VOCs) were identified as biomarkers that effectively differentiated the two clusters." "These VOCs, previously reported in the literature, highlight metabolic and inflammatory disruptions and demonstrated high discriminatory performance "

Exhaled breath-based clusters in children with post-COVID condition

iopscience.iop.org/article/10.1...

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids #LCKids #PASC

4 2 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
Nigel Speight Nigel SpeightNigel Speight • 1st1st Paediatrician at 'Self-Employed'Paediatrician at 'Self-Employed' 4h • 4 hours ago • Visible to anyone on or off LinkedIn Re the discussion on Child Abuse and our current failings as a society, could I add an observation from a different angle? Over recent years I have been involved in protecting over 200 innocent families from the child abuse machinery Most of the families had children with ME or long Covid Their paediatricians had failed to protect them by making a firm enough diagnosis and they had then been accused of FII Apart from the distress to the families this has involved an enormous waste of resources especially on the part of social services I have often felt like exclaiming at a case conference, “ don’t you have any real abuse in this area?” It seems that some social service departments are allowing these cases to work as a diversion from the challenge of confronting real abuse These cases seem to be increasingly common ever since our college endorsed (unwisely in my opinion) the wider definition of FII which includes MUS and PP

Nigel Speight Nigel SpeightNigel Speight • 1st1st Paediatrician at 'Self-Employed'Paediatrician at 'Self-Employed' 4h • 4 hours ago • Visible to anyone on or off LinkedIn Re the discussion on Child Abuse and our current failings as a society, could I add an observation from a different angle? Over recent years I have been involved in protecting over 200 innocent families from the child abuse machinery Most of the families had children with ME or long Covid Their paediatricians had failed to protect them by making a firm enough diagnosis and they had then been accused of FII Apart from the distress to the families this has involved an enormous waste of resources especially on the part of social services I have often felt like exclaiming at a case conference, “ don’t you have any real abuse in this area?” It seems that some social service departments are allowing these cases to work as a diversion from the challenge of confronting real abuse These cases seem to be increasingly common ever since our college endorsed (unwisely in my opinion) the wider definition of FII which includes MUS and PP

Comment today from Dr Nigel Speight

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #LongCovid #LongCovidKids #LCKids

21 12 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
News Release 5-Jan-2026 Food insecurity and adverse social conditions tied to increased risk of long COVID in children Results identified social risk factors associated with greater odds of prolonged SARS-CoV-2 symptoms Peer-Reviewed Publication Brigham and Women's Hospital FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Mass General Brigham researchers looked at data on 4,584 participants across 52 U.S. sites from the federally funded RECOVER-Pediatrics study Results identified social risk factors associated with greater odds of prolonged SARS-CoV-2 symptoms New research led by Mass General Brigham investigators suggests that long COVID is more prevalent in school-aged children and adolescents who experience economic instability and adverse social conditions. The multi-center, observational study found that the risk of long COVID was significantly higher in households that faced food insecurity and challenges such as low social support and high levels of discrimination. Results are published in JAMA Pediatrics. “Long COVID in children is especially concerning because of the potential for long-term health effects that could persist into adulthood,” said co-first author Tanayott Thaweethai, PhD, of Massachusetts General Hospital Biostatistics. "Public health interventions that target social risk factors—such as food insecurity and lack of social support—are critical to reduce the burden of long COVID and safeguard the overall health of children as they continue to acquire COVID-19."

News Release 5-Jan-2026 Food insecurity and adverse social conditions tied to increased risk of long COVID in children Results identified social risk factors associated with greater odds of prolonged SARS-CoV-2 symptoms Peer-Reviewed Publication Brigham and Women's Hospital FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Mass General Brigham researchers looked at data on 4,584 participants across 52 U.S. sites from the federally funded RECOVER-Pediatrics study Results identified social risk factors associated with greater odds of prolonged SARS-CoV-2 symptoms New research led by Mass General Brigham investigators suggests that long COVID is more prevalent in school-aged children and adolescents who experience economic instability and adverse social conditions. The multi-center, observational study found that the risk of long COVID was significantly higher in households that faced food insecurity and challenges such as low social support and high levels of discrimination. Results are published in JAMA Pediatrics. “Long COVID in children is especially concerning because of the potential for long-term health effects that could persist into adulthood,” said co-first author Tanayott Thaweethai, PhD, of Massachusetts General Hospital Biostatistics. "Public health interventions that target social risk factors—such as food insecurity and lack of social support—are critical to reduce the burden of long COVID and safeguard the overall health of children as they continue to acquire COVID-19."

News Release 5-Jan-2026

"Food insecurity and adverse social conditions tied to increased risk of long COVID in children: Results identified social risk factors associated with greater odds of prolonged SARS-CoV-2 symptoms"

www.eurekalert.org/news-release...

#LongCovid #LongCovidKids #LCKids

6 5 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Fatigue in children and young people up to 24 months after infection with SARS-CoV-2 — Richards-Belle et al. "We found limited evidence to suggest that fatigue varied by ethnicity or deprivation" "Additionally, the rate of change in CFQ scores over time was faster in females (with fatigue worsening over time), compared to males (where scores were relatively constant)."

Fatigue in children and young people up to 24 months after infection with SARS-CoV-2 — Richards-Belle et al. "We found limited evidence to suggest that fatigue varied by ethnicity or deprivation" "Additionally, the rate of change in CFQ scores over time was faster in females (with fatigue worsening over time), compared to males (where scores were relatively constant)."

From the UK: CLoCK study

Fatigue in children and young people up to 24 months after infection with SARS-CoV-2

www.nature.com/articles/s41...

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids #LCKids #PASC

15 4 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago

2/

"The risks of severe LC were 6.1% and 4.7% in unvaccinated and vaccinated participants, respectively [RR 0.77 (95 % CI: 0.48, 1.26)]."

#LongCovid #LongCovidKids #LCKids

2 0 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
News Release 6-Nov-2025 COVID-19 vaccination lowers long COVID risk in adolescents Peer-Reviewed Publication Columbia University Irving Medical Center FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Nov. 6, 2025--Adolescents who were vaccinated against COVID-19 were less likely to develop long COVID after their first SARS-CoV-2 infection than unvaccinated peers, finds a new study. The study, led by the NIH-funded RECOVER Initiative, is the first to examine the potential benefits of COVID vaccination in adolescents beyond lowering the severity of initial COVID symptoms. “These findings provide evidence that COVID vaccination has an important secondary effect in helping to mitigate the risk of long COVID in adolescents,” says Melissa Stockwell, a pediatrician at Columbia University Irving Medical Center and clinical senior author of the study.

News Release 6-Nov-2025 COVID-19 vaccination lowers long COVID risk in adolescents Peer-Reviewed Publication Columbia University Irving Medical Center FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Nov. 6, 2025--Adolescents who were vaccinated against COVID-19 were less likely to develop long COVID after their first SARS-CoV-2 infection than unvaccinated peers, finds a new study. The study, led by the NIH-funded RECOVER Initiative, is the first to examine the potential benefits of COVID vaccination in adolescents beyond lowering the severity of initial COVID symptoms. “These findings provide evidence that COVID vaccination has an important secondary effect in helping to mitigate the risk of long COVID in adolescents,” says Melissa Stockwell, a pediatrician at Columbia University Irving Medical Center and clinical senior author of the study.

US press release:

"the risk of developing long COVID was over 20% among unvaccinated youths and about 13% among those who were vaccinated"

www.eurekalert.org/news-release...

13% is still high

#LongCovid #LCKids #LongCovidKids #PASC

34 10 4 2
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Persistent neurological sequelae in children and adolescents after SARS-CoV-2: a scoping review — Mallouli et al. "Our results demonstrate a considerable burden of COVID-19-related persistent neurological signs/symptoms in children and adolescents, which should be taken into consideration in healthcare decision-making."

Persistent neurological sequelae in children and adolescents after SARS-CoV-2: a scoping review — Mallouli et al. "Our results demonstrate a considerable burden of COVID-19-related persistent neurological signs/symptoms in children and adolescents, which should be taken into consideration in healthcare decision-making."

"Our results demonstrate a considerable burden of COVID-19-related persistent neurological signs/symptoms in children and adolescents"

link.springer.com/article/10.1...

Screenshot from latest Science for ME weekly update

#LongCovid #LCKids #LongCovidKids #PASC

12 7 0 1
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Prevalence and duration of clinical symptoms of pediatric long COVID: findings from a one-year prospective study — Perestiuk et al. "Overall, 32.5% of all participants continued to experience symptoms of long COVID more than one year after their initial illness. The results confirm the development of long COVID in pediatric patients of all ages, regardless of the severity and course of the acute illness."

Prevalence and duration of clinical symptoms of pediatric long COVID: findings from a one-year prospective study — Perestiuk et al. "Overall, 32.5% of all participants continued to experience symptoms of long COVID more than one year after their initial illness. The results confirm the development of long COVID in pediatric patients of all ages, regardless of the severity and course of the acute illness."

From Ukraine

"32.5% of all participants [pediatric sample] continued to experience symptoms of long COVID more than one year after their initial illness

www.frontiersin.org/journals/ped...

Screenshot from latest Science for ME weekly update

#LongCovid #LCKids #LongCovidKids #PASC

10 3 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
5 months ago
UK Covid Enquiry, article in The Mirror newspaper The Mirror published an article on children and the Covid Inquiry currently taking place in the UK, featuring activists and people with experience of pediatric Long Covid as well as expert critics of the school closure implementations. Our friends from Long Covid Advocacy are amongst families and activists quoted in the article. Their spokesperson is quoted saying: ‘The government’s failure to prepare schools for Covid-19 wasn’t accidental – it was ideological. When Boris Johnson compared Long Covid to ‘Gulf War Syndrome,’ he exposed a belief system that dismissed biological illness as psychologically influenced. That same mindset drove policies that left children unprotected, unresearched, and unheard.’ Claire Every, spokesperson for Long Covid Advocacy, quoted by The Mirror newspaper

UK Covid Enquiry, article in The Mirror newspaper The Mirror published an article on children and the Covid Inquiry currently taking place in the UK, featuring activists and people with experience of pediatric Long Covid as well as expert critics of the school closure implementations. Our friends from Long Covid Advocacy are amongst families and activists quoted in the article. Their spokesperson is quoted saying: ‘The government’s failure to prepare schools for Covid-19 wasn’t accidental – it was ideological. When Boris Johnson compared Long Covid to ‘Gulf War Syndrome,’ he exposed a belief system that dismissed biological illness as psychologically influenced. That same mindset drove policies that left children unprotected, unresearched, and unheard.’ Claire Every, spokesperson for Long Covid Advocacy, quoted by The Mirror newspaper

UK Covid Enquiry, article in The Mirror newspaper
www.mirror.co.uk/news/uk-news...

Screenshot from latest Chronic Living Therapy @chronicliving123.bsky.social e-newsletter
chroniclivingtherapy.com/5-elsewhere-...

#LongCovid #LongCovidKids #LCKids @longcovidadvoc.com @lammasleaves.bsky.social

6 5 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
5 months ago
Preview
Long Covid Is Real -- And It's Changing an Entire Generation Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.

Rolling Stone: Long Covid is Real - And It's Changing an Entire Generation

An indepth article about #LongCovid which focuses on its impact on children. Quote: "When you have a disability people can’t see you don’t get as much empathy”

www.rollingstone.com/culture/cult...

#LongCovidKids #LCKids

23 12 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
5 months ago

US only I believe.
#CFS #LongCovidKids #LCkids #PwME #MEcfs

5 3 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
5 months ago
Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child’s perspective — Lillieberg et al. "A striking finding in the analysis were the fatigue experienced by the children and how severely it influenced the children." "The children in our study also reported a life strewn with impaired physical performance, leaving them unable to do what they had done before, and forcing them to face a new reality, namely an everyday life with the limitations that come with fatigue."

Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child’s perspective — Lillieberg et al. "A striking finding in the analysis were the fatigue experienced by the children and how severely it influenced the children." "The children in our study also reported a life strewn with impaired physical performance, leaving them unable to do what they had done before, and forcing them to face a new reality, namely an everyday life with the limitations that come with fatigue."

From Sweden:

Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child’s perspective

bmcpediatr.biomedcentral.com/articles/10....

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids #LCKids #PASC

7 5 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
5 months ago
Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study — Bingyu Zhang et al. "In this study involving 465 717 individuals, we observed an increased risk of PASC across multiple organ systems after SARS-CoV-2 reinfection, reinforcing concerns about the long-term consequences of reinfection. These findings emphasise the ongoing risk of PASC with reinfection, regardless of severity, and suggest that the risk of PASC might be cumulative with each successive infection."

Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study — Bingyu Zhang et al. "In this study involving 465 717 individuals, we observed an increased risk of PASC across multiple organ systems after SARS-CoV-2 reinfection, reinforcing concerns about the long-term consequences of reinfection. These findings emphasise the ongoing risk of PASC with reinfection, regardless of severity, and suggest that the risk of PASC might be cumulative with each successive infection."

2/
Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study

www.thelancet.com/journals/lan...

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids #LCKids #PASC

1 1 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
6 months ago
News Release 30-Sep-2025 Risk of long COVID in kids doubles after second infection Study findings reinforce the importance of COVID vaccination in children Peer-Reviewed Publication Ann & Robert H. Lurie Children's Hospital of Chicago Children and adolescents were twice as likely to experience long COVID after catching COVID for the second time, compared to their peers with a single previous infection, according to a large study funded by the National Institutes of Health (NIH) and published in Lancet Infectious Diseases. These results run counter to the popular perceptions that COVID in children is "mild" and that reinfections with COVID do not carry the same risk of long COVID that initial infections do. Among the conditions associated with long COVID in youth, myocarditis (swelling of the heart muscle that can weaken the heart and even prove fatal) was most common with the risk tripling after a second COVID infection compared to the initial infection. Blood clots in children were more than twice as likely after a second COVID infection. Kids were also at increased risk for many other conditions after getting COVID twice, including damaged kidneys, abnormal heartbeats, headache, abdominal pain and severe fatigue.

News Release 30-Sep-2025 Risk of long COVID in kids doubles after second infection Study findings reinforce the importance of COVID vaccination in children Peer-Reviewed Publication Ann & Robert H. Lurie Children's Hospital of Chicago Children and adolescents were twice as likely to experience long COVID after catching COVID for the second time, compared to their peers with a single previous infection, according to a large study funded by the National Institutes of Health (NIH) and published in Lancet Infectious Diseases. These results run counter to the popular perceptions that COVID in children is "mild" and that reinfections with COVID do not carry the same risk of long COVID that initial infections do. Among the conditions associated with long COVID in youth, myocarditis (swelling of the heart muscle that can weaken the heart and even prove fatal) was most common with the risk tripling after a second COVID infection compared to the initial infection. Blood clots in children were more than twice as likely after a second COVID infection. Kids were also at increased risk for many other conditions after getting COVID twice, including damaged kidneys, abnormal heartbeats, headache, abdominal pain and severe fatigue.

News Release 30-Sep-2025:

Risk of long COVID in kids doubles after second infection

www.eurekalert.org/news-release...

2nd press release on same study

Other press release on study said: "The higher risk was observed...regardless of whether they were vaccinated"

#LCKids #LongCovidKids #longCOVID

11 7 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
6 months ago
News Release 30-Sep-2025 The Lancet Infectious Diseases: New study suggests risk of long COVID in children may be twice as high after a second infection Peer-Reviewed Publication The Lancet A new study published in The Lancet Infectious Diseases involving over 460,000 children and adolescents across 40 paediatric hospitals in the USA suggests that children who were infected with COVID-19 for the second time during the Omicron wave had more than double the risk of developing long COVID.

News Release 30-Sep-2025 The Lancet Infectious Diseases: New study suggests risk of long COVID in children may be twice as high after a second infection Peer-Reviewed Publication The Lancet A new study published in The Lancet Infectious Diseases involving over 460,000 children and adolescents across 40 paediatric hospitals in the USA suggests that children who were infected with COVID-19 for the second time during the Omicron wave had more than double the risk of developing long COVID.

News Release 30-Sep-2025

The Lancet Infectious Diseases: New study suggests risk of #longCOVID in children may be twice as high after a second infection

www.eurekalert.org/news-release...

"highlights continued importance of...other protective measures such as masking & social distancing"

#LCKids

6 5 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
6 months ago
#152: Long Story Short - The Curbsiders Understanding Long COVID in Children and Adolescents What does Long COVID really look like in kids and teens? In this episode, we’re joined by Dr. Peter Rowe from Johns Hopkins to unpack the recogniti...

Dr. Peter Rowe was guest in a podcast for paediatricians, The Cribsiders Podcast, where he talked about Long Covid and ME/CFS in children and adolescents.

thecurbsiders.com/cribsiders-p...

#MEcfs #LongCovid #LongCovidKids #LCKids

9 3 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
7 months ago
Pediatric Long COVID Is Characterized by Myeloid CCR6 Suppression and Immune Dysregulation — Jon Izquierdo-Pujol et al. "we found that decreased CCR6 expression in monocytes was the most important feature that distinguished LC" " individuals with LC who were misclassified as controls had a higher clinical recovery rate than those who were correctly classified, suggesting a potential association between normalization of the immune profile and resolution of symptoms."

Pediatric Long COVID Is Characterized by Myeloid CCR6 Suppression and Immune Dysregulation — Jon Izquierdo-Pujol et al. "we found that decreased CCR6 expression in monocytes was the most important feature that distinguished LC" " individuals with LC who were misclassified as controls had a higher clinical recovery rate than those who were correctly classified, suggesting a potential association between normalization of the immune profile and resolution of symptoms."

From Spain

Pediatric Long COVID Is Characterized by Myeloid CCR6 Suppression and Immune Dysregulation

www.biorxiv.org/content/10.1...

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids #LCKids

10 5 0 0
MissingDOCTORSandPSYCHOTHERAPISTS
MissingDOCTORSandPSYCHOTHERAPISTS
@medocspsytheras.bsky.social
7 months ago
Preview
Erfahrung mit PEDNET-LC-Zentren - NichtGenesenKids e.V. Eure Erfahrung mit Terminen in den neuen PEDNET-LC-Zentren Liebe Eltern,seit dem 01.01.2025 werden in Deutschland schrittweise die neuen PEDNET-LC-Zentren aufgebaut – als spezialisierte Anlaufstellen ...

Hier werden eure Erfahrungen mit allen #PedNet-Anlaufstellen gesammelt.
Diese Erfassung gehört explizit zum Projekt und wird ausgewertet.
Bitte mitmachen und teilen!
#MECFSkids
#LCkids
#MECFS
#LongCOVID
nichtgenesenkids.de/wwt/erfahrun...

24 17 2 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
7 months ago
As school heads back for the second half of the year, a reminder of our “return to school” guide for people with energy limiting conditions like ME/CFS and long COVID. Our guide will help you to: • Know your child or young person’s rights at school • Develop helpful adjustments to manage school within the limits of their ME/CFS or long COVID • Talk with your school around your child or young person’s ME/CFS or long COVID, how it affects them and what they might need.

As school heads back for the second half of the year, a reminder of our “return to school” guide for people with energy limiting conditions like ME/CFS and long COVID. Our guide will help you to: • Know your child or young person’s rights at school • Develop helpful adjustments to manage school within the limits of their ME/CFS or long COVID • Talk with your school around your child or young person’s ME/CFS or long COVID, how it affects them and what they might need.

Your child or young person with ME/CFS or long COVID and school

emerge.org.au/your-child-o...

Image is screenshot from The Emerge Australia Newsletter

#LongCovid #MEcfs #LongCovidKids #LCKids

8 3 1 2
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
8 months ago
News Release 30-Jul-2025 Clinical trial finds safe, effective treatment for children with severe post-Covid syndrome Peer-Reviewed Publication Mass General Brigham In a small trial, Mass General Brigham researchers found a drug designed to treat Celiac disease supported a more rapid return to normal activities for patients following COVID. Multisystem inflammatory syndrome in children (MIS-C) is a rare but serious condition that can occur after a COVID-19 infection, presenting as high fevers, gastrointestinal symptoms, and life-threatening cardiac injury. A small, randomized clinical trial led by Mass General Brigham investigators found the oral drug larazotide—an experimental drug originally designed to treat Celiac disease—was both safe and effective in treating children with MIS-C. Their results are published in Science Translational Medicine. “While our study is small, its results are powerful and have implications not only for MIS-C, but potentially for long COVID,” said lead author Lael Yonker, MD, co-director of the Cystic Fibrosis Center, Cystic Fibrosis Therapeutic Development Center, and Pulmonary Genetics Clinic at Mass General Brigham for Children. “Our findings suggest that larazotide is safe and quickly resolves symptoms in children with MIS-C. We are now running a clinical trial to test whether larazotide may also be a useful therapy to treat patients with long COVID.”

News Release 30-Jul-2025 Clinical trial finds safe, effective treatment for children with severe post-Covid syndrome Peer-Reviewed Publication Mass General Brigham In a small trial, Mass General Brigham researchers found a drug designed to treat Celiac disease supported a more rapid return to normal activities for patients following COVID. Multisystem inflammatory syndrome in children (MIS-C) is a rare but serious condition that can occur after a COVID-19 infection, presenting as high fevers, gastrointestinal symptoms, and life-threatening cardiac injury. A small, randomized clinical trial led by Mass General Brigham investigators found the oral drug larazotide—an experimental drug originally designed to treat Celiac disease—was both safe and effective in treating children with MIS-C. Their results are published in Science Translational Medicine. “While our study is small, its results are powerful and have implications not only for MIS-C, but potentially for long COVID,” said lead author Lael Yonker, MD, co-director of the Cystic Fibrosis Center, Cystic Fibrosis Therapeutic Development Center, and Pulmonary Genetics Clinic at Mass General Brigham for Children. “Our findings suggest that larazotide is safe and quickly resolves symptoms in children with MIS-C. We are now running a clinical trial to test whether larazotide may also be a useful therapy to treat patients with long COVID.”

News Release 30-Jul-2025
Clinical trial finds safe, effective treatment for children with severe post-Covid syndrome

www.eurekalert.org/news-release...

"We are now running a clinical trial to test whether larazotide may also be a useful therapy to treat patients with #LongCovid"

#LCKids

24 9 4 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
8 months ago
Diagnosis and Management of Long COVID in Children and Adolescents: An Update after 5 Years of Clinical and Research Experience — Nadendla et al. "Pediatric patients commonly experience fatigue, cognitive dysfunction, orthostatic intolerance, and conditions such as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and mast cell activation syndrome (MCAS), often with overlapping presentations."

Diagnosis and Management of Long COVID in Children and Adolescents: An Update after 5 Years of Clinical and Research Experience — Nadendla et al. "Pediatric patients commonly experience fatigue, cognitive dysfunction, orthostatic intolerance, and conditions such as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and mast cell activation syndrome (MCAS), often with overlapping presentations."

"Pediatric patients [with long Covid] commonly experience fatigue, cognitive dysfunction, orthostatic intolerance, and conditions such as ME/CFS and mast cell activation syndrome"

link.springer.com/article/10.1...

Screenshot from Science for ME weekly update

#LongCovid #LongCovidKids #LCKids

27 9 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
8 months ago
News Release 23-Jul-2025 Study shows a need for vigilance when observing long COVID symptoms in younger children Rutgers researchers say clinicians and caregivers may not recognize the symptoms because they are unfamiliar with it Peer-Reviewed Publication Rutgers University Infants, toddlers and preschoolers exhibit symptoms of long COVID, but the symptoms can be different and more difficult to identify in these children, according to Rutgers Health research. The new study is part of the National Institutes of Health–funded Researching COVID to Enhance Recovery (RECOVER) initiative and published in the Journal of the American Medical Association Pediatrics.

News Release 23-Jul-2025 Study shows a need for vigilance when observing long COVID symptoms in younger children Rutgers researchers say clinicians and caregivers may not recognize the symptoms because they are unfamiliar with it Peer-Reviewed Publication Rutgers University Infants, toddlers and preschoolers exhibit symptoms of long COVID, but the symptoms can be different and more difficult to identify in these children, according to Rutgers Health research. The new study is part of the National Institutes of Health–funded Researching COVID to Enhance Recovery (RECOVER) initiative and published in the Journal of the American Medical Association Pediatrics.

Long COVID Pediatric Awareness Week news release:

"Study shows a need for vigilance when observing #longCOVID symptoms in younger children: Rutgers researchers say clinicians & caregivers may not recognize the symptoms because they are unfamiliar with it"

www.eurekalert.org/news-release...
#LCKids

14 7 0 1
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
8 months ago
Journal of Medical Economics Quantifying all-cause healthcare resource utilization and costs of children with mild-to-moderate long COVID in France — Jingyan Yang et al. "In the present study of 27,573 children diagnosed with COVID-19, 14.1% and 17.4% had long COVID per the WHO and NICE definitions, respectively. Evaluation of the all-cause HCRU and costs of these children demonstrated that pediatric long COVID managed in the community imposes a non-neglectable clinical and economic burden to the French healthcare system"

Journal of Medical Economics Quantifying all-cause healthcare resource utilization and costs of children with mild-to-moderate long COVID in France — Jingyan Yang et al. "In the present study of 27,573 children diagnosed with COVID-19, 14.1% and 17.4% had long COVID per the WHO and NICE definitions, respectively. Evaluation of the all-cause HCRU and costs of these children demonstrated that pediatric long COVID managed in the community imposes a non-neglectable clinical and economic burden to the French healthcare system"

"pediatric long COVID managed in the community imposes a non-neglectable clinical and economic burden to the French healthcare system"

www.tandfonline.com/doi/abs/10.1...

Image is from the Science for ME weekly update

#LongCovidKids #LCKids #LongCovid

11 5 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
9 months ago
Journal of Paediatrics and Child Health Post-Covid-19 Symptoms in Children: A Cross-Sectional Survey — Julie Bennett et al. "the proportion of children in the survey who reported good or very good health reduced from 82.6% before NZ's two large Omicron waves to 66.9% after these waves, with changes in health significantly more frequent in those who had a Covid-19 infection compared with those who had not."

Journal of Paediatrics and Child Health Post-Covid-19 Symptoms in Children: A Cross-Sectional Survey — Julie Bennett et al. "the proportion of children in the survey who reported good or very good health reduced from 82.6% before NZ's two large Omicron waves to 66.9% after these waves, with changes in health significantly more frequent in those who had a Covid-19 infection compared with those who had not."

"the proportion of children in the survey who reported good or very good health reduced from 82.6% before NZ's two large Omicron waves to 66.9% after these waves"

onlinelibrary.wiley.com/doi/10.1111/...

Image is from the latest Science for ME weekly update

#LongCovidKids #LCKids #novid #LongCovid

29 17 3 1
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
9 months ago
Preview
The Youngest Victims: A Mother’s Perspective on Long COVID Research and the ME/CFS Reality We’ve Lived As a mother who has watched my child suffer with ME/CFS for ten years, I felt a complex mix of validation and heartbreak reading the groundbreaking study published in JAMA Pediatrics. Finally…

"The Youngest Victims: A Mother’s Perspective on Long COVID Research & the ME/CFS Reality We’ve Lived"

batemanhornecenter.org/the-youngest...

A blog post discussing recent research from the NIH-funded RECOVER initiative that looked at #LongCovid symptoms in children.

#LCKids #LongCovidKids #MEcfs

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