💙💚 We are Living LFS 💚💙
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #LFSawarenessmonth #lfsawareness #lfsawarenessday #lifraumenisyndromeawareness
#lifraumenisyndromeawarenessmonth
Irení is one of our 2026 Spring Hardship Grant recipients.
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #lifraumenisyndromeawarenessmonth #lfsawarenessmonth #lifraumenisyndromeawarenessday
#lfsawarenessday #hardshipgrants #LFShardshipgrants
When you're diagnosed with LFS it's recommended a specific regiment of screenings is performed. Early detection saves lives!
livinglfs.org/resources/#s...
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lfsawarenessmonth #lfsawarenessday
Knowledge is power! Share LFS Facts throughout the month of March. Learn exactly what this rare genetic disease is about!
We are Living LFS!
www.LFSawareness.com
#LFSawarenessmonth #lfsawareness #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #tp53 #geneticmutation #rarediseases
Share if you love someone with LFS!
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #rarediseaseday #lfsawareness #rarediseaseday2026
ONE more week until Li-Fraumeni Syndrome Awareness Month! Here are ways you can participate. Check out our website for all details and links: LFSawareness.com
#LFSawarenessmonth #LFSawarenessday #marchislfsawarenessmonth #lfsawareness #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs
Today is International Childhood Cancer Day, a global campaign to raise awareness for childhood cancer and support children and their families.
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #InternationalChildhoodCancerDay #pediatriccancer #childhoodcancer
Many clinical trial participants have selfless reasons for joining a trial - such as improving health care for others in the future. Participants on the control arm are needed for many trials to show clear results. The control arm is often the current treatment (or no treatment, if there is no current treatment). Without comparing any new treatment to a control arm, it is hard to know if the new treatment is better or worse than current treatment.
Clinical trials – what is a control arm and why is it important?
@oncology.ox.ac.uk @oxfordcancer.bsky.social
& George Pantziarka TP53 Trust #LFS #LiFraumeni
Next up in the Meet The MILI Team series is Beckie Kaemba.
Beckie is a genetic counsellor and is part of the MILI team at Leicester Royal Infirmary.
#LFS #LiFraumeni @oncology.ox.ac.uk @oxfordcancer.bsky.social
George Pantziarka TP53 Trust & Leicester University Hospitals
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter
Next up in the Meet The MILI Team series, is Dr Julian Barwell.
Dr Barwell is a consultant clinical geneticist and is part of the MILI team at Leicester Royal Infirmary.
#LFS #LiFraumeni #LFS #LiFraumeni #GeorgePantziarkaTP53Trust
@oxfordcancer.bsky.social @oncology.ox.ac.uk
Thinking of all our friends who know cancering doesn't take a break for the holidays 💙💚


#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter
Next up in the Meet The MILI Team series, is Sahar Elkady.
Sahar is a clinical research practitioner and is part of the MILI team at Nottingham City Hospital.
#LFS #LiFraumeni #GPTP53Trust
@oncology.ox.ac.uk
@oxfordcancer.bsky.social
@nottmhospitals.bsky.social
12 days till the holidays!
THESE are the 12 months of LFS! 💚🐘💙
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter
🧬Hidden legacy: Donor's gene linked to cancers in ~200 kids.💔 A chilling genetic mystery. #LiFraumeni
Source: science.slashdot.org/story/25/12/11/0034259/s...
¿Cómo pudo un donante tener 200 hijos con un gen letal?
#Salud #ReproducciónAsistida #TP53 #LiFraumeni #EuropeanSpermBank #Genética #Oncología #España #UE #Noticias #SeguridadPaciente #9dediciembre #felizmartes
donporque.com/donante-200-...
Image shows Research Nurse, Hannah Holdsworth, from Leicester Royal Infirmary. She works on the MILI trial, helping to identify and screen eligible patients, arranging their appointments and collecting key clinical information during visits. She provides ongoing support throughout patients' journeys, ensuring they feel informed and cared for every step of the way. It goes on to say that the MILI study is about hope and progress. It means offering patients new opportunities and ensuring that their voices help shape better treatments for tomorrow.
Next up in the Meet The MILI Team series, is Hannah Holdsworth.
Hannah is a research nurse and is part of the MILI team at Leicester Royal Infirmary.
#LFS #LiFraumeni #georgepantziarkatrust @oncology.ox.ac.uk @oxfordcancer.bsky.social @leicestersresearch.bsky.social
Next up in the Meet The MILI Team series, is Resifina Seyara.
Resifina is a research nurse and is part of the MILI team at Aberdeen Clinical Genetics.
#LFS #LiFraumeni #georgepantziarkatrust
@oncology.ox.ac.uk @oxfordcancer.bsky.social @nhsgrampian.bsky.social
10 Days of Thankful.
We are Thankful for the countless researchers past and present who strive to find answers, treatments and options for our rare families with Li-Fraumeni Syndrome.
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #LLFS #cancerresearch
Next up in the Meet The MILI Team series, is Dr Schaida Schirwani.
Dr Schirwani is a genetics consultant and is part of the MILI team at University Hospital Southampton.
#LFS #LiFraumeni @uhsft.bsky.social @oncology.ox.ac.uk
@oxfordcancer.bsky.social
tp53.co.uk/lfs-tp53/
Introducing our Meet The MILI Team series!
Each week will feature a different team member.
We are starting off with the brains behind the trial, our very own Clinical Investigator, Prof Sarah Blagden:
#LFS #LiFraumeni @oncology.ox.ac.uk @oxfordcancer.bsky.social
tp53.co.uk/lfs-tp53/
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #LLFS #mentalhealth #breastcancerawareness #breastcancerawarenessmonth
Link to the Toronto Protocol: livinglfs.org/screening-th...
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #cancerfighter #breastcancer #breastcancerawarenessmonth #breastcancer #feelitonthefirst
You can find the book here: amzn.to/3PQnvf2
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember #BrysonBrave
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticmutation #rarediseases #cancerfighter #genetictesting #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
Some Li Fraumeni syndrome pediatric cancer facts. But remember, not everyone gets cancer and many children live happy normal lives. Our little heroes!
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
