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I haven’t tried that re foods because I have so many other food issues outside of #LondCovid & #POTS

But as to #BrainFog I try going through the alphabet to find my words. Might take a while but usually works in the long run 🤷‍♀️

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A little cartoon body doing a dance and responding to the question about whether it’s going to behave today with a big no. I have added: “It has taken over a year, but I finally get it.” And the second statement: “Do not make plans with determination and resolution because the #BiologicalMechanism will spend the night laughing hysterically as it creates pain and incapacitation and not one but both hands and arms. do as much of what needs doing whenever you can because if you put it off, you’re fucked. #RheumatoidArthritis #SuchFun”
And when I say such fun, I mean in the Miranda Hart kind of way, as in sarcastic

A little cartoon body doing a dance and responding to the question about whether it’s going to behave today with a big no. I have added: “It has taken over a year, but I finally get it.” And the second statement: “Do not make plans with determination and resolution because the #BiologicalMechanism will spend the night laughing hysterically as it creates pain and incapacitation and not one but both hands and arms. do as much of what needs doing whenever you can because if you put it off, you’re fucked. #RheumatoidArthritis #SuchFun” And when I say such fun, I mean in the Miranda Hart kind of way, as in sarcastic

String of expletives and a bollocks and bugger. My right hand was sore yesterday but it was the fatigue that stopped me doing what needed to be doing. Now I have the fatigue and both hands are in pain. Another wasted day ahead. #RheumatoidArthritis & #LondCOVID absolutely sucks!!

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today in #LondCovid #meCFS, i started an anecdote and ended up doing the Super Stripped Down version cuz i realized i didn't have the Energy for the Full Version with all the flourishes

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Most probably we would have had a handful of treatments for #LondCovid #MECFS by the time the pandemic arrived …

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✨Mega thread on Long COVID, MCAS & PoTS✨

A great thread full of resources. See @broadwaybabyto.bsky.social's post below 👇
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#LondCovid
#MCAS
#PoTS
#Covid
#OccupationalTherapy
#Dysautonomia
#Fatigue

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Hey #YallMasking folx. Pls share. I have #LondCovid but holding virtual circles for covid-conscious women nourishes me as much as the women who join me. Live Indigenous music & mindfulness practices. 15% off ends today. Apply by midnight EST with code ONEOFUS15. medicinesongwoman.com/putp13moonpr...

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Consortium Project Explorer - PolyBio Research Foundation

excellent interactive explorer about the immune damaging diseases #mecfs and #londcovid, by the PolyBio research initiative
polybio.org/consortium-p...

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I've been thinking about this all week. Just what we didn't need at this point in time in the development of science in #IACCs #MEcfs #LondCovid #ChronicLyme I hope we have enough established starting points for researchers and NGOs to carry on these next 4 years.

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