😷 #tdgr damit wir an Prävention denken und uns wirklich als antifaschistisch erweisen.
Wir dürfen keine Menschen ausgrenzen!
Jeder kann vulnerabel sein.
#MECFS #LongCovid
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Hashtag
#LongCOvid
Advertisement · 728 × 90
Schulmedizinische Medikamente, Homöopathie, und eine kämpferische Haltung, dann wirds auch wieder mit dem #longcovid. 🤦🏻♂️
Lieber @weddingweiser.de , schreibt doch bitte über den Wedding, und nicht von Dingen, von denen ihr keine Ahnung habt.
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A meme that says: Sigh. I lost my spoons in this darn brain fog!
Currently lost on the moors.
#longcovid #chronicfatigueME
#life ##fridayfeels
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😷 #tdgr damit wir an Prävention denken und uns wirklich als antifaschistisch erweisen.
Wir dürfen keine Menschen ausgrenzen!
Jeder kann vulnerabel sein.
#MECFS #LongCovid
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Yesterday I went to a dental appointment a day early (at the right time); it was the 2nd time I've done this in the last couple of years.
I was puzzled, until I realised that I'd lost my place on my pill organizer, & was a day ahead.
That's #LongCOVID. This stuff just hsppens, all the time -
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Scientifists found the lymphatic drainage in the human brain! May be #thePerrinTechnique is not a hoax, after all.
share.google/qeiHTxuSax3N...
#mecfs #longcovid
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They're dismissing real suffering with platitudes! 😠 Quick fixes vs. deep understanding of chronic, debilitating #LongCOVID – who's truly listening?
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When people that claim to you #LongCOVID #MECFS is just deconditioning, don't tell them you could deadlift more than them for reps before you got sick. Don't tell them how much you use to run. Don't enthrall them with your previous prowess.
Treat them how you would treat a religious person in 2026
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“If you live with #EDS #ChronicPain #autoimmune disease #longCOVID or any illness with flares, crashes or nervous system chaos—traditional goal-setting doesn’t [work]. Many #ChronicallyIll people struggle…because: We’re taught to override our bodies… Rest triggers guilt.” https://buff.ly/x7iqLEC
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The last week has been hard. I'm coming up on three years of disability from long covid. I have been getting worse the entire time. My kiddo is having a particularly hard time dealing with it, and I think we're both coming to grips with the fact I'm not getting better.
#LongCOVID #COVID #MECFS #CFS
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Long COVID disability burden in US adults — Bonuck et al "Long COVID received 14% of its disability commensurate funding: $106 million vs. $739.8 million. ME/CFS is the most under-funded condition, receiving <1% of its YLD proportionate funding." "Apart from clinical research, addressing Long COVID’s disability burden will require its full recognition as a disability (not just qualification), alongside public health awareness and provider education."
Long COVID disability burden in US adults
www.nature.com/articles/s43...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC
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The Effect of Fluvoxamine and Metformin for Fatigue in Patients With Long COVID — Gilmar Reis et al "Fluvoxamine showed sustained benefit across all time points, with effect estimates ranging from 0.06 to 0.10" "metformin did not show a consistent or sustained therapeutic effect on fatigue"
The Effect of Fluvoxamine and Metformin for Fatigue in Patients With Long COVID
www.acpjournals.org/doi/10.7326/...
Critical discussion:
www.s4me.info/threads/the-...
Screenshot from latest Science for ME weekly update
#LongCovid
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The results of the International #ME/CFS Conference 2025 were published in the journal Autoimmunity Reviews. 👉 New findings on disease mechanisms & therapies at #MECFS & #LongCovid
@mecfsresearch.bsky.social
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The University of Michigan has been measuring consumer sentiment since 1952. We just got the first Iran-afflicted measure for April, and it's at the lowest level ever recorded.
Why?
#iran
#gasprices
#COVID
#LongCovid
#inflation
Notice how consumer sentiment falls while #Trump is President
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![Personalized Exercise Training Modulates Red Blood Cell Rheology and Morphology in Long COVID — Anna-Lena Krüger et al
"15 [of 170] completed all phases and formed a predefined finisher subgroup" "Finishers exhibited significantly lower aggregation index values and longer aggregation half-times at initial compared with the total cohort" "Finishers also exhibited a more favorable functional status at the baseline"](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreiaen77nupqgpebcoa6eqa4xoryw6a5vitdydcknlahyizjplfurri)
Personalized Exercise Training Modulates Red Blood Cell Rheology and Morphology in Long COVID — Anna-Lena Krüger et al "15 [of 170] completed all phases and formed a predefined finisher subgroup" "Finishers exhibited significantly lower aggregation index values and longer aggregation half-times at initial compared with the total cohort" "Finishers also exhibited a more favorable functional status at the baseline"
From Germany
Personalized Exercise Training Modulates Red Blood Cell Rheology and Morphology in Long COVID
www.mdpi.com/1422-0067/27...
Critical discussion:
www.s4me.info/threads/pers...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC
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CIDRAP article headline reads: “Long COVID tied to higher risk of heart disease, even after mild infection.” Written by Laine Bergeson, published today at 5:09 a.m., under the topic COVID-19. Below, a photo shows a middle-aged woman with short blonde hair wearing a grey sweater, standing indoors against a light background. She has both hands pressed to her chest and looks downward with a concerned or uncomfortable expression, suggesting chest pain or heart-related symptoms. The image represents increased cardiovascular risks linked to long COVID.
Long COVID is linked to higher heart disease risk—even after mild infection. Risks include arrhythmias, heart failure and coronary disease. Women are more affected, showing higher rates of heart problems.
#LongCOVID #COVIDisNotOVER
Source: www.cidrap.umn.edu/covid-19/lon...
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Cynical take: It will be interesting to see whether research for #longcovid treatment ramps up, given that the US are looking at drafting people into the army
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Person I know: “Talking about Covid burned all your bridges”.
Me: “That’s ok I’m an excellent swimmer”
We can’t quit on this, if we do children will pay the price.
All of our leaders quit on them, I won’t.
It’s just not an option.
#ConnectTheDots #Covid #MaskUp #LongCovid #LongCovidKids
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Testing a Personalised Dysautonomia Management Protocol in Patients with Orthostatic Intolerance and a Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or Long COVID — Julia Barr et al "Among those with ME/CFS (n = 11), four had a consistent PoTS profile across assessments, with others alternating between PoTS and OH (n = 4) or PoTS and borderline readings (n = 3). In LC (n = 5), three showed alternating among PoTS, OH, and borderline profiles"
UK research
Testing a Personalised Dysautonomia Management Protocol in Patients with Orthostatic Intolerance and a Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or Long COVID
www.mdpi.com/2077-0383/15...
Screenshot from Science for ME weekly update
#MEcfs #LongCovid #POTS
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Unscharfe Begriffe wie
„Fatigue“ oder
„Lebensqualität“
erfassen bei #LongCovid oder #MECFS vor allem subjektive Befindlichkeiten.
Diese können durch begleitende Psychotherapie durchaus verbessert werden-
ohne dass dadurch die körperliche Krankheit selbst beeinflusst wird.
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Screenshot eines DocCheck-Artikels. Blau markiert ist ein Zitat von Prof. Martin Walter. Darin heißt es, Psychotherapie sei bei psychischen Komorbiditäten indiziert und solle auch Betroffenen ohne Komorbiditäten angeboten werden – zur Unterstützung der Krankheitsverarbeitung oder zur Verbesserung der Fatigue-Symptome.
Screenshot eines DocCheck-Artikels. Blau markiert ist die Aussage, eine einseitige Zuschreibung der Erkrankung auf nur psychische oder nur körperliche Ursachen sei nicht evidenzbasiert. Stattdessen werde von einem Wechselspiel körperlicher und psychosozialer Prozesse bei Entstehung und Fortbestehen der Erkrankung ausgegangen.
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Nach dem psychiatrischen Konsensuspapier folgt eine Ausweitung des Anspruchs der Psychiatrie: Im @docchecknews.bsky.social
Artikel zu #LongCOVID #MECFS wird eine generelle Zuständigkeit der Psychiatrie formuliert:
Psychotherapie für alle,
auch ohne Komorbidität.
www.doccheck.com/de/detail/ar...
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A #LongCovid diagnosis is associated with a higher risk of #HeartDisease. Folks, get your #COVID #vaccine!!! www.cidrap.umn.edu/covid-19/long-covid-tied...
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I believe this is why Alice was such a remarkable activist and organizer. She welcomed #LongCovid community while many others were very unsure we'd ever appreciate things like Disability Justice, and used DJ to bring us to our best moment. Genius! /8
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It was without a doubt, in my mind, the most powerful #LongCovid advocacy has been—& it was the result of not going alone, but using everyone's collective power to raise hell. It's self-evident & obvious why, but it's... very hard, & seems to be a rare occasion in this space. /5
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When I first met Alice, we immediately talked a lot about about the silos between the disability, #LongCovid & COVID-cautious communities—I shared how I felt there was hesitancy between these communities thinking they couldn't benefit from one another, & rarely worked together. /2
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Last month I had the galactic honor of a lifetime to share remarks at Alice Wong's Celebration of Life. Today @thesicktimes.org published an extended version—which share how @sfdirewolf.bsky.social wielded Disability Justice to deliver #LongCovid advocacy's best moment (yet). /1
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Photo of a collection of different pills Re-analysis: 200 treatments by 4000 Long Covid/ME patients I ranked 200+ treatments by effect scores and got a new Top 5 In 2023, a survey was run among 3,925 ME/CFS and Long Covid patients called TREATME. It asked patients which treatments they have tried and how they responded to it. It is by far the biggest survey of its kind. I am really grateful to Martha Eckey, a PharmD and patient herself, for collecting the data and to the Open Medicine Foundation for having helped her to analyze and publish it. Read more here>>
Re-analysis: 200 treatments by 4000 Long Covid/ME patients
viralpersistence.substack.com/p/re-analyzi...
Image is from the AMMES April 2026 newsletter
#MEcfs #LongCovid #PwME #ME #MyalgicE
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I believe this is why Alice was such a remarkable activist and organizer. She welcomed #LongCovid community while many others were very unsure we'd ever appreciate things like Disability Justice, and used DJ to bring us to our best moment. Genius! /8
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Strangely Optimistic on @punchuppod.bsky.social
www.youtube.com/watch?v=gVSZ...
Watch Movie:
👉 www.youtube.com/watch?v=aaVm...
👉 fb.watch/Gj_jvwH4Ga/
#LongCOVID is a disability!
@nancyinmke.bsky.social
@michael-hoerger.bsky.social
@lcawarenessint.bsky.social
@longcovidaragon.bsky.social
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