#LongCovidRuinsLives

We will bust these common myths and these Myth-busting assets will be shared across our social media throughout March for #LongCovidAwarenessMonth
Please share as widely as possible, we need to get the correct messaging out there. #LongCovidRuinsLives

#LongCOVIDRuinsLives

Please read Darren's thread below ⬇️ We should do everything in our power to stop it happening to anyone else. We feel a full, free booster vaccine programme and to convince people that covid isn't over. Please sign! Please share! #LongCovidRuinsLives petition.parliament.uk/petitions/70...

Woman wearing glasses and a dark coloured top sat behind a desk with two microphones in front of her. Subtitles read “about Long Covid to be able to give the right messaging and I”.

🚨Prof. Susan Hopkins (Chief Medical Advisor at the UK Health Security Agency) at #CovidInquiry:

“We don’t understand enough about #LongCovid to be able to give the right messaging”

‼️‼️‼️

Prof. Hopkins - I think we need a chat!!!

#CovidIsNotOver
#LongCovidRuinsLives

Noah Lyles: US sprinter diagnosed with COVID leaves Paris Olympics track in wheelchair after 200m final Noah Lyles - who tested positive for COVID - had to be taken off the track in a wheelchair after coming third in the men's 200m final.

Because that’s what happens when you have a cold, right?
#COVID19
#CovidIsNotOver
#LongCovid
#LongCovidRuinsLives

news.sky.com/story/noah-l...

Three woman outside a building, two standing (one wearing a Long Covid Support top) and one (also wearing a Long Covid Support top) in a motorised wheelchair. There is a sign next to them saying UK Covid-19 Inquiry Hearing Centre. The two women standing are wearing face masks.

📣Today is the Module 3 Prelim. Hearing at the UK #CovidInquiry.

#LongCovidGroups are again working together as Core Participants.

From our charity our amazing Founding Trustee @joda.bsky.social and incredible charity Members Claire Hastie and Maddy are attending!
#LongCovid
#LongCovidRuinsLives

Three woman seated, all wearing face masks.

Long Covid Support Founding Trustee Dr. Margaret O’Hara at the NHS National #LongCovid Conference met up with Ondine Sherwood and Sarah Barley-McMullen from @longcovidsos.bsky.social. The patient voice is strong!

#StrongerTogether
#LongCovidRuinsLives

Slide with two columns headed ‘Proposed Mechanism’ and ‘Potential Therapeutics’. 1. Axis of persistent virus - innate/adaptive immune activation - impaired tryptophan uptake: SARS-CoV-2 vaccines; antivirals, neutralising monoclonal antibodies (incl next-generation broad cross-reactivity 2. Reactivation of EBV (or other endogenous herpesviruses): EBV vaccine (as a therapeutic vaccine); ganciclovir 3. Immune subset changes, polarization, exhaustion, including mast cell activation: Steroids; antihistamines; anti-cytokine modulation; immune modulators; lessons from cancer immunotherapy 4. Autoimmunity: IVIG; plasmapheresis; steroids; immunosuppression; specific monoclonals 5. Dysbiosis: Faecal transplantation; probiotics; SCFA supplements such as butyrate 6. Hypercoagulation, microclots: Anticoagulation; apharesis

Man standing on a stage behind a lectern with microphone

Air quality monitor showing 21.4C 811 CO2ppm with a bar in the green section of a colour scale of green, yellow and red

Long Covid Support Trustee Prof Danny Altmann talking at NHS National #LongCovid Conference, calling for implementation of knowledge on biomarkers and mechanisms, and asking:

“Why aren’t we doing more treatment trials?”

PS Air quality good!

#TreatLongCovid
#LongCovidRuinsLives

Woman wearing glasses, a mask and a Long Covid Support top say on a train.

One of our Founding Members, Dr. Jo House on her way to the NHS National Long Covid Conference in Birmingham today to help ensure the patient voice is heard loud and clear!

#LongCovid
#CovidIsNotOver
#LongCovidRuinsLives

Poster with three quotes: “The burden of disease and disability from Long Covid is on par with the burden of cancer and heart disease", "How do we prevent Long Covid? The best way is to prevent Covid in the first place", and "There is no Long Covid without Covid". The name Dr Ziyad Al-Aly is below and the poster also contains the Long Covid Support logo and website address: www.longcovid.org

Words from Long Covid Support Advisor Dr Ziyad Al-Aly yesterday at the U.S. Senate #HELPLongCovid hearing:

“The burden of disease and disability from Long Covid is on par with the burden of cancer and heart disease"

#LongCovid
#ThisIsLongCovid
#LongCovidRuinsLives
#ItCouldHappenToYou

Why it’s time to wear face masks again After a dramatic spike in flu and Covid cases, Spain has reintroduced the mandatory wearing of face coverings in its hospitals. Should we now do the same – and perhaps go even further?

“Even if mask-wearing, say, can save a single person from #LongCovid per hospital per year, it is well worth everyone doing their bit”

#LongCovidRuinsLives
#ItCouldHappenToYou

www.independent.co.uk/voices/mask-...

Getting COVID-19 Multiple Times Is Risky for Your Health A new study investigates the less obvious tolls that COVID-19 take on the body

Piece on #COVID19 reinfection in Time, including comments from Long Covid Support Advisor Dr. Ziyad Al-Aly:

“I wish we lived in a world where getting repeat infections doesn’t matter, but the reality is that‘s not the case."

#LongCovid
#LongCovidRuinsLives
#CureLongCovid

time.com/6232103/covi...

A letter stating: “Thank you for your referral letter regarding the above gentleman. This was discussed at our MDT meeting on the 02/01/24. We are writing to inform you we are declining the referral. Neuropsychiatry is not commissioned to see clients who are experiencing symptoms associated with Post/Long Covid.”

🚨 We are hearing more and more reports of clinical referrals being rejected if there is mention of #LongCovid, despite people having significant symptoms that need specialist investigation.
Who else has experienced this?
#TreatLongCovid
#LongCovidRuinsLives

NEW: COVID19 variant of interest JN.1 with update for health workers

🚨From the World Health Organization:

“For health workers and health facilities, WHO advises:

-Universal masking in health facilities”

#LongCovid
#LongCovidRuinsLives
#ItCouldHappenToYou

worldhealthorganizationdepartmentofcommunications.cmail20.com/t/d-e-vkkjyu...

Looking at the week ahead at the UK Covid-19 Inquiry.

You can watch it live on YouTube

youtube.com/@UKCovid-19I...

#LongCovidKids #CovidInquiry #LongCovid #GiveUsHope #LongCovidRuinsLives #ListenLearnHope

Thank you for the support.

#GiveUsHope
#ListenLearnHope
#LongCovidKids
#LongCovidRuinsLives

I urge the the UK Covid Enquiry to protect children from #COVID by recommending #CleanAir in all schools.Our children deserve a safe place to learn & play. Heed the evidence provided by @longcovidkids.bsky.social and help us to protect our children. #LongCovidRuinsLives @longcovidadvoc.bsky.social