#HELPLongCovid

#HelpLongCovid #HelpMecfs syndrome @mediapart.fr
nous on aide

We're less than one month out from #LCDC and we have more speaker announcements! We are so thrilled to hear from @DrTamargo @DrMarjorieRobe1 @drseanmullen @aspcorthals @internetuserf12 @chiluvs1 @DYork1979 @WesElyMD @TogetherWeMask and more people with Long Covid! Share if you can! This will be a powerful day of support, inclusion, and pushing for change. Together, we will make the crisis of Long Covid known to our government and public health! More info here: https://linktr.ee/LCDCMarch15

Porting over from Twitter (@LCDCmarch15):
#LongCovid DC, March 15, 2024

#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #CovidIsntOver #DisabilityJustice #PushForChange #pwLC #HELPLongCovid #covidlong #mylcstory #LongCVd #CleanTheAir #WearARespirator

OP: twitter.com/LCDCmarch15/...

Senate hearing highlights Long Covid crisis — but not Covid-19 prevention — while advocacy group... On January 18, the Senate Committee on Health, Education, Labor, & Pensions (HELP) convened a hearing about Long Covid, discussing research priorities and healthcare challenges for the disease. Senato...

I watched last week's #HelpLongCovid #senate hearings. This 👇 is one of the best recaps of that event. 👏👏👏

Senate hearing highlights Long Covid crisis — but not Covid-19 prevention — while advocacy groups bring their demands to DC - The Sick Times
thesicktimes.org/2024/01/23/s...

Second disability accommodation battle of the week: this time a specialist is insisting on seeing me in person, despite no medical need for this. I am unable to leave home. I deserve health care.

#LongCovid #HELPLongCovid

Poster with three quotes: “The burden of disease and disability from Long Covid is on par with the burden of cancer and heart disease", "How do we prevent Long Covid? The best way is to prevent Covid in the first place", and "There is no Long Covid without Covid". The name Dr Ziyad Al-Aly is below and the poster also contains the Long Covid Support logo and website address: www.longcovid.org

Words from Long Covid Support Advisor Dr Ziyad Al-Aly yesterday at the U.S. Senate #HELPLongCovid hearing:

“The burden of disease and disability from Long Covid is on par with the burden of cancer and heart disease"

#LongCovid
#ThisIsLongCovid
#LongCovidRuinsLives
#ItCouldHappenToYou

Great recap of the major moments from today's #HELPLongCovid hearings (US senate) 👇
threadreaderapp.com/thread/17480...

by @thechalis.bsky.social (on Twitter)

Long Covid – Covid Toolbox

If you watched the U.S. Senate hearing on Long Covid today, or read about it, and want more information about Long Covid you can start here: https://covidtoolbox.com/long-covid/

#LongCovid #DemandHELP #HELPLongCovid #LongCovidKids #pwLC

Thanks for sharing. That was brave of you to be scheduled on the same day as the US Senate #HELPLongCovid hearings. ;)

Partial screenshot of the contents of the PDF in this post.

I created a PDF of Dr. Al-Aly's #HELPLongCovid speech in which I used his written testimony to fix the garbled/missing audio. Link to PDF: tiny.cc/LChearingsAl...

Screenshot showing that the Senate hearing page now lists testimony from ALL panel participants.

The #HELPLongCovid senate hearing page now lists testimony from ALL seven panel participants 👇. Happy reading.

Link: www.help.senate.gov/hearings/add...

"members and supporters of Long Covid Moonshot assembled in the Senate, showing out in force in their coordinated tees and everyone in respirators!!" Source: https://twitter.com/desertdracula/status/1748048937192456198

If you're not on Twitter/X, you missed a lot of live tweets from today's #HELPLongCovid senate hearings... here's a photo worth porting over to bsky:

Source: twitter.com/desertdracul...

Direct link to the PDF of @zalaly's #HELPLongCovid senate testimony:

www.help.senate.gov/download/al-...

#LongCovid

BTW, here's a link to the same on YouTube (via PBS news hour):
m.youtube.com/watch?v=jmYw...

Note1: there's an echo for the first few mins on the YT version.
Note2: Dr. Al-Aly starts around 1h40 but his audio has issues (on both videos).

#HELPLongCovid

Person holding a sign that says "MASKS SAVE LIVES" at Senate Long COVID hearing

A protestor just held up a sign saying "MASKS SAVE LIVES" in front of unmasked Senators at today's Long COVID hearing! #HELPLongCovid

Still On the Margins: Long COVID Patients of Color Still On the Margins: Long COVID Patients of Color   Angela Meriquez Vázquez, MSW Before getting COVID-19 here in Los Angeles in March 2020, I was a runner for nearly two decades. In fact, the…

Long COVID patient & activist Angela Meriquez Vázquez will testify. She wrote this piece on Long COVID Patients of Color for @sfdirewolf.bsky.social's Disability Visibility website. Check it out.
#IllnessPolitics #LongCOVID #HELPLongCOVID
disabilityvisibilityproject.com/2023/12/02/s...

Addressing Long COVID: Advancing Research and Improving Patient Care | The U.S. Senate Committee on ... The U.S. Senate Committee on Health, Education, Labor & Pensions

Happening this Thursday, Jan 18 at 10 am in the US Senate: Addressing Long COVID: Advancing Research & Improving Patient Care.
#IllnessPolitics #LongCOVID #HELPLongCOVID
www.help.senate.gov/hearings/add...

Update: if folks "want to donate to help other disabled & chronically ill advocates attend & organize" the Jan 18 Senate #HELPLongCOVID hearing, here's info & link to GoFundMe:
threadreaderapp.com/thread/17462...

Update: if folks "want to donate to help other disabled & chronically ill advocates attend & organize" the Jan 18 Senate #HELPLongCOVID hearing, here's info & link to GoFundMe:
threadreaderapp.com/thread/17462...