#ThisIsLongCovid

Can we flood the region’s health department with #ThisIsLongCovid photos and videos?

Here’s what spike protein persistence in the skull-meninges-brain axis looks like. I’ve been working on this since my first #NeuroCovid Jan 2022
#ThisIsLongCovid

“Comparable to people with Parkinson’s disease.”
Along with MS, I’ve heard it from speech & physical therapists, neurologist, psychotherapist, and the list goes on.
The only way I can attend events in a zero gravity chair. I’m cannot sit upright in a wheelchair for long enough.
#ThisisLongCovid

Black background with our Long Covid Support logo and website address www.longcovid.org at the top. There are five photographs of people across the centre, three women and two men, four on oxygen and one of the women in a wheelchair. Below the photos in white is text saying hashtag This Is Long Covid. Text across the bottom reads Long Covid Support is a registered charity in England and Wales 1198938.

Whilst some recover from #Covid19, many develop ongoing debilitating, life-altering symptoms. Research on nearly 4000 p/w #LongCovid found functional impairment to be worse than stroke patients & comparable to p/w Parkinson’s disease.

#ThisIsLongCovid

bmjopen.bmj.com/content/13/6...

Word cloud of words including Life Changing, Exhausting, Pain, Debilitating, Invisible, Loss, Unrelenting, Abandoned, Destroyed, Scary, Frustrating, Brain Fog, Isolating, Disbelieved, Gaslighting, Anxious, Scary, Changed, Hopelessness, Unpredictable, Harmful, Battle, Damaging, Unheard and Gruelling. Next to it is # This Is Long Covid. There is the Long Covid Support logo, website address www.longcovid.org and email address info@longcovid.org

Our peer support group on Facebook has nearly 65k members. We asked for words to describe #LongCovid. Commonest words included:

🔴 Life Changing
🔴 Exhausting
🔴 Pain
🔴 Debilitating
🔴 Invisible
🔴 Loss
🔴 Unrelenting
🔴 Abandoned
🔴 Destroyed

#ThisIsLongCovid
#CureLongCovid

Word cloud made up of many different words in different colours that people used to describe their Long Covid including: Life changing, Frustrating, Exhausting, Scary, Lonely, Isolating, Misunderstood, Brain Fog, Grief, Unrelenting, Fatigue, Disbelieved, Hopelessness, Gruelling , Draining, Unstable, Horrendous, Battle, Helpless and Forgotten. Next to it are the words: # This Is Long Covid. Across the bottom of the image is Long Support’s logo, website address: www.longcovid.org and email address: info@longcovid.org.

💔Our word cloud made from words p/w #LongCovid used to describe their condition includes:

⚠️Life changing
⚠️Exhausting
⚠️Pain
⚠️Debilitating
⚠️Unrelenting
⚠️Destroyed
⚠️Devastating

#ThisIsLongCovid
#ItCouldHappenToYou
#CureLongCovid

A word cloud of words from people with Long Covid describing the condition including, Life Changing, Exhausting, Lonely, Debilitating, Pain, Unrelenting, Devastating. Next to it is the hashtag This Is Long Covid. Across the bottom is the website www.longcovid.org, Long Covid Support’s logo and email address info@longcovid.org.

In the words of people experiencing this brutal condition, #LongCovid is…

🚨Life Changing
🚨Exhausting
🚨Lonely
🚨Debilitating
🚨Pain
🚨Unrelenting
🚨Devastating

#ThisIsLongCovid

Poster with three quotes: “The burden of disease and disability from Long Covid is on par with the burden of cancer and heart disease", "How do we prevent Long Covid? The best way is to prevent Covid in the first place", and "There is no Long Covid without Covid". The name Dr Ziyad Al-Aly is below and the poster also contains the Long Covid Support logo and website address: www.longcovid.org

Words from Long Covid Support Advisor Dr Ziyad Al-Aly yesterday at the U.S. Senate #HELPLongCovid hearing:

“The burden of disease and disability from Long Covid is on par with the burden of cancer and heart disease"

#LongCovid
#ThisIsLongCovid
#LongCovidRuinsLives
#ItCouldHappenToYou

🎥 I was getting so fed up seeing such unrealistic images used to represent those of us with #LongCovid so I created 2 videos, 1 of which I presented this week to sites involved in an upcoming study to hammer home why research to #TreatLongCovid is so important.

#ThisIsLongCovid

📣🎥 Many stock images used in the media & on websites to represent p/w #LongCovid are far from realistic.

Here’s our video presented at a #LongCovid study training session to explain why research is vital.

Thank you to everyone who shared their experiences! 💖

#ThisIsLongCovid

youtu.be/QqTiPXMvCDU