Bill Text: IL SR0667 | 2025-2026 | 104th General Assembly | Introduced Illinois Senate Resolution 667 IL State Legislature page for SR0667 Summary Sponsors Texts Votes Research Comments Track Introduced Bill Title: Declares May 12, 2026 as Myalgic Encephalomyelitis Awareness Day. Encourages increased public education and awareness efforts regarding Myalgic Encephalomyelitis, support for individuals and families affected by the disease, and continued attention to research and health care initiatives aimed at improving diagnosis, treatment, and quality of life for those living with ME. Sponsorship: Partisan Bill (Democrat 1) Status: (Introduced) 2026-04-14 - Placed on Calendar Order of Secretary's Desk Resolutions April 15, 2026 [SR0667 Detail] Download: Illinois-2025-SR0667-Introduced.html

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State of Illinois declares May 12, 2026 as ME Awareness Day.

#MyalgicEncephalomyelitis #ME #MyalgicE

Absurdly unjust that the millions of Americans w/ #MyalgicEncephalomyelitis and #LongCovid are among the sickest people in the nation but have to keep fighting for equitable medical care.

Tom Kindlon's ME CFS & related page: News, Research and more is feeling happy. Published by Tom Kindlon-pwme · r · I’ve been running the Irish ME/CFS Association with my mum from home for just short of 30 years. We built up a very large amount of files connected with this e.g. to try to deal with the wide variety of enquiries we had to try to respond to; and then print outs of lots of research papers I had read and annotated. This led to a very crowded house (well my part of it anyway)! In recent years, I mainly search my PC or do internet searches when dealing with enquiries. I also have reduced my workload so have some spare time/energy. So I have slowly been going through the files to see what I could throw out. I’m pleased to report I’ve been making good progress on this. Here is one batch of lever arch files I got rid of this week. I also got rid of approximately 35 more last year . More work to be done which will take a good while due to pacing but glad of the progress so far.

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Image has a longer description of the story of the stack of lever arch files.

#MyalgicEncephalomyelitis #CFS

Trial By Error: An Essay on Living with Severe ME | Virology Blog By David Tuller, DrPH I’ve been totally out of commission for three weeks while recovering from bruised ribs sustained in a fall. I have devoted most of my ...

A well-written account of someone with #SevereME and some of the issues she has to deal with. #pwME #MyalgicEncephalomyelitis

virology.ws/2026/01/27/t...

Autonom-e - Apps on Google Play Your partner in health management

For more details and an FAQ please visit the MEA website: https://meassociation.org.uk/mea-cat/

IOS: https://apps.apple.com/us/app/autonom-e/id6751941330 [apps.apple.com]
 
ANDROID: play.google.com/store/apps/details [play.google.com] 

#MyalgicEncephalomyelitis

IMAGE DESCRIPTION: Photo of Dr Charles Shepherd with the following text underneath. "What is Post-Exertional Malaise and how can it best be managed? Please click the link to read the answer in the Medical Matters database."

Medical Matters – Post-Exertional Malaise (PEM)

Q: What is Post-Exertional Malaise and how can it best be managed?
A: meassociation.org.uk/medical-matters/items/sy...

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #PostExertionalMalaise #PEM

Frontiers in Physiology: Cardiopulmonary Exercise Test Results Do Not Change Over Two Sequential Days in Patients with ME/CFS - The ME Association A new research paper, published in Frontiers of Physiology, seems […]

Frontiers in Physiology: Cardiopulmonary Exercise Test Results Do Not Change Over Two Sequential Days in Patients with ME/CFS

Dr Charles Shepherd, MEA Hon. Medical Advisor, provides comment on the blog: https://meassociation.org.uk/ioyv

#MECFS #pwME #PEM #MyalgicEncephalomyelitis #Research

More specific link:
www.youtube.com/playlist?lis...

#MyalgicEncephalomyelitis

a lightning bolt strikes a cloud in the sky Alt: a lightning bolt strikes a cloud in the sky

Stealing life!
It’s astounding how even looking up into the sky to watch an oncoming storm is painful & non sustainable. #Chronicillness #MyalgicEncephalomyelitis

two women are sitting next to each other laughing and pointing at something . Alt: Rose and Blanche in The Golden Girls are sitting next to each other on the couch and laughing at someone. (Yay!)

I've had #MyalgicEncephalomyelitis for 35 yrs & cancer for nine.

I've learned that the people who insist you'd get well if you just tried harder are the same ones who freak the hell out when they get a cold.

They're TERRIFIED by the randomness of it & need to believe they're magically safe.

For 4 yrs, I lived down the hall from a toxic positivity ableist.

Her apt was by the elevator, so I had to see her.

Tried to befriend her & explain *why* I can't do certain things.

She never, ever got it.

In my new place, my neighbors are cool & I'm SO much happier.

#MyalgicEncephalomyelitis

I feel this keenly💔
My digestion is shutting down & I'm in my 40s. I haven't been able to dance or bike since my 30s. I haven't been able to run or hike since my 20s.
donialilly.com/millions-mis...

#disability #chronicillness #MyalgicEncephalomyelitis
#raredisease #chronicpain #smallfiberneuropathy

IMAGE DESCRIPTION: A photo of a person handing another person the MEA's ME/CFS medical alert card. Wording reads: ME/CFS Alert Card. Plastic medical alert card. Only £1 with free UK shipping. MEA logo.

A durable, plastic medical alert card explaining ME/CFS and its most common symptoms - with space on the back to write an emergency contact. 

Only £1 with free UK shipping! https://meassociation.org.uk/product/mea-alert-card/ 

#pwME #MECFS #MyalgicEncephalomyelitis #MyalgicEncephalopathy

Frail and...Facilitator?

Will have to work on what my personal "f" word is, but facilitator sums up being a state chapter.

#MyalgicEncephalomyelitis is severe. Its disabling. It's #medicallyfrail.

Beautifully put.

And is there any worse anguish than knowing and witnessing that fun, life, adventures are being had, but unable to also have them yourself because of a body that's broken...

#MyalgicEncephalomyelitis #pwME #MECFS

I had one of those darker days today where I felt like throwing in that very ragged towel. But, as you say, somehow we manage to carry on, despite (in spite of?) it all...

#MyalgicEncephalomyelitis #pwME #MECFS

So help us make it LOUD and CLEAR: People with ME and Long COVID are medically frail.

Join us this May for #MillionsMissing.

#pwME #MyalgicEncephalomyelitis #LongCovid

I forget just how much ADHD meds not only help me focus easier, but be functional...
I'm out for a few days. It's only day one and I can't even get out of bed without help. #MyalgicEncephalomyelitis crash as well as ADHD & Autistic burnout has started.

IDK how I sustained myself before meds.. JFC

... contribuyendo de manera decisiva a impulsar la inclusión de esta enfermedad en los sistemas sanitarios y en los futuros modelos de financiación en toda Europa.
#MyalgicEncephalomyelitis #PwME #Salud #DiaMundialDeLaSalud
europeanmealliance.org/news-Q22026-...

Following a series of successful social media posts last year, we have developed an A to Z poster showing the alphabet of common symptoms, experiences, and comorbidities of ME/CFS - showing that it's a lot more than just feeling 'tired'.

#pwME #MECFS #MyalgicEncephalomyelitis #MyalgicEncephalopathy

Meet one man and his dog – our Braveheart team! - The ME Association It's Braveheart time in Scotland – with 34-year-old Robert Grainger […]

Had a grand chat with Robert - a staunch Scottish Nationalist. This event reflects his character so well! |
@meassociation.org.uk website | 7 April 2026:
meassociation.org.uk/2026/04/meet...
#Kiltwalk #SirTomHunter #Glasgow #Alloa #StirlingUniversity #accountancy #mecfs #MyalgicEncephalomyelitis

When I was healthy, almost everyday I walked six miles and did 350 sit-ups and 150 pushups.

Aug 17 1991, I exhibited flu-like symptoms.

By Sept 9, I was in a wheelchair.

I was 24.

I'm 59 now.

You never really get used to this.

I still want to work out again.

#MyalgicEncephalomyelitis

I tried my best in spring2020 to warn ppl trying to jump back into exercising but couldn’t understand why they were “healthy” but could not run anymore. Their lists of ailments read like a copy/paste of #MyalgicEncephalomyelitis symptoms & I’d say “You DON’T want to end up like me!”
#LC #pwME #viral

Excellent spot! Thanks @lucibee.bsky.social
Puts into a nutshell all that I learned from #pwME while working for 24 years at the @meassociation.org.uk, who in my view always were excellent advocates for the cause, despite a few blips along the way.
#me/cfs #MyalgicEncephalomyelitis #LongCovid

ME Advocates Ireland - advice for Occupational Therapists ME advocates in Ireland have created and shared advice and tips for Occupational Therapists working with people who have ME/CFS. We link direct to their website. (Thank you to Tom Kindlon for flagging this guide!) Guidance for Occupational Therapists

ME Advocates Ireland - advice for Occupational Therapists

meadvocatesireland.blogspot.com/2026/01/occu...

Screenshot from latest Chronic Living Therapy @chronicliving123.bsky.social newsletter

#MyalgicEncephalomyelitis #PwME @lammasleaves.bsky.social

Muscle Fatigability in Myalgic Encephalomyelitis (ME) “Diagnosis should not be made without it”

Muscle Fatigability in Myalgic Encephalomyelitis by @colleensteckel.bsky.social
#MyalgicEncephalomyelitis #pwME

Börn með ME eða langvinn einkenni Covid þurfa oft að takast á við daglegt líf af lítilli orku, sem hefur áhrif á lífið heima, í skóla og í samfélaginu.

Hvar eru teymin sem eiga að grípa okkur?

#LifidMedME #Vitundarvakning #MyalgicEncephalomyelitis #LangvinntCovid

The tens of millions of us w/ #MyalgicEncephalomyelitis & now the tens of millions more w/ #LongCovid can't launch an ACT UP-style protest--& I wish we could--b/c most of us are far too ill to get there.

So here's what you need to know about this year's #MillionsMissing theme, Frail and Furious:

Things I’m Missing Out On (A Few Words About Myalgic Encephalomyelitis And Loss) | PhysiOdyssey: Exploring Human Physiology

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How to Cite:

Things I’m Missing Out On (A Few Words About Myalgic Encephalomyelitis And Loss). (2026). PhysiOdyssey: Exploring Human Physiology, 2(1), 34-36. doi.org/10.36399/t61...

#MyalgicEncephalomyelitis #ME

2026 #MillionsMissing Take Action Toolkit #MillionsMissing 2026 Toolkit Governments and healthcare systems around the world fail to classify myalgic encephalomyelitis (ME) as a serious, complex medical condition, leading to significant negle...

We will have coordinated online actions for you to take to help us get our message out! Share YOUR story! See all the details in our toolkit: docs.google.com/document/d/1...

#pwME #MECFS #MyalgicEncephalomyelitis #LongCovid