🎉 We’re celebrating the news that the Rare Cancers Bill will soon become law and the transformative potential this has for the brain tumour community. @braintumourcharity.bsky.social
#RareCancersBill
👉 www.thebraintumourcharity.org/news/policy-... #BrainTumourAwarenessMonth #BTAM
Graphic: Friday 26 January in the House of Lords
🕙 Main debate of the #RareCancersBill on the agenda in #HouseOfLords from 10am today. Line by line check of the #TerminallyIllAdultsBill continues afterwards.
➡️ Find out more and watch online https://orlo.uk/tAt94
Only 16% of people diagnosed with some of the less survivable cancers survive beyond 5 years. The #RareCancersBill is a unique opportunity to tackle this and more. We are pleased to have supported this Bill throughout its journey and will continue to do so as it progresses.
The #RareCancersBill has officially passed its Third Reading in the House of Commons, unamended and with cross-party support! We’re proud to stand alongside @drscottarthurmp.bsky.social & our partners in supporting this vital Bill, which is now on track for its First Reading in the House of Lords.
As mentioned by Gregory Stafford MP, only 16% people diagnosed with some of the less survivable cancers survive beyond 5 years, in comparison to over 55% for more common cancers. The #RareCancersBill is a unique opportunity to improve survival rates.
Big thanks to Gregory Stafford MP for highlighting the importance of the Rare Cancers Bill in improving earlier diagnosis for the less survivable cancers. #RareCancersBill
The Houses of Parliament at Westminster.
We've proudly supported the #RareCancersBill so patients can better access the care and treatments they deserve.
This morning, MPs will decide the future of this legislation 🗳️
Thank you to our community for ensuring bone cancer patients are represented.
#Policy #UntilTheresACure
Text reads: "The #RareCancersBill will: Connect patients to research. A national registry will match rare cancer patients to clinical trials."
Text reads: "The #RareCancersBill will: Enhance orphan drug incentives. Ensure life-saving treatments reach patients."
Text reads: "The #RareCancersBill will: Champion rare cancer research:Appoint a named person in each nation to provide leadership and advice for the delivery of rare cancer research.
Scott Arthur MP brought the #RareCancersBill to Parliament after losing his father-in-law to a rare cancer.
“Everyone knows someone impacted… it’s time we did something about it.”
He stands with families across the UK facing these devastating diseases.
Write to your MP and support the #RareCancersBill.
Call for:
More research Rare cancer champions in all UK nations Better incentives for orphan drugs
Let’s push for better care, faster diagnoses & more hope.
#CancerAwareness #HealthEquity #cholangiocarcinoma #CCA #AMMF
Image of a researcher looking through a microscope. Text reads 'Rare and less survivable cancers deserve recognition. Write to your MP and ask them to vote in favour of the Rare Cancers Bill.'
The #RareCancersBill is moving through UK Parliament—offering hope to those facing rare & less survivable cancers.
🔍Delayed diagnoses
💊Limited treatment options
📉Lower survival rates
Write to your MP. Because rare shouldn’t mean forgotten.
mysociety.org/wehelpyou/wh...
Photo of Dr. Scott Arthur MP with a quote from him "In memory of all those who we have lost to rare cancers, let us work together to find a cure for these horrific diseases". It's time to act. It's time to care. Support the #RareCancersBill.
In 2018, Dr. Scott Arthur MP lost his father-in-law to a brain tumour just 6 months after diagnosis.
Now he’s backing the #RareCancersBill to:
🔬Boost research
💊Improve drug access
🧪Expand trials
Let’s support it. Rare shouldn’t mean forgotten.
MP Dr Scott Arthur with Neil Carragher in a lab
We were delighted to welcome @drscottarthurmp.bsky.social to IGC today where he met Neil Carragher, as well as
@nsbenab.bsky.social and Val Brunton, to learn about research into rare cancers as part of his work on the #RareCancersBill: bills.parliament.uk/bills/3779
@cmvm-edinburghuni.bsky.social
Big news last week: @drscottarthurmp.bsky.social
#RareCancersBill passed its second reading! Another crucial step toward better outcomes for the brain tumour community.
#RareCancers #CancerCare #BTAM
Such great news! A huge well done to all involved and particularly @drscottarthurmp.bsky.social for making it happen! 🙌
#RareCancersBill
This was such a powerful outcome for all the patients and families who deserve better. 💪
The UK Government recognised the injustice, and will now support action to correct it.
#RareCancersBill
This was such a powerful outcome for all the patients and families who deserve better. 💪
The UK Government recognised the injustice, and will now support action to correct it.
#RareCancersBill
This was such a powerful outcome for all the patients and families who deserve better. 💪
The UK Government recognised the injustice, and will now support action to correct it.
#RareCancersBill
HUGE NEWS! 🎉 My Rare Cancers Bill made fantastic progress today! I'm incredibly proud of what my office has achieved in less than 8 months.
Today is such a powerful outcome for all the patients and families who deserve better. 💪 #RareCancersBill #Progress #MakingADifference
We celebrate the progression of the Rare Cancers Bill to the next stage. Big thanks to @drscottarthurmp.bsky.social for leading this vital piece of legislation. #RareCancersBill
We are thrilled to see the #RareCancersBill has passed its second reading! This is an encouraging step forward for families fighting cancer, with the bill aiming to promote research and funding into the treatment of rare cancers - including childhood cancers. 💛🎗️
We are grateful to @laurensullivanmp.bsky.social, who we met at our Westminster Reception during #CCAAwarenessMonth, for speaking at this morning’s #RareCancersBill session in the House of Commons. She spoke about #cholangiocarcinoma and the experiences of her constituent, Charlie Shrager.
Big news this afternoon: #RareCancersBill has passed its second reading! Another crucial step toward better outcomes for the brain tumour community.
@drscottarthurmp.bsky.social
#RareCancers #CancerCare #BTAM
So good to see the #RareCancersBill pass its second reading in @houseofcommons.parliament.uk today... Cancer has taken too many family members and dear friends... #FuckYouCancer
bsky.app/profile/brai...
TODAY is the crucial Second Reading of the Rare Cancers Bill, which could be truly transformational for rare & less common cancers by improving clinical trials, creating strategic focus and by reviewing drugs regulations.
Follow here parliamentlive.tv/Commons
#RareCancersBill
The second reading of the Rare Cancers Bill is happening today. We’re supporting this crucial step towards better research, and treatment for those affected by rare cancers. Together, we can drive change. #RareCancersBill
The Rare Cancers Bill gets its second reading by MPs today.
"Life-saving research in rare cancers would be encouraged under a proposed law...."
www.independent.co.uk/news/uk/home...
@braintumourcharity.bsky.social #RareCancersBill #Parliament #TheBrainTumourCharity #BTAM #BTAM2025
Rare cancers, including many less survivable cancers, make up 47% of UK cancer diagnoses but account for 55% of cancer-related deaths. The Rare Cancers Bill presents a unique opportunity to address the chronic underfunding and lack of research into rare cancers. #RareCancersBill
The Rare Cancers Bill is a major milestone! We've joined forces with rare cancer charities to push for this game-changing legislation, bringing hope for better research and treatments. bit.ly/4kHEOfD #RareCancersBill
