Free virtual conference aims to empower sarcoidosis community The Sarcoidosis Research Institute is hosting a free virtual conference on April 25 aimed at empowering members of the sarcoidosis community.

Just what we need! Read on to hear from a few of the speakers about what we're bringing to the "Empowering the Patient Journey: Living Well with Sarcoidosis" table ... and then register for the free virtual event!
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sarcoidosisnews.com/news/free-vi...
#PatientEducation #sarcoidosis #SarcStrong

Kaleidoscope background with photo of me holding a copy of Kaleidoscope Rare Disease Stories. Ribbon above reads SARCOIDOSIS AWARENESS MONTH. Additional text reads "Float Like a Buttahfly," Kerry Wong, Sarcoidosis Warrior, Creator, Author, Editor, Illustrator

For the final day of #SarcoidosisAwarenessMonth ...
I'm the creator, editor, illustrator, and 1 of 7 #SarcoidosisWarriors featured in Kaleidoscope #RareDisease Stories.
Alone, we are #rare. Together, we are strong.
~🦋
#ChronicIllness #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong
a.co/d/54tZnhs

Kaleidoscope background with photo of Kaleidoscope Rare Disease Stories book open to Brad's story, “Living with Neurosarcoidosis.” Ribbon above reads SARCOIDOSIS AWARENESS MONTH

For #SarcoidosisAwarenessMonth, we’re highlighting Brad DeMaagd, one of 7 #SarcoidosisWarriors featured in Kaleidoscope #RareDisease Stories. Alone, we are #rare. Together, we are strong.
Proceeds donated to NORD.
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#ChronicIllness #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong
a.co/d/54tZnhs

Kaleidoscope background with photo of Cheryl holding a copy of Kaleidoscope Rare Disease Stories. Ribbon above reads SARCOIDOSIS AWARENESS MONTH. Additional text reads Cheryl Bradford, Sarcoidosis Warrior, “Almost Broken.”

For #SarcoidosisAwarenessMonth, we’re highlighting Cheryl Bradford, one of 7 #SarcoidosisWarriors featured in Kaleidoscope #RareDisease Stories. Alone, we are #rare. Together, we are strong.
Proceeds donated to NORD.
~🦋
#ChronicIllness #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong
a.co/d/54tZnhs

Kaleidoscope background with photo of Kaleidoscope Rare Disease Stories book open to Fabian Bacchus' story, “From Unknown to Incurable.” Ribbon above reads SARCOIDOSIS AWARENESS MONTH

For #SarcoidosisAwarenessMonth, we’re highlighting Fabian Bacchus, one of 7 #SarcoidosisWarriors featured in Kaleidoscope #RareDisease Stories. Alone, we are #rare. Together, we are strong.
Proceeds donated to NORD.
~🦋
#ChronicIllness #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong
a.co/d/54tZnhs

Kaleidoscope background with photo of Hanna. Ribbon above reads SARCOIDOSIS AWARENESS MONTH. Additional text reads Hanna Curtis, Sarcoidosis Warrior, “Purplicious.”

For #SarcoidosisAwarenessMonth, we’re highlighting Hanna Curtis, one of 7 #SarcoidosisWarriors featured in Kaleidoscope #RareDisease Stories. Alone, we are #rare. Together, we are strong.
Proceeds donated to NORD.
~🦋
#ChronicIllness #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong
a.co/d/54tZnhs

Kaleidoscope background with photo of Kaleidoscope Rare Disease Stories book open to Peter Devonald's story, “Sarcoidosis: Snowflakes, Surviving, and Self-Advocacy.” Ribbon above reads SARCOIDOSIS AWARENESS MONTH

For #SarcoidosisAwarenessMonth, we’re highlighting @pdevonald.bsky.social, one of 7 #SarcoidosisWarriors featured in Kaleidoscope #RareDisease Stories. Alone, we are #rare. Together, we are strong.
Proceeds to NORD.
~🦋
#ChronicIllness #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong
a.co/d/54tZnhs

Kaleidoscope background with photo of Jim holding a copy of Kaleidoscope Rare Disease Stories. Ribbon above reads SARCOIDOSIS AWARENESS MONTH. Additional text reads Jim Kuhn, Sarcoidosis Warrior, “Living in My Box.”

For #SarcoidosisAwarenessMonth, we’re highlighting Jim Kuhn, one of 7 #SarcoidosisWarriors featured in Kaleidoscope #RareDisease Stories
Alone, we are #rare. Together, we are strong
Proceeds donated to NORD
~🦋
#BookSky #ChronicIllness #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong
a.co/d/54tZnhs

kaleidoscope background with bottom cartoon of me holding a copy of Kaleidoscope Rare Disease Stories. Ribbon above reads Sarcoidosis Awareness Month

Kaleidoscope #RareDisease Stories includes 7 writers living with #sarcoidosis AND Foreword by #neurosarcoidosis warrior Karen Duffy Lambros?
You are not alone.
*Proceeds donated to NORD
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#SarcoidosisAwarenessMonth #SarcStrong #BookSky #SpoonieSky #ChronicIllness #rare #ZebraStrong
a.co/d/9h5ftCU

FLaB background with screenshot of Sarcoidosis News Column titled "In sickness and in health: Living and loving with sarcoidosis

When we get married, we vow to take each other "in sickness and in health." With a #ChronicIllness like #sarcoidosis, we really put it to the test.
~🦋
sarcoidosisnews.com/columns/sick...
#SarcoidosisAwarenessMonth #SarcLife #SarcStrong
#disability #RareDisease #SpoonieSky
#marriage #wedding #vows

#SarcoidosisAwarenessMonth #sarcoidosis #SarcStrong
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#SarcoidosisAwarenessMonth #sarcoidosis #SarcStrong
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#SarcoidosisAwarenessMonth #sarcoidosis #SarcStrong
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#SarcoidosisAwarenessMonth #sarcoidosis #SarcStrong
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#SarcoidosisAwarenessMonth #sarcoidosis #SarcStrong
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From symptoms to diagnosis, treatment to acceptance, #sarcoidosis is full of internal conflicts ... but it also brings us all together.
sarcoidosisnews.com/columns/livi...
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#SarcoidosisAwarenessMonth
#ChronicIllness #RareDisease #SarcStrong #SpoonieSky

Spreadsheets and sarcoidosis: Strategies to survive and thrive Columnist Kerry Wong outlines the way her various spreadsheets, calendars, and other tools help her survive and thrive with sarcoidosis.

Managing a #ChronicIllness like #sarcoidosis is a full-time job, and we never get a day off (or a paycheck!). But I've found a few ways to make it a little easier.
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Bionews, Inc. | Sarcoidosis News
#RareDisease #SarcStrong #SpoonieSky #ZebraStrong
sarcoidosisnews.com/columns/spre...

Honoring this year’s Rare Disease Day any way we can Columnist Kerry Wong, who often feels trapped in her body, encourages members of the community to observe Rare Disease Day any way they can.

"I'm a person who wants to do a lot of things trapped in a body that doesn't."
I've seen that quote many times, and it resonates so deeply -- especially now.
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#ChronicIllness #RareDisease #RareDiseaseDay #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong

Promo graphic for upcoming webinar. Features photo of Dr. Baula Barreras and text that reads Wednesday Small Fiber Neuropathy in Sarcoidosis Causes, Symptoms, and Treatment Feb 19th | 8pm EST Life & Breath Foundation

Coming Soon:
#SmallFiberNeuropathy in #Sarcoidosis Webinar
Wednesday, February 19th, 8PM EST
Dr. Paula Barreras, Neurologist & Neuroimmunology Expert
Register at us02web.zoom.us/webinar/register/WN_OpQ6llfLTUm6hZeU3t8BwA
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#LifeAndBreathFoundation #ChronicIllness #SpoonieSky #SarcLife #SarcStrong

FLaB background with photo of large box of pool bottles and rainbow-cooked daily pill organizers arranged in an ATV. Text overlay says "Over the Rainbow/CHRONIC ILLNESS STYLE"

Setting up my pills for the next 2 weeks takes a while ... but at least they look pretty!
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#ChronicIllness #ChronicLife #arthritis #dysautonomia #fibromyalgia #gerd #hypothyroid #migraine #neuropathy #sarcoidosis #spoonie #SarcStrong #ZebraStrong

I was shocked to see characters mention #sarcoidosis on the new Netflix show, "No Good Deed." Read my (spoiler-free) thoughts in this week's Sarcoidosis News column.
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#RareDisease #SarcLife #SarcStrong
sarcoidosisnews.com/columns/sarc...

(which goes with the sparkly green nails, of course) – Never let anything dull your sparkle)! 💚✨
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#infusion #ANSdysfunction #dysautonomia #neuropathy #POTS #RareDisease #sarcoidosis #SmallFiberNeuropathy #SarcStrong #ZebraStrong🦓 #KedsStyle #WearPair #IVIGinStyle #AlwaysCoordinated😘