Learn about SMA Type 1—find out more here: https://bit.ly/4kLGHao

#SMA #Type1 #Awareness #SMANews #Bionews

#Tibber und #SMA vom #WR

📄 New study: A novel implantable catheter–port (ThecaFlex DRx) enables repeated intrathecal delivery of nusinersen in SMA.

✔️ 100% implantation success
✔️ 92% received treatment via device
✔️ Promising early safety profile

buff.ly/Fwf37nT

#SMA #Nusinersen #Neurology

The Scottish Government have launched a newborn screening programme for spinal muscular atrophy, aimed at enabling earlier diagnosis and access to potentially life-changing treatment.

Read more for FREE in BioNews ⬇️
www.progress.org.uk/scotland-int...

#SMA #NewbornScreening

Understand how electromyography helps in SMA diagnosis and care: https://bit.ly/4oAJead

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

🔁 Reminder: research never stops. 

Progress is built through continuous effort.

📖 https://heyzine.com/flip-book/edcd8c56f5.html

🔬 www.sma-europe.eu/our-call-for-research-pr...

💜 #sma #weareone #awareness #research

Spring Road Trip Drive With Music On History Visit To The Sma Glen Highland Perthshire Scotland

Tour #Scotland 4K #Spring travel photograph and video Blog with #Scottish music, of a road trip drive on the A822 route on #ancestry, #genealogy, family #history visit to #The #Sma #Glen near #Crieff in #Highland #Perthshire tour-scotland-photographs.blogspot.com/2022/04/spri...

Learn about SMA Type 0—get the facts here: https://bit.ly/3ZbrirE

#SMA #Type0 #Awareness #SMANews #Bionews

Nu gaat het interessant worden om alles aan elkaar te knopen via #Homeassistant :

- #Zendure SolarFlow 2400AC accu’s
- #SMA inverter zonnepanelen
- #Peblar laadpaal
- #Dynamischeenergietarieven
- #WeHeat Blackbird

Het gaat de goede kant op. Al vele weken heb ik nul verbruik op mijn meter. 🥳

Explore specialized equipment that supports daily life with SMA: https://bit.ly/45KfTmh

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

FDA Approves High-Dose Regimen of Nusinersen for Spinal Muscular Atrophy Biogen announced that the FDA has approved a high-dose regimen of nusinersen for the treatment of SMA in pediatric and adult patients.

The @fda.gov has approved a high-dose regimen of #Nusinersen (#Spinraza®) for the treatment of spinal muscular atrophy (#SMA) in pediatric and adult patients, Biogen announced.

Learn more: https://bit.ly/4s7yn8e

#RareDisease #SpinalMuscularAtrophy #MedSky

FDA Grants Approval for High Dose SPINRAZA to Benefit SMA Patients Cure SMA celebrates the FDA's approval of Biogen's High Dose SPINRAZA regimen, providing hope and improved care for individuals living with SMA.

FDA Grants Approval for High Dose SPINRAZA to Benefit SMA Patients #USA #SMA #Schaumburg #Cure_SMA #SPINRAZA

FDA Approves Higher Strength, More Effective Nusinersen Dose for Spinal Muscular Atrophy | NeurologyLive - Clinical Neurology News and Neurology Expert Insights The FDA has approved a higher-dose regimen of nusinersen for spinal muscular atrophy, supported by DEVOTE data showing improved motor outcomes, reduced neurodegeneration markers, and a safety profile ...

#Breaking: 🚨 The @fda.gov has approved a higher-dose regimen of nusinersen (Spinraza; Biogen) for Spinal Muscular Atrophy.

The high-dose regimen is expected to introduce a faster loading schedule for treatment-naïve patients.
Read more: www.neurologylive.com/view/fda-app...
#Neurology #FDA #SMA

Join an SMA home journey—connect and learn from others about moving and adapting: https://bit.ly/4oSGjdd

#SMA #SMACommunity #RareDisease #SpinalMuscularAtrophy #SMANewsToday #Bionews

Find adaptive clothing ideas that make SMA life more comfortable: https://bit.ly/45uFRZI

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

Météo aéronautique et Infos de l'aéroport de Santa Maria à Vila do Porto (Portugal) LPAZ SMA Les infos de l'aéroport de Santa Maria à Vila do Porto (Portugal) : plan, hotels et la météo aéro avec les TAF et METAR bruts et décodés

Combien de pistes voyez-vous pour aéroport de Santa Maria à Vila do Porto (Portugal) ? : La réponse sur https://www.bigorre.org/aero/meteo/lpaz/fr #aeroportdesantamaria #aeroport #viladoporto #portugal #lpaz #sma #aviation #avgeek vl

Find options and advice for treating scoliosis in SMA: https://bit.ly/4mC3FSd

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

Understand the different types of SMA—read more here: https://bit.ly/43Aco0V

#SMA #Types #Education #SMANews #Bionews

Météo aéronautique et Infos de l'aéroport de Santa Maria à Vila do Porto (Portugal) LPAZ SMA Les infos de l'aéroport de Santa Maria à Vila do Porto (Portugal) : plan, hotels et la météo aéro avec les TAF et METAR bruts et décodés

Combien de pistes voyez-vous pour aéroport de Santa Maria à Vila do Porto (Portugal) ? : La réponse sur https://www.bigorre.org/aero/meteo/lpaz/fr #aeroportdesantamaria #aeroport #viladoporto #portugal #lpaz #sma #aviation #avgeek vl

🏆 Scotland has become the first country in the UK to roll out newborn screening for Spinal Muscular Atrophy (SMA) — a major step forward in early diagnosis and treatment.

#CIL #cilmkt #ukisotope #NewbornScreening #SMA #SMAUK #SpinalMuscularAtrophy #SMAAwareness #HealthcareInnovation #Diagnostics

During #5thInternationalScientificCongressonSpinalMuscularAtrophy, Budapest illuminated iconic landmarks in support of the SMA community ✨

Including Puskás Aréna, MVM Dome & Millenáris Széllkapu Park.

A powerful symbol of unity and awareness 💜 
#WeAreOne #SMA #SMACongress2026

Discover insights and experiences about SMA type 0: https://bit.ly/3HpoLVe

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

🎬 The Rolling Story of SMA. Celebrating 20 years of SMA Europe: From research milestones to community impact.
🔗https://youtu.be/o39rNFzIwDE?si=5Xo5EdH5QKgiBq3D
🔗https://www.sma-europe.eu/the-rolling-story-of-sma

💜 All together. One goal.

#sma #20years #awareness #anniversary #weareone #video

SmartStop Self Storage and AXCS Capital Form Strategic Joint Venture to Provide Bridge Debt and Preferred Equity Capital Across the Self-Storage Sector SmartStop (NYSE: SMA) and AXCS Capital formed a real estate credit joint venture targeting bridge debt and preferred equity across U.S. self-storage.The Venture has an initial invested capital target of $100 million, will finance senior loans, mezzanine, preferred equity and hybrid instruments, and can recycle capital.

#SMA SmartStop Self Storage and AXCS Capital Form Strategic Joint Venture to Provide Bridge Debt and Preferred Equity Capital Across the Self-Storage Sector

www.stocktitan.net/news/SMA/smart-stop-self...

Advocate for yourself with SMA—see how here: https://bit.ly/4kJ2UWz

#SMA #Advocacy #SelfCare #SMANews #Bionews

Our 5th International Scientific Congress in Budapest was a great success! Led by our CEO Nicole Gusset, with inspiring speeches from Casimir Knight and Prof. Brunhilde Wirth. Lifetime Achievement Award to Eugenio Mercuri. Congrats!

📸 @Miguel M. Serrano
#SMA #Research #WeAreOne #Congress

Discover how spinal cord stimulation can support SMA care goals: https://bit.ly/4oEYlj2

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

Scotland becomes first part of UK to screen babies for SMA Scotland becomes first UK nation to screen newborns for spinal muscular atrophy, with parents calling it a 'game-changer' for early treatment

Scotland becomes first UK nation to screen newborns for spinal muscular atrophy, with parents calling it a 'game-changer' for early treatment #NHS #SMA #doctors www.doctors.net.uk/news/scotlan...

✨ Our booklet “From Research Investment to Scientific Progress” showcases the impactful projects supported through SMA Europe’s Call for Research Proposals.
📖 https://heyzine.com/flip-book/edcd8c56f5.html
🔬 www.sma-europe.eu/our-call-for-research-pr...

#sma #research #weareone #awareness

Scotland begins testing newborn babies for rare genetic condition Spinal Muscular Atrophy (SMA) causes progressive muscle weakness and, without treatment, can limit life expectancy to just two years.

A great day for the #SMA community in Scotland! Massive congratulations and thanks to everyone who worked over many years to make this happen www.bbc.co.uk/news/article...