Dat hele voordat je aan je dag begonnen bent moet je al weer naar bed is een rare regeling. Vandaag een rustdagje want vanavond leuke dingen doen. Zin in. Maar nu eerst dutten #SpoonLife

Mijn hoofd is zo druk aan het strijden met een paar grote issues. Dus slaap slecht. Dus heb nog minder energie om dingen uit te denken. Wil dingen doen voor afleiding. Zie puntje nog minder energie. Wil even hard razen en tieren. Maar geen energie voor. #SpoonLife Wat een feestje.

Almist everything is easier to eat with a spoon #SpoonLife

Back from the Esri conference! More on that soon. I slept for 24 hours straight once getting home, wowie! Hopefully I'll be a person again tomorrow 🤞🐕‍🦺

#spoonie #spoon #spoonlife #esriuc2025 #disability #esriuc

Pacing is key, but some things (albeit few) are worth the PEM every once in awhile. #SpoonLife

Finding Light in the Shadows: My Journey with Chronic Illness When You’re the Potato (And Now, Also 45)When you get a chronic illness diagnosis, you expect fireworks—maybe a brass band playing Hallelujah in triumphant unison. But for many of us, it's more like a...

Finding Light in the Shadows: My Journey with Chronic Illness.
#UnremarkableMe #EDS #hEDS
#Chronicillness #Chiarimalformation #spoonlife #ZebraStong #BeKindToYourself

www.unremarkableme.com/post/finding...

Rough day, coughing and other issues but getting words down.

#writerslife #spoonlife #spooniewriter #amwriting

Cartoon rendering of poster and her service dog. She is wearing a Freddy Kruger style sweater, leggings and a black hat, sitting on a couch. Her service dog is next to her, he is black with a white chest patch of fur. His collar is orange and his silver bone tag reads, “Jupiter.”

I try to avoid the news when l am overwhelmed with life & pain flares. A stressed mind makes pain worse as does a tired body. Today myspoons are rusty & have holes. Here is what I do when it all stacks pon me. #spoonie #spoonlife

TFW your son comes to visit and drops just a boatload of serious stuff on your lap and you talk for hours and then he leaves and you get to pay the price. This is going to be days worth of spoons.

Love that he still talks to me about stuff. 💜

#ME/CFS
#SpoonLife
#Crash

🥄🥄🥄

Gonna have to stop calling 10a a late start. My conditions make mornings more difficult. That's just the way it is.
#disability #SpoonLife

I truly resent how difficult it is for me to get laundry put away #SpoonLife

There is nothing like getting home and finding that perfectly supported position in bed when you've had to be out and about with POTS during a fibro flare. Now I've got my pillows surrounding me, my feet up, and everything I need within reach. #SpoonLife

Someone remind me that some exercise is better than none
#Disability #SpoonLife

Kid woke me up and is sleeping annoyingly peacefully right next to me while I'm stuck awake BUT I worked out my plan for my first non class trip back to the gym.
Folks, I'm so stoked it's ridiculous. I know it's baby steps & will take time but ALL my conditions will improve if I do this
#spoonlife

Start my new job on Tuesday.
Super excited, super nervous. With CFS/ME it throws a curveball at my confidence of ‘i can do this’ cause the mind is willing - the body not so co-operative #ChronicIllness #SpoonLife