When Celine Dion shared that she had Stiff Person Syndrome, we had to look it up.
We know its very rare, but if you live with SPS or know someone who does, please share something you wish people knew 🩵🦓🩵
#stiffpersonsyndrome #raredisease #chronicillness #rarediseases #SPS
News to mention: #CelineDion who suffers from #StiffPersonSyndrome is planning a comeback with 10 concerts in France in autumn of this year, since I have 4 (other) auto immune diseases myself I hope that won´t be too much stress.
en.wikipedia.org/wiki/Stiff-p...
Céline Dion announces comeback performances after struggles with Stiff Person Syndrome #CelineDion #StiffPersonSyndrome #CanadianSinger #EntertainmentNews
Celine Dion Plans Paris Comeback Concerts in Autumn 2026
Celine Dion is reportedly planning autumn concerts at Paris' La Défense Arena. Learn about her comeback after stiff p...
#CelineDion #StiffPersonSyndrome #LaDefenseArena #CelineComeBack #Paris2026
https://scrollworthy.org/trending/celine-dion
stories using hashtags like #SPSAwareness or #StiffPersonSyndrome.
Fundraising: Supporting organizations like the Stiff Person Syndrome Research Foundation (SPSRF) to fund research for more effective treatments.
Finally, not only would I like to shine shine a light on International Stiff…
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autoimmune disorder that causes painful spasms, as well as stiffness, often making everyday movements challenging.
Also, the day features campaigns like “#RareLikeYou” and encourages using social media hashtags like #SPSDay and #StiffPersonSyndrome to spread awareness.
Plus, the day serves…
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#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy
ok. Being examined by the doctor hurt, but I dealt with it!
I am a Stiff-Person syndrome warrior! 💪
And love the fight! 💟
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Neurologist #Neurology #NeurologyAppointment #InPersonNeurologyAppointment #HadAnInPersonAppointmentWithMyNeurologist
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Celine Dion fights Stiff Person Syndrome. The condition causes severe spasms and voice loss, halting her career. Her documentary reveals the raw, painful daily reality of her ongoing battle. 🌟
#CelineDion #StiffPersonSyndrome #HealthBattle
www.hypefresh.com/celine-dions...
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
Céline Dion Thanks Fans for ‘Keeping Me in Your Hearts’ in Touching New Year’s Message: Dion, who lives with stiff-person syndrome, also wished fans a year full of "happiness and peace in your heart" #CelineDion #StiffPersonSyndrome #NewYearsMessage #ThankYouFans #HeartfeltMessage
#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency
#immunoglobulin #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency
I am seeing a thoracic surgeon next Tuesday for a possible operation. 2026 might be the year I will learn how to walk again ✌🏽🙏🏼 after 9 years of pain, spasms and muscle contractions… #stiffpersonsyndrome
Good night. I go to rheumatologist Wednesday to see if the pain in both hands and fingers are part of #StiffPersonSyndrome.
My hands hurt. I’ve FB about 200.
#StiffPersonSyndrome
in the hospital for it, came home, and just have to follow up with my PCP and neurologist, and see a cardiologist about the chest pain. And I’m going to do that once we move back closer to my family, friends, and medical care team tomorrow.
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome…
helped me as well. 🥰
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #GreatDay #IHadAGreatDayToday #GotIntoMyWheelchair #Wheelchair #WentOutside #HadAnEvenBetterDayThanTheLastTimeIWentOutside #HadAnEvenBetterDay
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Had a great day today! Got into my wheelchair and went outside and drove around for a little while! And even though it hurt, I still did it! ☺️
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #HadAGreatDayToday #GotIntoMyWheelchair #WentOutside #DroveAroundOutsideForALittleWhile
Got into my wheelchair today and went up to the rooftop which looks over the ocean. 🥰🦼🌊
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Wheelchair #GotIntoMyWheelchair #WentUpToTheRooftop #LookedAtTheOcean
using the split leg hoyer sling )along with my mom as well, of course 😊), which made the whole process easier and more comfortable for me. 💕
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #GreatDay #HadAGreatDay #IHadAGreatDay #GreatDayToday #IHadAGreatDayToday…
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Had a great day today! Got into my wheelchair and did all my PT and OT exercises. They hurt and were so boring, but I need to do them to get stronger and so I can use my hands, arms, legs, and feet better. ☺️💕
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #GreatDay #HadAGreatDay…
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of my syndrome and how it can’t be reversed/cured. And that made me sad. 😢
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Rough #RoughDay #RoughDayYesterday #BloodDraw #HadToHaveABloodDrawYesterday #HadToHaveBloodDrawnYesterday #Bloodwork #HadToHaveBloodworkYesterday #ImAHardStick…
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Joy Khakasa Lwangu faces a choice no one should make: Monthly #StiffPersonSyndrome treatments costing 1.5 MILLION KES for life OR One chance at freedom with YOUR help https://chronicallyrare.wordpress.com #ivig #kenya #igkenya #igerskenya
wheelchair with it, go over bumps with it, and ride in a wheelchair van with it.
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Win #GotInWheelchair #UsedADifferentCushionForTheWheelchair #SoFarTheNewCushionSeemsToBeBetterThanTheRohoCushionIveBeenUsing…
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4 weeks is not enough time to see any improvement!
And I spoke with someone at Spaulding Rehab this morning and they gave me the email of the manager there, and we’re going to send them an email about how rudely and poorly I was treated.
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome…
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purpose of the seat cushion.
And they’re also ordering a special cushion for me for my headrest to support my neck.
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #OT #OccupationalTherapy #OTEval #OTEvaluation #OccupationalTherapyEval #OccupationalTherapyEvaluation #WheelchairClinic…
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