A Patient Perspective on Evolving ADPKD Care | Docwire News Anna Gaddy, MD, of the Nephrology Times editorial board discusses the patient’s perspective on autosomal dominant polycystic kidney disease (ADPKD) diagnosis and management.

🔗 www.docwirenews.com/post/a-patie...
👀 DID YOU SEE? @annagaddy.bsky.social discusses the patient’s perspective on autosomal dominant polycystic kidney disease diagnosis and management. #nephrology #adpkd #kidneydisease #nephsky

Read about a person's fourth-generation experience living with #ADPKD in this #ASNCJASN #PatientVoice. kidney.pub/CJASN1029

The STOP-PKD Study The STOP-PKD study investigates dapagliflozin as a potential new treatment for autosomal dominant polycystic kidney disease (ADPKD), involving multiple European centres led by the University of Cologn...

🧵 (3/3)📍 Individuals interested in the study can contact the Groningen site to receive detailed information and explore potential participation.

📞 +31 50 3611621 / +31 06 256 48 951
📧 cystenieren@umcg.nl

🔎 More information:
pkdinternational.org/studies/95-s...

#STOPPKD #ADPKD #SGLT2 #Research

Genetic testing (Next Generation Sequencing)—A Sherlock Holmes in discovering the truth of ADPKD Next-generation sequencing (NGS) is transforming how we diagnose autosomal dominant polycystic kidney disease (ADPKD), particularly in atypical or unclear cases. While most diagnoses rely on imaging and family history, genetic testing offers critical insights into prognosis, mutation type, and family planning. This evolving tool helps unravel diagnostic uncertainty and supports more precise, personalized care in ADPKD.

🧬 Genetic testing #ADPKD isn’t always straightforward.

Dr SaiVani Yellampalli discusses #NGS; diagnose, refine prognosis, & guide family planning—but when should we use it?

🔍 Sherlock Holmes meets #nephrology.

👀
https://ow.ly/BnMr50YHcze

#NephTwitter #NephX #MedEd #FOAMed #Genetics

🧵🧪 Important recruitment update on the STOP-PKD study (1/6)
We are very pleased to share a significant update on the #STOP-PKD study, an important European research initiative for people living with #ADPKD.

Artificial intelligence in medicine - a benefit for my PKD treatment?

🧵 4/4 Help shape the future of #ADPKD research in Europe 🔬 - make your voice count!

Take part now:
survey.uni-koeln.de/index.php/31...
Every response strengthens the patient voice. Thank you! 💛

@flaviagalletti.bsky.social @oscarsproject.bsky.social @uniklinikkoeln.bsky.social

🧵 1/4 Living with #ADPKD? Take the survey and use your voice to shape the future of ADPKD research. 📣
survey.uni-koeln.de/index.php/31...

🪡 Read this thread 👇

#PKD #PatientVoice #OpenScience #RareDisease #KidneyHealth #HorizonEurope #European #Research

Kidney Commute NKF Mega Menu

Clinical pearls you can use TODAY 👇

✔ Genetic testing integration
✔ Tolvaptan in practice
✔ What is coming next

Do not miss this ADPKD deep dive.

🎧 bit.ly/3DamjQ9 (Episode 053)

#CME #Nephrology #ADPKD

A very interesting time for #ADPKD ! It's especially exciting to see a large trial on #SGLT2 inhibitors now underway for ADPKD patients — a group not included in previous studies.

🧵🧪 Important recruitment update on the STOP-PKD study (1/6)
We are very pleased to share a significant update on the #STOP-PKD study, an important European research initiative for people living with #ADPKD.

🧵🧪 Important recruitment update on the STOP-PKD study (1/6)
We are very pleased to share a significant update on the #STOP-PKD study, an important European research initiative for people living with #ADPKD.

Check out the #KDOQI US Commentary on the @kdigo.org 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of #ADPKD:

bit.ly/KDOQIADPKD26 (FREE)

ADPKD is evolving and so is the guidance.

Tune in as experts break down the new KDIGO guideline + KDOQI commentary and what it means for real world care.

🎧 Listen now: bit.ly/3DamjQ9

#Nephrology #ADPKD #AJKD #KDIGO

Kidney #Volume and #Molecular Processes are Dynamic in #ADPKD

#VisualAbstract by Edgar V. Lerma 🇵🇭

www.kireports.org/article/S2468-0249(26)02...

#KDOQI US Commentary on the @kdigo.org 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of #ADPKD

bit.ly/KDOQIADPKD26 (FREE)

A Patient Perspective on Evolving ADPKD Care | Docwire News Anna Gaddy, MD, of the Nephrology Times editorial board discusses the patient’s perspective on autosomal dominant polycystic kidney disease (ADPKD) diagnosis and management.

🔗 www.docwirenews.com/post/a-patie...
Neph Times board member @annagaddy.bsky.social discusses the patient’s perspective on autosomal dominant polycystic kidney disease diagnosis and management. #nephrology #nephsky #ADPKD

#KDOQI US Commentary on the @kdigo.org 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of #ADPKD

bit.ly/KDOQIADPKD26 (FREE)

💙 PKD Connect | PKD Charity UK

An online support group for people with reduced kidney function, focused on topics such as dialysis and transplantation—sharing experiences and feeling less alone.

🗓️ March 31, 2026 (Zoom, free)
🔗 bit.ly/LowMar26

#PKDInternational #ADPKD #ARPKD #PKDCharity

TSC2/PKD1 contiguous gene deletion syndrome

doi.org/10.1016/j.ki...

#NephSky #MedSky #ADPKD

#KDOQI US Commentary on the @kdigo.org 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of #ADPKD

bit.ly/KDOQIADPKD26 (FREE)

Coexistence of autosomal dominant polycystic kidney disease and primary hyperoxaluria type 3

Kidney stone is not uncommon in ADPKD but is not associated with #hyperoxaluria.

doi.org/10.1016/j.kint.2025.09.006

#NephSky #MedSky #ADPKD

💙 In one week, on March 12, 2026, we mark World Kidney Day, the global campaign dedicated to raising awareness of kidney health and the importance of prevention, early diagnosis, and equitable access to care.

#PKDInternational #WorldKidneyDay #WorldKidneyDay2026 #ARPKD #ADPKD

🚀 STOP-PKD-News!

Das zweite Prüfzentrum in Mainz ist nun offiziell freigegeben. Weitere folgen (DE, NL, ES, AT).

Kann SGLT2-Inhibition das Fortschreiten von Zystennieren positiv beeinflussen?

Infos und Kontakte: stop-pkd.de

#STOPPKD #ADPKD
@pkdinternational.bsky.social @pkdgermany.bsky.social

10 powerful truths about kidney disease from Jamie’s real ADPKD story 💚

Which one stayed with you?

Listen now 🎧
kidneycareuk.org/get-support/...

#ADPKD #KidneyDisease #diaryofakidneywarriopodcast

Association of #Kidney #Volume with Patient-Reported Outcomes in #ADPKD

#VisualAbstract by Vamsidhar Veeranki

www.kireports.org/article/S2468-0249(26)00...

Promotional graphic for Diary of a Kidney Warrior Podcast featuring the title “Living with ADPKD: A Polycystic Kidney Disease Story.” The background is bright pink with bold white text. On the right is a woman wearing red glasses and a dark grey jumper, looking toward the camera. On the left is a smaller image of the podcast host speaking into a microphone. The Diary of a Kidney Warrior logo and Kidney Care UK partnership logo appear at the bottom, along with a label reading “Featuring Jamie.”

🚨New episode
Jamie shares her real experience living with ADPKD, a genetic kidney disease affecting families across generations. Honest, powerful & educational.

Out now:
🎧 kidneycareuk.org/get-support/...

#ADPKD #KidneyDisease #diaryofakidneywarriopodcast

Commentary
The many faces of cholesterol in autosomal dominant polycystic kidney disease

doi.org/10.1016/j.kint.2025.11.007

Original article: doi.org/10.1016/j.kint.2025.08.037

#NephSky #MedSky #ADPKD @mayoclinic.org

🎥 Confidently Navigating #ADPKD: Women & Children – Special Considerations

In this webinar, organized by the @pkdfoundation.bsky.social, key aspects related to women’s health, family planning, and the management of ADPKD in pediatric care are explored.

▶️ www.youtube.com/watch?v=Z7Yc...

PKD1 5’UTR variants are a rare cause of disease in ADPKD and suggest a new focus for therapeutic development - European Journal of Human Genetics European Journal of Human Genetics - PKD1 5’UTR variants are a rare cause of disease in ADPKD and suggest a new focus for therapeutic development

Could PKD1 5′UTR variants be the hidden cause in undiagnosed #ADPKD? 🧬
📢 New study shows rare regulatory variants reduce polycystin-1 expression, opening diagnostic & therapeutic avenues. #Genomics #RareDisease

www.nature.com/articles/s41...

January is UK Liver Awareness Month. In PKD polycystic liver disease ( #PLD ) is common and often silent. Regular check-ups + healthy daily choices matter.

We join PKD Charity UK to shine a light on liver health.

💚 #LoveYourLiver👇
pkdcharity.org.uk/news-events/...

#ADPKD #ARPKD