Goodluck Sam, Adam and all taking part in the World Transplant Games!


#transplantgames #alportuk #germany #worldtransplantgames

Join Alport Warriors!
A supportive FB group for those living with Alport Syndrome.
www.facebook.com/groups/17746...
Because no one should face this alone.
#AlportWarriors #AlportSyndrome #RareDiseaseCommunity #SupportNetwork #AlportUK

Taking part in the British Transplant Games? 🏅

We want to share your inspiring journey! Comment if you’re competing, and we’ll connect.

#TransplantGames #AlportUK #TransplantWarrior #BritishTransplantGames #ShareYourStory #OrganDonationMatters

Are you running the #GreatNorthRun for Alport UK?

Today is the start of the
#GreatDonationDrive

Share your fundraising page far and wide.
You’re doing something amazing, let’s shout about it!

#alportuk #GreatNorthRun #fundraising #running

Huge thanks to all our amazing volunteers at Alport UK!
Your support makes a difference in the lives of those with Alport syndrome.
Want to join us?
Email info@alportuk.org 💙
#VolunteerWeek #AlportUK #ThankYou #ManyHands #TogetherWeCan

💡 Want to fundraise for Alport UK? Check out these fun ideas! 🎉

- Bake sale 🍰
- Sponsored walk 👟
- Craft & create 🎨
- Quiz night 🎤
- Coffee morning ☕️

Every penny helps families with Alport syndrome! 💙 Message us!

#FundraiseForAlport #MakeNoiseForAlport #AlportUK #FundraisingIdeas

#FoodieFriday 🌟
Check out this kidney-friendly recipe from Kidney Kitchen!

😋 Eating healthy can be flavourful.

What's your go-to kidney-friendly meal? Share below!

#KidneyKitchen #AlportUK #HealthyLiving

📢 Meet Lorna, an Alport Syndrome researcher & running warrior!
🏃‍♀️ She's tackling the Milton Keynes Marathon to fundraise for Alport UK.
💜 Support her mission: shorturl.at/TRqTx
#AlportUK #MarathonForACause #RunForResearch #TeamLorna

Happy Easter to our amazing community! 🐣🌷
Wishing you a joyful day filled with love and happiness.
From all of us at Alport UK!
#Easter #Community #AlportUK

🐣✨ Try these kidney-friendly chocolate & nut shortbread cookies this Easter! 🍪💛 A sweet treat that's perfect for sharing! 🐰🌸

👩‍🍳 Full recipe: shorturl.at/ctBog

Let us know if you bake them! 🧡

#AlportUK #KidneyFriendly #EasterTreats #RenalRecipes #KidneyHealth #ChocolateAndNutShortbread

Early Diagnosis Matters

Dan Jagger’s research shows that detecting hearing loss early helps prevent lasting damage. His team is improving diagnostic tools so patients get support sooner.

#HearingHealth #EarlyDiagnosis #AlportSyndrome #AlportUK

@auditorynerves.bsky.social

Big news in hearing research!

Dan Jagger has been awarded a grant for his research into hearing loss in Alport Syndrome. Shaped by real patient experiences, his work aims to improve understanding and prevention.

Stay tuned for updates!

#HearingResearch #AlportSyndrome #AlportUK

❤️ Happy Valentine’s Day from Alport UK! ❤️

Sending love & appreciation to all our patients & families today & always! 💙💜

✨ Don’t forget! Our Patient Day is on 6th July – register now at info@alportuk.org.

#AlportUK #ValentinesDay #PatientDay