Thanks to community support during our family emergency, today was a grateful in-person return to Capitol Hill. As first #LongCOVID org to join Defense Health Research Consortium, @LCCampaign met w/key bipartisan Senate staff to request Long COVID CDMRP funding. #WeCarryEachOther

🎯3-min video clip by @meighanstone.bsky.social on XTwitter:

"Thanks to community support during our family emergency, today was a grateful in-person return to Capitol Hill. As first #LongCOVID org to join Defense Health Research Consortium..." #CDMRP #LongCovid #Funding

Link: x.com/meighanstone...

Can anyone confirm if the $900B defense bill passed in house fully restores #CDMRP funding? And if programs are to be restarted such at the #NFRP for #neurofibromatosis research? That would be good news.

Excellent progress towards better therapeutic options for therapy of a hard to treat cancer made possible by the vision and hard work of immigrant scientists with funding from #CDMRP #DOD #NCI, all of which is at risk of being cast aside or severely cut in US

MDF CEO Dr. Tanya Stevenson, Kevin Brennan (Bluebird Strategies), & DM advocates met with staff from Sens. @kaine.senate.gov & ‪‪‪@klobuchar.senate.gov‬‬ and ‪@repmoskowitz.bsky.social‬ to thank them for supporting #CDMRP funding for #myotonicDystrophy research. 💚#DMadvocacy #RareDisease

Thank you @repaprildelaney.bsky.social for signing on to cosponsor H.R. 3906!
#CDMRP #MEforward #MEcfs #HR3906

Thank you @repaprildelaney.bsky.social for signing on to cosponsor H.R. 3906! #CDMRP #MEforward @solveme.bsky.social

Ask your reps to cosponsor H.R. 3906 The Medical Research For Our Troops Act to fully restore the $859M cut from CDMRP & fund all 35 programs at FY24 levels. Speak up for #MECFS research & medical innovation!
solvecfs.quorum.us/campaign/128...

#AdvocacyWeek #SocialMediaActionDay #CDMRP #HR3906

Team Maryland @repjohnnyo.bsky.social @repaprildelaney.bsky.social @ivey.house.gov @hoyer.house.gov @elfreth.house.gov @raskin.house.gov @repkweisimfume.bsky.social PLEASE cosponsor H.R. 3906 to restore key research funding! #CDMRP #HR3906 #MEforward #MECFS #IACCI

@repjohnnyo.bsky.social @elfreth.house.gov @repaprildelaney.bsky.social please sign on as an cosponsor of the Medical Research for Our Troops Act to restore $1.18B in DOD medical research funding, including for #MECFS. Deadline: June 11. Support the #CDMRP and protect lifesaving research! #pwME

A square graphic with blue and green abstract shapes in the corners and an alarm emoji at the top of the page reads "Medical Research Funding Slashed 57%. Congress cut $859 million from CDMRP in FY25--putting ME/CFS research at serious risk. H.R. 3906 would restore funding. Tell Congress: COSPONSOR NOW." At the bottom of the graphic are a multicolored image of the U.S. Capitol Building and Solve's orange and green double helix logo.

🧵 1/ 🚨 Congress slashed $859 MILLION from a key research program that includes funding for ME/CFS and other critical health conditions.
We need your help to restore it. #MECFS #CDMRP #HR3906
solvecfs.quorum.us/campaign/128...

Excited to give this presentation for #BIAPA describing findings from our studies funded by #NIDILRR and #CDMRP #TBIPHRP

#PH #TBI #military #servicemembers #veterans
Register here:
www.biapa.org/clinical_forum

📣 DM Advocates: Urge your Senators to sign Sen. Klobuchar’s letter backing $10M in #myotonicDystrophy research through #CDMRP. There are only days left to act—your voice can help drive treatments forward. ✉️📞👉 Take action now: www.votervoice.net/Myotonic/Cam...

At the 2025 ALS Community Summit in DC, our Director of Community Education, Anne Marie Doyle, joined leaders and advocates to push for better ALS policies and research funding.

These are the moments that move the needle.

#ALSadvocacy #SupportAct #ALSSummit #LesTurnerALS #NIH #CDMRP

Excited to present results from our #CDMRP #TBIPHRP trial @ #NeuroRehabilitation 2025 on 5/16: "Improving Psychological Health After Mild Traumatic Brain Injury with Building Emotional Self-Awareness Teletherapy #TBI #military #VA NeuroRehabilitation url:https://neurorehab.hmscme.com/schedule

The Congressionally Directed Medical Research Program (CDMRP) is facing catastrophic funding cuts under the Trump Regime.

Yes, Congressionally Directed. Contact your representative NOW!

#disability #cdmrp #multipleSclerosis

A graphic encourages readers to participate in an advocacy action aimed at restoring funding for ME/CFS research in Fiscal Year 2026. At the top of the graphic are the words "Restore Our Research." A digital image of a hand holding a megaphone is placed above the words "Action needed to fully fund the congressionally directed medical research programs (CDMRP)." Across from this image is a photograph of the U.S. Capitol building. The Solve M.E. logo is displayed in the bottom left corner. A round white sticker on the graphic reads "Now calling for action on FY26!"

🚨Advocacy Alert! 🚨

Congress cut CDMRP funding by 57%—devastating for ME/CFS research. We’re fighting back—but we need your voice.

📢Tell Congress: Restore CDMRP funding in FY26!

🔗Take Action: ow.ly/H9xM50VB7wJ

#MECFS #CDMRP #restoreCDMRP

So happy to share my advocacy Op-Ed on the importance of federal funding for health research! 💥
#NIH #AHRQ #VA #AHRQ #CDMRP
#Diabetes #Latinos #Equity
#PsychSciSky
#AcademicSky
#WokeScience

Hearing so much heartbreak & stress surrounding the gutting of federal health agencies from colleagues & friends. #NIH #AHRQ #CDMRP #HRSA #VA …
Projects gone, careers lost, life-saving studies eviscerated. Even as a psychologist, it’s hard to hear. 💔

Phew. Take breaths, take care of each other.

Digital graphic reads "Solv M.E. CEO Emily Taylor Discusses Federal Funding Cuts for Long Covid Research." Includes a photo of a smiling woman (Emily Taylor) with shoulder-length brown hair and glasses. To the right of the photo is a square blue graphic logo with white lettering that reads "AirTalk with Larry Mantle LAist." At the bottom of the graphic is the Solve green and orange double-helix logo and the org name Solve M.E. in grey lettering.

ICYMI: Solve CEO Emily Taylor spoke to AirTalk with Larry Mantle (KPCC/LAist) about the impact of recent cuts to #NIH funding for #LongCovid research, including the Department of Defense #CDMRP program.
Listen here: ow.ly/MARH50Vtwug

In The Headlines: HHS shakeup threatens a legacy of medical breakthroughs - The Cancer Letter “For the last 50 years every major medical breakthrough can be traced back to investments in the NIH, which houses the National Cancer Institute (NCI),” said Wayne A. I. Frederick, interim chief executive officer of American Cancer Society and the American Cancer Society Cancer Action Network. This podcast is available on Spotify and Apple Podcasts. […]

This week on The Cancer Letter #Podcast: Jacquelyn Cobb & Claire Marie Porter talk about the sweeping changes at #HHS and the 57% funding cut for the Department of Defense Congressionally Directed Medical Research Program (#CDMRP)
https://cancerletter.com/podcastc/20250402-hhs-shakeup/

The continuing resolution passed by Congress includes a deeply harmful 57% cut for innovative research at #CDMRP. We are very disappointed with this result but will not waiver in advocating for the highest possible investment in life-saving research. #ResearchSavesLives

@schumer.senate.gov please grow a spine.

The shut down would fall on trump and his party. The bill cuts so many important programs like the #CDMRP.

Don't settle for tyranny!

🚨 URGENT: Protecting Mesothelioma Research 🚨
The US is considering a 57% cut ($857M) to the Congressionally Directed Medical Research Program—the largest dedicated funding source for #mesothelioma research.
#MesotheliomaResearch #CDMRP