#ehlersdanlossyndrome
#craniocervicalinstability
#cervicaldegenerativespondylolisthesis

standing up worsens my POTS symptoms but improves my #craniocervicalinstability 🤦 meanwhile, sitting/lying down worsens my CCI symptoms but improves my #posturalorthostatictachycardiasyndrome 🤷 I can't win for losing! FML #invisibleillness #chronicpain

If you liked the collaborative story, I would hugely appreciate a donation, be it big or small. The second collaborative story just started and will soon be available in English as well! 2/2 #CCI #craniocervicalinstability #EDS #crowdfunding #GoFundMe #collaborativestorytelling

*feeling defeated*🤦 (eye roll added for dramatic effect) back to this 'torture device' 🙄 the only thing that's providing me with any type of relief from my symptoms right now 😮‍💨 worried that I may be stuck wearing this for the rest of my life 😣 #craniocervicalinstability #vertebrobasilarinsufficiency

DYK: #CranioCervicalInstability is a very common comorbidity of EDS and HSD. 🩻🧡🦓🧡
... Thankfully, other countries are smart enough to keep funding medical research.

linktr.ee/thezebraalli...
#CCI #EDS #HSD ##ehlersdanlos #ehlersdanlossyndrome #hypermobilityspectrumdisorder #hEDS #raredisease

I am really envious of those with a fully-functional neck 😖 #craniocervicalinstability #cervicalradiculopathy

Please wake me up from this nightmare when it is over, and we do have medical practitioners, who can differentiate between #POTS #SmallFiber #MCAS #hEDS #EDS #CranioCervicalInstability, as well damaging through #Fluoroquinolones or #vaccines, 1/4