#ePatients hashtag - Bluesky

@tomkindlon.bsky.social

1 month ago

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‪"The point is not that science doesn’t matter (it does, very much) but that the path from lived experience to research to care can be bidirectional."‬

‪#PostCovid #PwME‬ #PostCovid19 #CFS #epatient #epatients #chronicillness

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Hugo Campos

@hugooc.bsky.social

2 months ago

Hugo Campos – Research Partner | Hugo Campos – Patient Advocate & AI Healthcare Strategist Connect with Hugo Campos to collaborate on patient-centered, equitable healthcare innovations. Reach out via contact form, LinkedIn, or schedule a call.

Using AI for healthcare? I'm hoping to connect Bay Area ePatients using #ChatGPT, #Claude, or #Gemini for medical visits + records. Looking to build a network for patient-led AI use. If you are in Bay Area please DM/reach out. #PatientsUseAI #ePatients #HealthAI #BayArea researchpartner.org/contact

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JMIR Publications

@jmirpub.bsky.social

2 months ago

Exploring the Preferences and Behavioral Trends of e-Patients in Psychosomatics Towards Telemedicine During and Post #covid19 Pandemic: Cross-Sectional Analysis Background: #covid19 pandemic resulted in a rapid growth of telemedicine and e-health services, with an increasing number of e-patients utilizing the internet for self-informed decision-making. Objective: Investigations on patient adoption and preferences of telemedicine due to the pandemic are still few. Methods: In a cross-sectional study, 150 adult patients (>18 years) of the psychosomatic outpatient department were invited to complete an ad hoc questionnaire to identify e-patients' preferences related to communication, information-seeking behaviour, subjective explanations, and post-pandemic preferences. Group comparisons and a multiple linear regression were applied using SPSS. Results: The study revealed a slight increase in online-based communication between patients and caregivers, as well as among patient–patient interactions. Significant group differences were observed concerning social media correspondence (χ2¬ = 17.44, p < .001) in regard to patient age and for live video consultations (χ2¬ = 70.17, p < .001) in regard to gender. For both age and gender, significant group differences were found for medical videos (age χ2¬ = 6.36, p = .042; gender χ2¬ = 76.70, p < .001). Age, gender, and preferences for live video consultations were identified as significant predictors (F = 14.195, p < .001, R² = 0.299) explaining patients' future preferences for on-site versus online consultations. Conclusions: Even though a slight increase in online-based communication was detected, a resilience of patient–caregiver and patient–patient communication indicated a relative stability in challenging circumstances. Elderly, and female patients expressed preference for on-site consultations, emphasizing the significance of in-person care. Male patients demonstrated greater openness towards online consultations, indicating the potential for expansion of telemedicine services. Identifying preferences are core essentials for catering for future e-health implementations to diverse patient needs and for designing care offerings. Incorporating these findings can enhance patient engagement and satisfaction in the evolving landscape of e-health services for better healthcare outcomes. Clinical Trial: osf.io/6nm9s

JMIR Formative Res: Exploring the Preferences and Behavioral Trends of e-Patients in Psychosomatics Towards Telemedicine During and Post #covid19 Pandemic: Cross-Sectional Analysis #Telemedicine #eHealth #Covid19 #ePatients #HealthCare

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Dr. Danny Sands

@drdannysands.bsky.social

5 months ago

I think it’s symbiotic: patients shape the technologies as they adopt the technologies. The next evolutions, already begun, are in #genAI and #agenticAI, which #epatients are already began to leverage to help them better understand their health, health records, & to help w/ diagnosis & navigation.

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Tom Kindlon

@tomkindlon.bsky.social

6 months ago

When We Don’t Have All the Answers: Long COVID and the Need for Humility in Medicine — Liza Di Leo Thomas Editorial. "In the hope of returning their lives to their pre-illness state, most patients research their own conditions. As physicians, we must accept that these patients may know more than we do about their condition. This idea can be difficult to accept because we are supposed to be the experts, the ones who can advise patients on the best tests and the best possible management of their conditions."

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"most patients research their own conditions. As physicians, we must accept that these patients may know more than we do about their condition."

doi.org/10.31486/toj...

Screenshot from latest Science for ME weekly update

#LongCovid #chronicillness #epatients #MEcfs

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Dr. Danny Sands

@drdannysands.bsky.social

8 months ago

PODCAST: Dr Danny Sands and the evolved e-patient - Pulse+IT ‘E-patients’ has evolved to mean “engaged, equipped and empowered”, global patient advocate Dr Danny Sands says on the latest episode of PULSE the Podcast. And there is now a model of ‘information sym...

My dear Aussie friends, @georgemargelis.bsky.social & @drlouiseschaper.bsky.social, interviewed me for their podcast drds.us/4mCQa55. We discussed #epatients, #participatorymedicine, & my recent paper in @jmirpub.bsky.social J Participatory Medicine jopm.jmir.org/2025/1/e68911.

@s4pm.bsky.social

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@patientmakt.bsky.social

8 months ago

From Internet to Artificial Intelligence (Al) Bots: Symbiotic Evolutions of Digital Technologies and e-Patients This paper will view the rise of the e-patient, who is “equipped, enabled, empowered and engaged” through the lens of the evolution of successive digital technology innovations, each building on its p...

From Internet to Artificial Intelligence (Al) Bots: Symbiotic Evolutions of Digital Technologies and e-Patients

#epatients #epatient #patientempowerment #ehealth

jopm.jmir.org/2025/1/e68911

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@patientmakt.bsky.social

8 months ago

e-Patients White Paper - Society for Participatory Medicine The whitepaper, e-Patients: How they can help us heal health care, authored by the late Tom Ferguson, MD, is the foundation for the founding of the Society for Participatory Medicine […]

Physicians on social media seem to like informed consent - but what about the ones who are not on social media...

USA has a health consumer patient act that encourages "patient awareness" - patient as an active partner in decisions... #epatients

participatorymedicine.org/e-patients-w...

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@wrysigh.bsky.social

1 year ago

Do #medscape #epatients still exist? Having that experience of being the 44year old in the cardiologist office and thinking of younger days.

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Sue Woods

@suewoods.bsky.social

1 year ago

eHealth Literacy 3.0: Updating the Norman and Skinner 2006 Model This paper advances the “eHealth Literacy 3.0” model following Norman and Skinner’s 2006 original eHealth literacy 1.0 model and Norman’s 2011 2.0 update, and introduces a corresponding revision to th...

Updated visual and definitions of Norman & Skinners e-health literacy instrument from 2006. #ehealth #epatients #digitalinclusion #SDOH

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Janice McCallum

@janicemc.bsky.social

1 year ago

Huge thanks to Sue Woods for her many years of dedication to JoPM and warm welcome to @amyprice.bsky.social as new EIC. #epatients #S4PM

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Janice McCallum

@janicemc.bsky.social

1 year ago

I met @vanessacarteramr.bsky.social at HIMSS about 10 years ago. I greatly admire how she has developed from a "helpless, uninformed patient" to a fierce and effective advocate for other patients via her #AntimicrobialResistance advocacy work. #epatients #AMR

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