And if I’m *not* at home, I’m at a drs appt 🫠
#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #EhlersDanlosSyndrome #EDS #Gastroparesis #FeedingTube #Tubie #POTS
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Hashtag
#feedingTube
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Yes! I use #Guava to track medications, symptoms, vitals, and more! I also have an app that will alert me to barometric pressure changes so I can better prep for the day!
#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Gastroparesis #FeedingTube #TubeFed #Tubie #EhlersDanlosSyndrome #EDS
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It’s rude of my disabilities to disable me, but at least I have my eight (8) library books to keep me company 🙂↕️
#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #WheelchairUser #EDS #EhlersDanlosSyndrome #AmReading #BookSky #LibraryKid #Libby #AmReadingFantasy
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Sometimes I know the labs will take a couple days, but I STILL find myself checking the portal every few hours … or multiple times an hour 🙈
#NEISVoid #Disability #Disabled #Labs #Labwork #ChronicIllness #Spoonie #Tubie #FeedingTube #Gastroparesis #EhlersDanlosSyndrome #HEDS #MCAS #JTube #GTube
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Disabled life means waking up to lab results, MyChart messages, appointment reminder calls, and more 🫠
#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #Gastroparesis #EhlersDanlosSyndrome #HEDS #MCAS #Dysautonomia #POTS #PosturalOrthostaticTachycardiaSyndrome
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I’m cold. It’s 11pm. The heat goes down to 64 during the night. I want to curl up in my heated blanket, but I need to do tube care first. Doing tube care means exposing my abdomen to The Cold 🥶
#NEISVoid #Gastroparesis #Spoonie #Tubie #FeedingTube #Disabled #Disability #ChronicIllness #HEDS #MCAS
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I have to use silver nitrate to treat granulation tissue around my #GTube. I hate doing this because it’s sooo painful and then the tissue keeps coming back 😭
#NEISVoid #FeedingTube #Tubie #Spoonie #ChronicIllness #Disabled #Disability #Gastroparesis #EhlersDanlosSyndrome #HEDS #MCAS
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#G-tube replacement #surgery went much better than my #J-tube exchange last month. Abdomen HURTS (but I went from a #PonskyTube to a button). *Really* hoping this change helps me turn a corner for the better in terms of health ❤️🩹
#DisabilitySky #Disabled #FeedingTube #Gastroparesis #EDS #Spoonie
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Ughh. I finally found a new formula I have been tolerating and they have informed me that while it isn't "discontinued" it's long-term out-of-stock now and I have to pick something else and start all over again! #FeedingTube 💔💔💔
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Doc: I’ve been here 10 years and never seen that before
(Regarding how my feeding tube is broken)
Story of my life 😭
#NEISVoid #FeedingTube #Gastroparesis #Disabled #Disability #ChronicIllness #Spoonie #JTube #GTube
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Omw to the hospital for an emergency tube change. Happy #FeedingTubeAwarenessWeek to me ))))):
#FTAW2026 #FeedingTube #Gastroparesis #JTube #GTube #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #EDS #EhlersDanlosSyndrome #MCAS #MastCellActivationSyndeome #EosinophilicEsophagitis #EOE
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"Since 2011, February has been recognized globally as Feeding Tube Awareness Month."
#FTAW2026 #FeedingTubeAwarenessWeek #FeedingTubeAwarenessMonth #FeedingTube
www.feedingtubefoundation.org/feeding-tube...
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It’s #FeedingTubeAwarenessWeek! 🦸️🥣
For many with #IBD, tubes are the "SuperHero fuel" that keeps them going. We're "cutting the crap" on stigma this week - a feeding tube is a tool of strength, not a sign of failure. 💜
#IBDSuperHeroes #FeedingTube #Tubie #Crohns #Colitis #IBDawareness
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Feeding Tube Awareness Week image from the charity Guts UK
It's Feeding Tube Awareness Week.
Guts UK Charity is the national charity for the digestive system and have put together lots of helpful information for people to learn more about feeding tubes. They want to raise awareness and reduce stigma around feeding tubes #TubeFeeding #FeedingTube #Tubie
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#NEISVoid what are your wildness tricks for dealing with #Nausea? I take several meds and have a #G-tube and a #J-Tube for #Gastroparesis. I have #GERD, #MCAS, #FoodAllergies, and #EosinophilicEsophagitis.
Liquids are difficult, but small flushes of peppermint tea through my #FeedingTube can help❤️🩹
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I hope everybody stays safe with this winter storm! A PSA that if the power goes out and you have a generator, please reach out to any disabled neighbors who might need to charge medical devices!
#Disabled #Disability #WinterStormFern #ChronicIllness #FeedingTube #Oxygen #ElectricWheelchair
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Don't worry he has spare clothes....
#FurryArt #Furry #Mirror #Forcefeeding #FeedingTube #Belly #Fat #Fatfur #WG #WeightGain #Art #NSFW
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Kinda better to start it whilst I recover, too. Then I'm not missing out on much. But I'm still hoping that I can do some stuff tomorrow, rather than just rest. #FeedingTube 🩺❤️
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Ehh second tube formula didn't work out after all. 😓 But the dietitian is working to have a third one sent out. So maybe this one will be the new winner? 🤞🏻 (So annoying the one I was doing the best on got discontinued). #FeedingTube
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I’ve been a monkey in the middle between my GI office and my tube supply company all week 😠
I’m on my last day of formula and rely on tube feeds. Tomorrow is Saturday!
I NEED them to deliver my formula TODAY or I won’t have nutrition this weekend 😭
#Gastroparesis #FeedingTube #Disabled #Spoonie
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My new feeding tube formula trial starts today and ya girl is nervous 😬
Fingers crossed and all the good vibes that I tolerate this one better 🍀
#NEISVoid #Disabled #Disability #Gastroparesis #FeedingTube #JTube #Tubie #Spoonie #ChronicIllness
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Noelle, a white person with glasses and braided blonde hair, smiling and giving a thumbs up. She is standing in her bathroom and there are towels on the racks behind her. She is wearing a cropped black shirt that exposes her scarred abdomen. You can see her G-tube and her J-tube. She is wearing blue leggings and clipped to the side of her leggings is a purple drainage bag cover with stars on it.
I get 90% of my nutrition through my #JTube #FeedingTube. This is what’s best due to my severe #Gastroparesis, #MCAS, & #FoodAllergies.
#FedIsBest no matter how you get your nutrition!
Sending spoons to all 🥄 🥄 this holiday season!
#NEISVoid #Disabled #ChronicIllness #Tubie #Spoonie #Disability
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On the one hand: new formula is going better than the last two. 🎉🎉🎉 On the other: the battery in my bag died today so I think it was accidentally unplugged from the wall overnight. 🙃🙃🙃 #FeedingTube #Fail
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I’ve talked with my insurance, pharmacy, and dr’s office so much in the last two weeks!
📞 35 calls
💬 ~20 portal messages
All to get ONE med 💊
Being disabled is a full time job 😮💨
#PostOp #NEISVoid #Disabled #Disability #ChronicIllness #Spooine #Gastroparesis #FeedingTube #JTube #GTube #EDS
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Me (to myself): why am I hungry?
Also me: it’s because you haven’t connected to feeds you silly goose 🤣🪿
#TubeFed #KateFarms #FeedingTube #Tubie #Gastroparesis #FedIsBest #JTube #NEISVoid #EDS #EhlersDanlosSyndrome #Spoonie #Disabled #Disability #ChronicIllness
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The procedures were very successful😊
Initially, I could tell by her speech being clearer. Then she went home a few hours later rather than staying overnight for observation 😌
She had a cookie 🍪 at therapy and she is eating small soft meals every day.
#dysphagia
#SwallowingDisorder
#FeedingTube
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Werde?
Ich weiß es nicht.
So absurd es sein mag
Leider macht das krank sejn nicht leichter...
#dis #kptbs #svv #Psychiatrie #MentalHealth #kjp #Jugendhilfe #NotJustSad #EhlersDanlosSyndrom #hEDS #SFN #MCAS #Piccline #Jpeg #FeedingTube #Neuropathie #Motilitätsstörung #rareDisease
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Steggie sits on Red Vinyl Kitty's shoulder, and he's telling her she celebrated a little too soon. He's not wrong though.
Steggie's Always Right: youtu.be/uaJA3QvTUT0 #Vlog #FeedingTube #AlternativeLifestyle ❤️
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