This Sunday!
We are so happy to have Dr. Aimee Nefcy share her experience as a physician and a patient!
Please join Sunday Conversations, 3/15 @ 4pm ET.
massmecfs.org/events/sunda...
#massmecfs #MECFS #chronicfatiguesyndome #fibromyalgia #iacci #longcovid
March is Long COVID Awareness Month
March 15th: Long COVID Awareness Day
March 15th-21st: Long COVID Awareness Week
Check out the Long Hauler Advocacy Project 4 details
www.longhauler-advocacy.org/lcamonth2026
#massmecfs #longcovid #longcovidawareness #chronicfatigue #chronicillness #MECFS #iacci
Catch up on the latest, the Feb newsletter is out:
massmecfs.org/resources/ne...
Better yet, subscribe!
massmecfs.org/resources/ne...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicillness #iacci #longcovid #chronicfatigue
Team Maryland @repjohnnyo.bsky.social @repaprildelaney.bsky.social @ivey.house.gov @hoyer.house.gov @elfreth.house.gov @raskin.house.gov @repkweisimfume.bsky.social PLEASE cosponsor H.R. 3906 to restore key research funding! #CDMRP #HR3906 #MEforward #MECFS #IACCI
Take Action Now! Tell RECOVER to reinstate the COPVS Task Force & leverage the full spectrum of knowledge and lived experiences from patients with ME/CFS, Long Covid, and other infection-associated chronic conditions.
Sign on: solvecfs.quorum.us/campaign/102...
#MECFS #LongCovid #IACCI
Solve community member Beverly, mother of a person with #MECFS, explains why she gives to Solve. Please join Beverly in support of our research, advocacy, & education programs. All gifts made by Dec. 31 will be matched up to $200,000!
ow.ly/jUm050UvhcE
#LongCovid #IACCI
**NEW DATE** Our webinar with Dr. Leonard Jason will take place on Dec. 18 at 10 am PT. Register for "The Future of #IACCI & #LongCovid Research: #MECFS a& the Unfinished Work of the COPVS Task Force" here: us02web.zoom.us/webinar/regi...
Our webinar, "The Future of #IACCI & #LongCovid Research: #MECFS a& the Unfinished Work of the COPVS Task Force," featuring Dr. Leonard Jason has been rescheduled for Wed, Dec. 18 @ 10 am PT /1 pm ET. Haven't registered yet?
Sign up here:
us02web.zoom.us/webinar/regi...
I would proceed differently from your critically important findings.
I conclude that we should prioritize (and appropriately incentivize) improvements in clinician understanding and awareness of how to diagnose + ultimately treat #LongCOVID, #MECFS + other #IACCI
Excellent first episode of new podcast -- Make Visible -- from the team behind the Visible app.
Features @patientled.bsky.social
#LongCOVID #MECFS #IACCI
pca.st/cs7e24lo
