#pwHS, #cancer, #IBD, #crohns, #colitis, #Lyme, #pwLyme, #ChronicLyme, #postLyme, #bartonella, #EBV, #EpsteinBarVirus, #Polymyalgia, #MyofascialPainSyndrome, #MusculoskeletalPainSyndrome, #PostExertionalMalaise, #PostExertionalSymptomExacerbation, #PESE,

3/6

My face wears a weathered map of the chronic illnesses determined to rip away my life one day at a time. I don’t know who I am anymore, and a hollow-eyed stranger screams at me from my reflection. 🌀

#POTS #Sepsis #TBI #DisabledinSTEM #pwHS #HidradenitisSuppurativa

On hold with doctor:

"We are currently experiencing longer than normal wait times. Please hold for the next representative."

Tell me, when exactly are you NOT experiencing absurdly long wait times?! 🤦🏻‍♀️

#ChronicIllness #DisabledInSTEM #TrigeminalNeuralgia #pwHS #HidradenitisSuppurativa #NEISvoid

Me:
A person with MCAS/POTS trying to sleep - Downstairs neighbor’s dryer scents wafting into my window at 3 am.

My Body:
You are now on fire. Hives and fever time!

😔

#MCAS #POTS #DisabledinSTEM #ChronicIllness #Disability #NEISvoid #pwHS

Portrait of a woman smiling. She’s wearing a mint green Christmas sweater with buttons on the neck. Her lips are stained mulberry red and her eyes are green.

Merry Christmas, my friends! Today may have been painful and exhausting, but know I’m here with you. My wish is that we each had one small thing in our day that made us remember how loved we are. You are loved. 🎄
#pwHS #DisabledInSTEM #MerryChristmas #Chronicillness #HappyHolidays #Love

Chronic illness community,

Do you keep spreadsheets of your medications? I’m curious to see if it’s helped anyone else. I’ve used spreadsheets for years, and they help so much!

#DisabledInSTEM #ChronicIllness #pwHS #Fibromyalgia #Asking #POTS #MCAS #Disability #Organization #Curious