Finally a day where the #syringomyelia mass in my damn spinal cord says I can have full feeling in my dominant hand so I could draw. The sun is visible enough for that sweet #bipolar2 and #narcolepsy ( #ideopathichypersomnia) fatigue not to be dragging me down. Small disability successes for today.

Anyone want a commission, uhhh my water, sewer, and car loan are all late. #disabilitystruggles #iwishicouldworkmore #syringomyelia #spinalcordinjury #artcommission #opencommission #furries #ocs #dnd #dungeonsanddragons #characterprofiles #characterrefs
#nsfwallowed

forms.gle/bKFHZey6N4fm...

Background shows blue pills on a wooden surface. Text reads: Gagony (noun) Intense pain accompanied by nausea caused by that pain Example: I’m in gagony.

My fellow spoonies will understand all too well. And yes, I’m having yet another day feeling this way.

#ChronicPain #Syringomyelia

a black and white image of a skull with a hole in the middle of it . Alt: a black and white MRI image of a head and brain

Been fighting a pain-induced emotional breakdown all day. I can’t allow myself to cry because it’ll only aggravate my neck and head pain. I’ll be asking for one Friday when I see my GP. Fingers crossed I don’t wait long.

#syringomyelia #ChronicPain #spoonie

Just once, I want to wake up without pain.

Just once, I want to wake up feeling refreshed and energetic.

It’s been twenty years.

#spoonie #ChronicPain #disabled #syringomyelia

#syringomyelia

A red SOS button on a grey background. Text reads: Please help me. Desperately seeking a pain specialist, neurologist, or neurosurgeon in Ontario with experience in syringomyelia. I’m near my breaking point and don’t know how much longer I can go on.

Desperately seeking a pain specialist, neurologist, or neurosurgeon in Ontario with experience in #syringomyelia. After another useless, frustrating app’t in Toronto, my depression is spiralling and I’m finding it increasingly difficult to keep fighting. Confidentiality assured.
#ChronicPain #AKF

ive been in the hospital since Tuesday
I feel like trash.
idk what this new mri is gonna show us
I read it. they just better figure it out.

#frustrated #hospitalbullshit #chronicillness #braintumor #brainsurgery #cushingsdisease #adrenalinsufficieny #syringomyelia #overit #annoyedpanda

Is there a #syringomyelia feed?

Wicked bad pain today.

#ChronicPain #syringomyelia

but hopefully things will stay the same for a while ✌🏻🤓 🧠💜

#chiarimalformation #chiariawarenessmonth #chiaristrong #syringomyelia #syringomyeliaawareness #chronicillness #chronicpain #brainsurgery #brainsurgerysurvivor #mentalhealth #invisibleillness #mentalhealthawareness

Funny how a little bubble of csf trapped in your spinal cord can ruin your whole life #syringomyelia #chronicpain

Mr husband tattooed my skull on his chest after I had my 13th brain surgery. Immediately I thought of this crazy thing we did 20 yrs ago. #Syringomyelia headed into round 3 after 44 years of this forever fight…
#invisible-disabilities “you look so normal” nope it’s
#Syrinx paralyzing

Here’s a link to my video explaining #syringomyelia and my experience with it.

www.instagram.com/reel/DBnBdg6...

I was diagnosed with #syringomyelia in 2005. It led to a cervical laminectomy & duraplasty from C4-T1. In 2006, I had a shunt inserted into my spinal cord at around C5/6.

I’ve since developed DDD and osteophyte complexes in my neck.

I have a video up on IG, same handle. It’s too long to post here.

Covid & flu jabs yesterday have left me almost unable to walk & my weak arm with even less mobility 😅 REALLY hoping they don’t trigger a full-on relapse or crisis 🙄 #Syringomyelia #FND #AddisonsDisease

Case 45: Shoulder in Ruin
Answer - neuroarthropathy
Discussion video of the case and Charcot joints
www.bstneoplasms.com/p/case45/
#bstneoplasms #radres #bonetumor #shoulder #neuroarthropathy #Charcot #syringomyelia #Chiari