The question isn't when are you going to die...
The question is when are you going to let yourself truly live despite it all?
🌻 💛 If you're carrying heavy stuff, this one's for you. #ResilienceCoach #stuckinthesuck #faultymeatsuit #neurospicy #narcolepsy https://dawnsuper.com/post/dailydose160

We’re looking for people who have been diagnosed with narcolepsy. Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!

If you have narcolepsy you can earn $120 for a 60 min interview on your experience. #narcolepsy

share.realpatients.com/patients-wit...

Lilly to Buy Centessa for OX2R Sleep Drugs Eli Lilly announced acquisition of Centessa on Mar 31, 2026 (Investing.com). Narcolepsy prevalence estimated at ~0.05%; deal terms pending disclosure.

Lilly to Buy Centessa for OX2R Sleep Drugs: Eli Lilly announced acquisition of Centessa on Mar 31, 2026 (Investing.com). Narcolepsy prevalence estimated at ~0.05%; deal terms pending disclosure. 👈 Read full analysis #EliLilly #Centessa #SleepDrugs #Narcolepsy #OX2R

Lilly Acquires Centessa for Up to $7.8B Eli Lilly agreed to buy Centessa for up to $7.8bn (announced Mar 31, 2026), targeting experimental narcolepsy drugs for a condition affecting ~0.05% of the population.

Lilly Acquires Centessa for Up to $7.8B: Eli Lilly agreed to buy Centessa for up to $7.8bn (announced Mar 31, 2026), targeting experimental narcolepsy drugs for a condition affecting ~0.05% of the population. 👈 Read full analysis #EliLilly #Centessa #PharmaNews #Biotech #Narcolepsy

🌙 For Rising Voices speaker Katy Roden, experiences like this weren't just nightmares, they were early signs of #narcolepsy. Hypnagogic and hypnopompic hallucinations can occur when falling asleep or waking up, often alongside sleep paralysis.

➡️ Learn more: https://ow.ly/lYHt50YBclE

Forgot my fucking ears

#magearna #robot #pokemon #meow #plooh #narcolepsy #oc #art #clanker #silly

I’m such loner sigma

#magearna #robot #pokemon #meow #plooh #narcolepsy #oc #art #clanker #silly

"You're not broken." Yes. I am. Held together by ingenuity & caffeine like MacGyver. Radical acceptance = owning it + not running my faulty meatsuit into the ground pretending I'm fine.
Why this phrase triggers (+ how to take your power back):
https://dawnsuper.com/post/dailydose154 #narcolepsy

Eisai Launches Phase 2 Clinical Trial for Narcolepsy Treatment E2086 Eisai Inc. has commenced patient enrollment for a groundbreaking Phase 2 study evaluating E2086, a novel treatment for narcolepsy. This research aims to explore its efficacy, safety, and tolerability.

Eisai Launches Phase 2 Clinical Trial for Narcolepsy Treatment E2086 #United_States #Eisai #Nutley #Narcolepsy #E2086

🎬 Calling all L.A. entertainment professionals living with #narcolepsy or #idiopathichypersomnia! Join us for our 2nd annual meet-up at Gracias Madre in West Hollywood on Thursday, April 23 from 5:30-7:30 p.m.

➡️ RSVPs are not mandatory but appreciated: https://ow.ly/zv4h50YyAkl

When sleep won’t fix the exhaustion One family’s fight to raise awareness about narcolepsy

Most people think narcolepsy is just about being tired - but it’s so much more than that.

Rosa shares her powerful, lived experience in this National Post article - helping shine a light on what narcolepsy really looks like. 💬

Read More: nationalpost.com/sponsored/he...

#Narcolepsy #Sleep

An illustration of a grey haired older woman sound asleep in her bed.

After catching COVID-19 it seems all I do now is sleep. Excess sleep has been a part of my life ever since Narcolepsy came and grabbed me, but recovering from COVID has made it worse. Any creative activity ends up with me falling asleep for hours and hours. #narcolepsy #covid-19 #chronicfatigue

FDA Approves Wakix for Cataplexy in Pediatric Narcolepsy New FDA approval for Wakix (pitolisant) allows for the treatment of cataplexy in pediatric narcolepsy patients.

In honor of #WorldSleepDay, check out our story on the Food and Drug Administration’s (#FDA) recent approval of Wakix® (pitolisant) for treatment of cataplexy in pediatric patients with #narcolepsy 🔽

www.sleepwakeadvisor.com/news/fda-approves-wakix-...

[Alt: A drawing by New of a sleeping lamb (just the head) with a light blue background. The lamb's eyes are closed and they have big fluffy sparkly lashes. The lamb has a pink bow on their head and a blue collar with a silver jingle bell. There are stickers of "Zzz..." indicating sleep, a moon and stars, and a cute medical pill with hearts coming out of it. The caption reads, "Narcolepsy Awareness Day/Disabilities aren't laziness, but ableism is." Tagged @newhologram]

Today is Narcolepsy Awareness Day! I was diagnosed in 2013, so I want to talk about it.

May the spoons be with you 🥄💖🪽✨↓ 1/?

#narcolepsy #type2narcolepsy #spoonie #disability #chronicillness #neurologicaldisorder

Nostalgia: 10 Ways to Ruin Your Sleep This is a re-run (nostalgia) of our fun-spirited discussion about how to ruin your sleep. We play the entire episode, plus some added research from the last five years. Have you taken on the challenge to never sleep again? (Please don't) Recommendations - Abraham: Famous by Blake Crouch (https://www.penguinrandomhouse.com/books/790216/famous-by-blake-crouch/)   - Shane: Bugonia ( https://www.imdb.com/title/tt12300742/) Holidays (11 March 2026): - 311 Day - Debunking Day - Dream Day - Johnny Appleseed Day - National Funeral Director and Mortician Recognition Day - National Immune System Day - National No-Code Day - National Sofrito Day - Oatmeal Nut Waffles Day - Wash Your Nose Day - World Day of Muslim Culture, Peace, Dialogue, and Film - World Plumbing Day - Girl Scout Week - National Aardvark Week - National Bubble Gum Week Links and References:  - https://en.hdbuzz.net/better-sleep-better-function-new-study-links-sleep-quality-to-clinical-outcomes-in-huntingtons-disease/ - https://www.bbc.com/future/article/20250905-how-your-microbiome-affects-your-sleep - https://news.asu.edu/20260227-health-and-medicine-study-uncovers-another-reason-not-skimp-sleep - https://news.asu.edu/20260227-health-and-medicine-study-uncovers-another-reason-not-skimp-sleep - https://www.sciencedirect.com/science/article/abs/pii/S1389945725005441  - https://pmc.ncbi.nlm.nih.gov/articles/PMC6033330/#:~:text=Epidemiologic%20research%20has%20shown%20that,is%20related%20to%20sleep%20disorders 

📣 New Podcast! "Nostalgia: 10 Ways to Ruin Your Sleep" on @Spreaker #dei #goodsleep #health #insomnia #longevity #narcolepsy #psychology #ruinyoursleep #science #sleep #sleephabits #terriblesleep #wellness #whywedowhatwedo #wwdwwdpodcast

Our nation's TOP #NARCOTERRORIST ( #TERRORIST with #NARCOLEPSY ) leads the nation in observing #NationalNAPPINGDay ! EVERY day is #PresidentialNAPPINGDay for #COMMANDERinSLEEP #DOZEYDON !

📣🎓 Apply by April 1 for the 2026 Jack & Julie Narcolepsy Scholarship! 30 scholarships of $1,000 each to college-bound students living with #narcolepsy or #idiopathichypersomnia, with five dedicated to students with IH through our partnership with Hypersomnia Foundation.

🔗: https://ow.ly/n3zY50YnNJ3

⏳ After years of appointments, testing, and persistence from her parents, Leah Boyle was finally diagnosed with #narcolepsy at 11 years old. Now a trained Rising Voices speaker with Project Sleep, Leah shares her story to help shorten the path to diagnosis for others.

🎧 : https://ow.ly/a75p50Ylkuu

P sure not the 1st w/this take but-Having #Narcolepsy: Getting 1 of those shit #mha/ #bnha #quirks thats more of a condition than a superpower. "U can rly sleep anywhere/time??" "Yea! also rly cant control it or sleep @nite or produce enuff Orexin for healthy function!" #actuallynarcoleptic #N1 gn!

🌟 Rising Voices speaker Brooke Donnelly shared her #narcolepsy story with a psychology of sleep class at the University of Pittsburgh!

🎤 Ready to share your own story? Apply by March 1: https://ow.ly/tljw50YkOEg

Kro Social Links My own version of link tree for my socials.

Narcolepsy flare up today. 😪
No stream today. I should be able to be on tomorrow (Monday).
Thanks disability.

#narcolepsy #disabled #disability #spoonie

krolinks.carrd.co

In case you're wondering what it's like to be me:

Have you ever been awake for 72 hours? You know that feeling of utter exhaustion, full body pain, head throbbing, shaking frequently
It takes everything in your power to keep your eyes open

Now imagine that 24/7
#narcolepsy

🔥 Iris Vasconcelos is an invisible illness advocate, freelance writer, and blogger from Portugal who was diagnosed with #narcolepsy at age 28 after living with symptoms for 13 years.

🎧 Listen to Iris's full story on the Project Sleep podcast, wherever you get your podcasts.

NeurologyLive - Clinical Neurology News and Neurology Expert Insights NeurologyLive is your direct connection to the latest neurology news and interviews with expert neurologists in multimedia formats.

🚨 FDA Update in #Narcolepsy

The #FDA has accepted Takeda’s NDA for oveporexton (TAK-861), an oral orexin receptor 2 agonist for narcolepsy type 1 — and granted Priority Review.

🗓️ PDUFA date: Q3 2026

Read more: www.neurologylive.com/view/fda-acc...
#PriorityReview #SleepMedicine #Neurology #NT1

i have tried to find narcoleptic creators to motivate my progression despite my struggle and i swear their accounts end up being a ghost town after awhile. 😭
#narcolepsy

i am trying to stay away from caffeine to keep my iron levels from going any lower but i am so exhausted.
#narcolepsy

FDA kicks off review of Takeda's narcolepsy hopeful The FDA has started a priority review of Takeda's oveporexton for sleep disorder narcolepsy, setting up a decision in the third quarter of the year.

The #FDA has started a priority review of #Takeda's oveporexton for sleep disorder #narcolepsy, setting up a decision in the third quarter of the year.

pharmaphorum.com/news/fda-kic...

#FDA accepts NDA & grants Priority Review for Takeda’s oveporexton (TAK-861) for #narcolepsy type 1. Phase 3 trials show near-normal wakefulness. PDUFA target: Q3 2026. www.hcplive.com/view...

🩺 Connor Baker set out to build a career in healthcare as a surgeon, believing answers and treatment for #narcolepsy would make things easier. Instead, misunderstanding, doubt, and low awareness nearly shut the door on his future.

🎧 Hear Connor’s full story: https://ow.ly/QrHE50Yck7b

🐍What happens when sleepiness tightens its grip? In our latest podcast episode, Amanda Myers shares what it was like to push through constant fatigue while training for Olympic weightlifting before receiving a #narcolepsy diagnosis.

🌟 Want to share your story? Apply today: https://ow.ly/2CBj50Y8zXH