Eden Dora Trust | for Children with Encephalitis

In honour of #WorldEncephalitisDay, we want to highlight the need for greater understanding, support, and research into #Encephalitis.

N-ABLES works closely with the @edendoratrust.bsky.social, who support young people affected by Encephalitis.

More information:

What a read!

Inspiring to see the global reach and impact of World Encephalitis Day and the community driving awareness forward. Congratulations @encephalitisint.bsky.social

encephalitis.info/22-highlight...

#encephalitis #worldencephalitisday

Research Discovery: Autoimmune encephalitis is more common than previously thought, and it is often dismissed as stress or fatigue. It describes inflammation that disrupts normal brain function, sometimes caused by an infection, but not always.

Diseases Affected: Autoimmune encephalitis.

Key Findings: While the disease is rare (affecting approximately 14 out of 100,000 people annually), testing and increased awareness suggest that this may be an underestimate, because the symptoms overlap with other common conditions and may not be visible.

What’s Next? There isn’t one single test to confirm autoimmune encephalitis, but researchers are developing better methods of assessment and symptom tracking that could aid in diagnosis.

Yesterday, February 22, was #WorldEncephalitisDay, founded by our partners @encephalitisint.bsky.social. The Conversation shares that autoimmune #encephalitis is rare but may be more common than once thought, because it can be easily misdiagnosed. #EncephalitisAwareness

🧠 Yesterday was #WorldEncephalitisDay, but awareness never stops. Early detection saves lives.
See how teams identified rare HHV-6 encephalitis in a transplant patient, because vigilance always matters. 📖 doi.org/10.1097/IM9....

#AcadeMax #ZJU #Science #MedSky #BrainSky #AcademicSky

A minimal awareness graphic titled “World Encephalitis Day,” highlighting the importance of awareness, early recognition, and support for people affected by encephalitis.

World Encephalitis Day is a reminder to listen, learn, & support those affected, while spreading awareness about early recognition and care
🧠Awareness can lead to action, and action can save lives

#WorldEncephalitisDay #EncephalitisAwareness #InclusionMatters #AccessibilityMatters #accessibility

Thank you so much @cbituk.bsky.social for your birthday wishes 🫶
We love our relationship with you. Making a difference together is key 💙

#ABI #Encephalitis #ChildhoodEncephalitis #WorldEncephalitisDay #edtbirthday #12years #collaboration #TeamWork

“I’ve never heard of encephalitis” is common—until it isn’t. Sharing one post today can help someone spot symptoms sooner.

#TimeIsPrecious #WorldEncephalitisDay

Today is Feb 22:
#WildlifeDay
#WorldYogaDay
#MargaritaDay
#WorldEncephalitisDay
#ThinkingDay
#SupermarketEmployeeDay
#WalkingTheDogDay
#CaliforniaDay
#NileDay
#HeartValveDiseaseAwarenessDay
#BeHumbleDay
#GingerAwarenessDay
#MiracleOnIceDay
#WashingtonsBirthday

Clair Bennett I was first told to keep a diary by my doctors while I was in hospital, but I HATED it. I thought it was a stupid idea and I couldn't see how it was going to help me.

This #WorldEncephalitisDay, we’re sharing Clair’s story of resilience, adaptation, and the small tools that make a big difference after brain injury.

👉 Read her story and learn why sticking with a diary changed everything.

www.headway.org.uk/about-brain-...

Encephalitis - Causes Find out about the main causes of encephalitis, including viral infections and problems with the immune system.

as well as #rubella. These viruses can cause serious neurological complications, and in many cases, are preventable through vaccination. 🔴🧠
#Red4WED #WorldEncephalitisDay

www.nhs.uk/conditions/e...
@ecdc.europa.eu
www.ecdc.europa.eu/en/measles/f...

www.encephalitis.info/types-of-enc...

Graphic with a red background. Text reads: ‘Did you know?’ Below it, large white text reads: ‘Measles, mumps and chickenpox can all lead to a serious condition called encephalitis, which can damage the brain.’ In the bottom right corner, there is a white outline illustration of a brain with lightning bolts above it and a warning symbol below.

Measles, mumps, and chickenpox are 3 viruses that can cause encephalitis, an uncommon but serious swelling of the brain.

The MMRV vaccine protects you against all-3 of these viruses, as well as rubella. 🔴🧠
#Red4WED #WorldEncephalitisDay

Pyruvate kinase M2 modulates Japanese encephalitis virus replication in neuronal cells Japanese encephalitis is a neuroinflammatory condition caused by the Japanese encephalitis virus (JEV). Pyruvate kinase muscle isozyme M2 (PKM2) is a key modulator of glucose metabolism. The role of PKM2 in the autoimmune response and inflammation is now increasingly being acknowledged. However, its role in modulating virus replication has not been explored. In the current study, we have explored the role of PKM2 in JEV replication. Our results show that endogenous PKM2 expression is significantly upregulated in JEV-infected mouse neuroblastoma cells. Moreover, overexpression and knockdown...

Today is World Encephalitis Day. Research highlights the role of PKM2 in Japanese encephalitis virus replication and its influence on proinflammatory cytokines. Read more about these findings in JGV: https://doi.org/10.1099/jgv.0.002140
#WorldEncephalitisDay

Billboard has a red background and the words "Visit worldencephalitisday.org" below a QR code

Billboard has a red background and the words "Encephalitis is a growing global threat" below a QR code

Headshot of myself, a mid-thirties white man with a bushy gray-brown beard and wearing a light-gray winter cap, with the encephalitis video on the billboard in the background across the street. Billboard says: "DEBILITATING MISDIAGNOSED NEUROLOGICAL ENCEPHALITIS Dangerous however you spell it" beneath the Encephalitis International logo

For #WorldEncephalitisDay I took a pictures of the @encephalitisint.bsky.social video at Time Square's Billboard 1

World Encephalitis Day Talk Genetic defects of brain immunity underlying childhood Herpes simples encephalitis In partnership with the HIV Vaccine Trials Network (HVTN), we are starting off the 2025 Advancing Science Series w…

Don’t forget! In partnership with HVTN, we are hosting a talk on Encephalitis tomorrow! Visit the link for more details! #WorldEncephalitisDay #CureHSV #SilentNoMore #Herpes

herpescureadvocacy.com/event/world-...

Infographic poster

It’s 10yrs now since I was admitted to hospital extremely poorly with Meningoencephalitis.

I’m forever grateful for the quick and expert care I received at Croydon University Hospital, and especially to the receptionist in A&E who realised something was seriously wrong.

#WorldEncephalitisDay 🧠

10 years post-encephalitis onset, 5 years post-diagnosis, 2 years post-remission… and now, I can also say I stuck it out long enough for a part of me to make it into
Mayo Clinic’s MS/autoimmune neurology biorepository🤓✈️🩸👩‍🔬🧪

🌎Happy #WorldEncephalitisDay 🧠 #Red4WED 🌉 #YEG @encephalitisint.bsky.social

❤️🧠 Today is World Encephalitis Day! ⭐️ #Feb22 As an encephalitis survivor, I join this awareness day to shed light on how life-changing this diagnosis can be. Let’s spread awareness and support for all those affected 🙌 #WorldEncephalitisDay #EncephalitisAwareness

Palau de la Generalitat in red #Girona

Me, in red!

Thanks @gencat #Girona for illuminating El Pati de les Magnòlies in red, joining our city to the campaign for the #WorldEncephalitisDay #RED4WED.

Some of our patients are affected by this serious condition which needs visibility to raise public awareness. 🧠🔴 #Girona #Spain

Thank you so much Bob for helping raise awareness this #worldencephalitisday

Congratulation Dr Franklyn Egbe. We look forward to hearing from you with the updates and the results of your research #worldencephalitisday

Thank you @vectorbuilder.bsky.social for supporting #worldencephalitisday #encephalitisinternational

🧠 World Encephalitis Day

Did you know HSV is a leading cause of herpes simplex encephalitis (HSE), a rare but life-threatening brain inflammation? Early diagnosis & treatment save lives!

Let’s raise awareness of HSV’s impact & advocate for better care.

#WorldEncephalitisDay

Thank you Adam for sharing your story and raising awareness of encephalitis #red4WED #worldencephalitisday

Picture of me with World Enchanted Day T-shirt

At Manchester Piccadilly where you can hear me give a message about World Encephalitis Day. So privileged to help and with the great support of all those at @NetworkRail
#RED4WED #WorldEncephalitisDay

Donate www.justgiving.com/campaign/wor...

It’s #WorldEncephalitisDay 🎈Nearly ten years since we almost lost our youngest son, then 5, to this awful illness. #Red4WED

World Encephalitis Day is on Saturday, February 22, 2025, raising awareness for this serious brain condition. Join the movement by sharing stories, attending events, and supporting those affected! 🧠💙

#Disability #Encephalitis #Awareness #Brain #Health #WorldEncephalitisDay

On World Encephalitis Day 2025, we are sharing the stories of just some of the families we support 💙

Read some more family’s stories here 👇

edendoratrust.org/other-children…

#Encephalitis #ABI #WorldEncephalitisDay #EDTBirthday #Support #ChildhoodEncephalitis

It's #WorldEncephalitisDay, a day all about raising awareness for a condition that causes swelling of the brain. #DidYouKnow this condition can have several causes, such as an infection or an autoimmune response.

On World Encephalitis Day 2025, we are sharing the stories of just some of the families we support 💙

Read more here 👇

edendoratrust.org/other-childr...

#Encephalitis #ABI #WorldEncephalitisDay #EDTBirthday #Support #ChildhoodEncephalitis

A picture of me wearing a World Encephalitis Day T-shirt, ready for my weekly parkrun.

Today is #WorldEncephalitisDay. If you don’t know what that is, you’re not alone! Three years ago my daughter was struck down by this cruel and sometimes fatal illness that attacks and inflames the brain. She’s back living her life because of timely diagnosis. Awareness matters. 🧠
#Red4Wed