Provide financial assistance for essentials and basic stability when needed.
And ensure education remains accessible by providing necessary accommodations.
Posts by International Long Covid Awareness
Prioritize prevention to protect children from infections/reinfections.
Fund urgent research, clinical trials, & effective treatments.
Educate clinicians about Long Covid, including recognition of pediatric symptoms and comprehensive care for the full range of symptoms & issues.
Teal font reads: Long Covid Kids Teal map background Graphic: International Long Covid Awareness ribbon (teal, gray, black) Black font reads: Long Covid is destroying childhoods, futures, and lives. Act now at every level before the cost of inaction grows. B/W photo: Child wearing mask and "HELP!" written on hand Protect Us See Us Hear Us Cure Us #LongCovidKids
Parents, guardians, schools, healthcare systems, & governments:
Long Covid is destroying childhoods, futures, and lives.
Act now at every level before the cost of inaction grows.
🧵
#LongCovidKids #LongCovidAwareness
#LongCovid #COVID
Devin Russell, Co-Founder of Long COVID Foundation, shares his haunting experience living with #LongCOVID. Watch #MaskTogetherAmerica LC Defense Series III. Support Long Haulers 🩵🤍🖤❤️🩹🫂😷 masktogetheramerica.org/blog/long-co...
@lcawarenessint.bsky.social
A kind reminder that Covid and #LongCovid among the most studied disease entities in medicine history. There is a rich palette of biomarkers which can aid diagnosis and help design clinical trials. They are heterogeneous in an heterogeneous patient population. But they're there
I partnered with @Ninastorey.bsky.social to make this film as an editor and producer because I want to show what is like to live with #longcovid, including gaslighting.
Watch to support two long haulers:
👉 www.youtube.com/watch?v=aaVm...
👉 fb.watch/Gj_jvwH4Ga/
International Long Covid Awareness Today is the last day of International Long Covid Awareness Month, but for millions of people suffering from Long Covid, this is not the end of anything. It is ongoing, daily, and life-altering. Long Covid continues to impact peoples’ livelihoods and futures, yet the global response still falls incredibly short. Governments and healthcare systems must do more! We saw many buildings/landmarks lit teal for Long Covid, politicians speaking about Long Covid, proclamations, resolutions, and demonstrations. Awareness is important and creates a base of knowledge we hope continues to spread. What we need to see further is real and immediate action from our governments, health agencies, researchers, and medical fields! We need more than words. We urgently need prevention. We need care. We need tests. We need treatments. We need solutions! Long Covid must be recognized for what it is: an international public health emergency that needs dedicated funding and support. Grateful to all the Long Covid patients who have worked so hard to raise awareness this month. Your voices and efforts matter so much! A heartfelt thank you as well to the allies, caregivers, and supporters who stand beside this community, we appreciate you more than words can express! Long Covid awareness is every single day. For some, that means using whatever limited energy we have to push through the year to keep working on awareness projects behind the scenes or continuing to raise awareness in our daily lives, all while managing appointments and getting through each day with our symptoms. We’re starting planning for next year now, so please start sharing your ideas and suggestions for 2027 International Long Covid Awareness Day/Week/Month! Email your ideas to: LongCovidAwareness@gmail.com Solidarity
AWARENESS➡️ACTION
#LongCovid #CureLongCovid
#LongCovidAwareness
#LongCovidKids #Mask #COVID
#LongCovidHeartbeats
#OneInfectionAway
#LitForLongCovid
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
#LongCovidMakesUsOne
Mars se termine.
Mais la sensibilisation au #CovidLong ne s'arrête pas là !
Le Covid Long existe, et il change des vies...
Continuons à en parler.
Continuons à partager.
#LongCovidAwareness #ApresJ20
"Lois Marie Plote, 87, of Kirkland, Illinois, passed away peacefully in her home on Wednesday, March 18th, 2026, surrounded by her family, from complications of Long COVID."
We've lost another person to #LongCOVID. Rest in peace Lois 🕯️
www.legacy.com/us/obituarie...
Cardiovascular disease in Long Covid can kill. Incredible to have to say this six years into the pandemic. Drawing attention only to some disease manifestations (e.g. "neuroimmune disorders") is detrimental to the patient community as a whole. Everyone deserves care.
Clarisa is wearing a black POWECOM KN95, decorated with a mask chain, a student doctor white coat, with an olive color silk dress underneath it. Read interview by Julie Lam on Facebook and Instagram.
“It’s extremely isolating being the only masker at my school of future doctors, but not getting sick or further disabled outweighs the risk that comes with conforming to others.” Clarisa @peamilkstan.bsky.social is studying to be a doctor + teaching 😷-required ballet www.instagram.com/p/DWjOunIEbQc/
Today marks the end of #LongCovidAwareness Month. My thoughts and gratitude to everyone who have been advocating for #LongCovid. Thank you 💙🙏
Muted soft grey background radiating from dark to lighter with 2 Long Covid SOS life rings shown faintly. Long Covid SOS logo top centre with dark green Open Letter text underneath reads “Open letter: Patient-led charity, Long Covid SOS is calling for sustained funding for Long Covid research” in bold. “Six years after the start of the pandemic, people across the UK are still living with Long Covid. Many of your constituents remain unable to work, rely on ongoing NHS care, and face financial insecurity and uncertainty about their future. Long Covid has not disappeared. For many families it continues to reshape daily life, while also affecting workforce participation across the country.”
#LONGCOVIDAWARENESSDAY
Stop scrolling
1️⃣ Read our open letter
2️⃣ Use our template to write to your MP
3️⃣ Demand funding for #LongCovid research
Six years after the start of the pandemic millions are still living with Long Covid.
On #LCAD26 we ask UK policymakers for sustained funding for LC research
A grey and teal awareness ribbon with black text "LONG COVID" on a teal background with light exposure, white text on a black rectangle "LONG COVID AWARENESS DAY | March 15," below are statistics about LONG COVID also white text on black gradients "1 in 3 acute infections lead to LONG COVID, Y et al for Open Forum Infectious Diseases, 2025," "400 Million people worldwide are living with LONG COVID, Ziyad Al-Aly et al. published in the NIH: National Library of Medicine, 2024," "LONG COVID is the most common chronic illness in children, Gross et al. for JAMA Pediatrics, 2025." Black text outlined in white "All people have worth. Nobody should be left behind."
White text on black gradient "Help stop the erasure of LONG COVlD:" black text on white rectangles below "1. Contact your representatives to recognize LONG COVID Awareness Day 2. Advocate for the funding of LONG COVID Research & Clinics 3. Support the reinstatement of the LONG COVID Advisory Board & Health Equity Advisory Committee" flanked with strips of grey and blue ribbon outlined in white below black text "Visit bit.ly/Fight4HealthJustice or the link in our bio to access public comment letter templates. Each email, phone call, and letter helps! Change starts with every one of us!"
White text on black gradient "Health Justice Toolkit by MaskTogetherAmerica" next to a teal QR code framed by a white square below black text on a white rectangles "bit.ly/Fight4HealthJustice" A laptop with an envelope and red circle notification with "1" inside black text on a white rectangle "Access the toolkit above to take action towards fighting discrimination in health care TODAY!" "Each email, phone call, and letter helps! Change starts with everyone one of us" next to an orange phone with blue speech bubbles in a dark blue circle, the MaskTogetherAmerica logo an emoji with black sunglasses smiling under a white N95 surrounded by the American Flag, black text on a white rectangle "Follow us at @MaskTogetherAmerica to support LONG COVlD visibility and advocacy."
For #LongCOVIDAwarenessDay, share the impact COVID on all ages, contributing to ~400 million Long COVlD (LC) cases & growing. Fight for LC representation, inclusive treatment and research, and government support by using our Health Justice Toolkit! To start: #MaskTogetherAmerica
A teenage girl with long blond hair is holding her assistance dog - a tan and white spaniel. She is wearing a dark jacket and a blue hat. She is smiling. They are standing with a road in the background.
“Before I got ill I was active and independent"
Molly, aged 17, describes things many people never have to think about, standing up, concentrating, eating, or leaving the house, can suddenly become incredibly difficult.
www.dorsetecho.co.uk/news/2593333...
#LongCovidKids #LongCovidAwareness
Watch #MaskTogetherAmerica #LongCOVID Defense Series III
masktogetheramerica.org/blog/long-co...
@longcovidaragon.bsky.social @cleanairie.bsky.social @elisaperego78.bsky.social @lcaireland.bsky.social @lcawarenessint.bsky.social @michael-hoerger.bsky.social @drcorthals.bsky.social
A screenshot from the Niagara Falls livestream feed, showing the falls lit up in teal and gray.
Niagara Falls (#LitForLongCovid earlier this evening):
#LongCovidAwareness #LongCovid #ILCAD2026 #LongCovidAwarenessDay #LongCovidHeartbeats
@lcawarenessint.bsky.social
Every day is Long Covid Awareness Day! Today, March 15, the world comes together for International Long Covid Awareness Day. A day centered on raising awareness of Long Covid and amplifying the voices of those suffering from Long Covid. It’s a day for patients, allies, researchers, and healthcare workers to unite across borders to raise awareness together about Long Covid and push for prevention, recognition, protective policies, funding, research, patient-led research, proper testing, validated biomarkers, and diagnosis, equitable care, global equity in care and research, disability support, workplace and school accommodations, education for clinicians, and the urgent development of effective treatments and a cure. This day is about pushing for all of these priorities and so much more! Ways to participate today and throughout Long Covid Awareness Week: ➡️ Mask up in public spaces (if you can) to help prevent infections and reinfections. ➡️ Participate in social media activities: Share your story or lived experience Use the Long Covid awareness profile ring for your profile photo Boost and repost Long Covid patient voices ➡️ Join an online event: attend a Space, webinar, panel, or patient discussion ➡️ Attend a demonstration ➡️ Wear Long Covid awareness colors: teal, gray, and black ➡️ Take photos of buildings and landmarks illuminated in Long Covid colors, or light up your home or business, and share them online ➡️ Support the community (if you are able) by donating to mutual aid requests, research, or advocacy groups ➡️ Check the many actions and events on social media and the ILCA website calendar: https://www.longcovidawareness.life/calendar Remember to hashtag all your posts! There are several hashtags; some of the main ones are: #LongCovid #LongCovidAwareness #LongCovidKids #LongCovidAwarenessDay #LongCovidHeartbeats #OneInfectionAway #LitForLongCovid #ILCAD2026
Ways to participate today and throughout Long Covid Awareness Week:
#LongCovid
#LongCovidAwareness
#LongCovidKids
#LongCovidAwarenessDay
#LongCovidHeartbeats
#OneInfectionAway
#LitForLongCovid
#ILCAD2026
Today we remember those who have lost their lives and are no longer here with us due to Long Covid. They were here. They were loved. We miss them. We think of them every single day. We speak their names by refusing silence and speaking the truth about COVID and Long Covid. We carry their memory forward in every call for truth, in every act of prevention, in every fight for those living with Long Covid. REFLECTION • PREVENTION • ACTION Gray background and International Long Covid Awareness ribbon B&W Photo of tombstones of those lost to due to Long Covid including suicide due to having Long Covid Tombstones include font that reads: Long Covid and first names of those lost Fiqah, Winnie, Maria, Derrick, Leslie Tombstones: Long Covid demonstration in WA state on 3/11/2026 2 Long Covid kids participated in making them Gray tombstones with black font reads Long Covid Fiqah Maria Leslie
B&W Photo of tombstones of those lost to due to Long Covid including suicide due to having Long Covid Tombstones include font that reads: Long Covid and first names of those lost Fiqah, Winnie, Maria, Derrick, Leslie
Tombstones: Long Covid demonstration in WA state on 3/11/2026 2 Long Covid kids participated in making them Gray tombstones with black font reads Long Covid Fiqah Maria Leslie
International Long Covid Memorial Day
💔
#LongCovid #COVID
#LongCovidAwareness
#LongCovidKills
#LongCovidMemorialDay
Legendary New York DJ, author, radio host Bobbito García @koolboblove.bsky.social shares his experiece as a caretaker of an immunocomprised Long Hauler for #LongCOVIDAwarenessDay.
Read interview by @msjulieslam.bsky.social @lcawarenessint.bsky.social
www.instagram.com/p/DVy_xYokdlA/
This International Long Covid Awareness Day, we’re still urging leaders, researchers, and healthcare to act.
Read our press release ⬇️
#LongCovidAwarenessDay #LongCovidAwareness
#LongCovid #LongCovidKids
#LongCovidHeartbeats
www.einpresswire.com/article/8988...
I will be speaking virtually about #LongCovid for @togetherwemask.bsky.social
LC Defense Series
5:45pm EST. 4 March 2026
Registration link and programme here
masktogetheramerica.org/blog/long-co...
Photo to Anneliese Dodds Labour/Co-operative, Oxford East To ask the Secretary of State for Work and Pensions, what assessment he has made of the potential impact of long COVID on the number of young people who are not in education, employment or training. Photo of Andrew Western The Parliamentary Under-Secretary of State for Work and Pensions No assessment has been made specifically on the potential impact of long COVID on the number of young people who are not in education, employment or training. DWP has commissioned the Right Honourable Alan Milburn to author a report that will seek to understand the drivers of the increase in the number of young people who are not in education, employment, or training and to investigate the root causes of this rise in economic inactivity. The latest available annual data on the number of young people who are NEET by main health condition published by the DWP in November 2025 can be found at: The employment of disabled people 2025 - GOV.UK - Table NEE002. Blue image with white writing. Unemployment: Young People Department for Work and Pensions written question – answered at on 2 March 2026. Long Covid Kids logo in the bottom corner.
🩵 Invisible to policy, visible in children’s lives.
We welcome and thank @anneliesedoddsmp.bsky.social MP for raising the question in Parliament about the impact of #LongCovid on young people who are not in education, employment or training #NEET. This conversation matters.
#LongCovidAwareness
Graphic with teal background promoting International Long Covid Awareness Day. Text reads: International Long Covid Awareness Day - March 15. Vancouver, Calgary, Toronto, Montreal. Down the left side, there are three photos of people speaking at last year’s Long Covid Awareness Day events.
On March 15, we invite you to join us for International Long Covid Awareness Day in Vancouver, Calgary, Toronto & Montreal.
Hear from experts and people with Long Covid, and see our public awareness project featuring personal stories.
Details: covidsociety.ca/priorities/l...
#LongCovid #ilcad2026
LCDefense III
4:35pm Delphine Crespo @longcovidaragon.bsky.social
5:10pm Dr. Ciara Steele @cleanairie.bsky.social
5:45pm Pamela Morrison @lcaireland.bsky.social
6:20pm Elisa Perego PhD @elisaperego78.bsky.social
6:55pm Angela L. @lcawarenessint.bsky.social
7:35pm Devin Russell Long COVID Foundation
#Wales
longcovidkids.eaction.org.uk/awarenessday...
#LongCovidKids #LongCovidAwareness #LongCovid
🚨LCDefense III
4:35pm Delphine Crespo @longcovidaragon.bsky.social
5:10pm Dr. Ciara Steele @cleanairie.bsky.social
5:45pm Elisa Perego PhD @elisaperego78.bsky.social
6:20pm Pamela Morrison @lcaireland.bsky.social
6:55pm Angela L. @lcawarenessint.bsky.social
7:35pm Devin Russell Long COVID Foundation
#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness
jamanetwork.com/journals/jam...
#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness
jamanetwork.com/journals/jam...
You can also find the video here:
www.youtube.com/playlist?lis...
#LongCovidAwarenessMonth
#LongCovidHeartbeats
#LongCovid