Posts by Unremarkable Me
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www.unremarkableme.com/post/when-th...
Thank you🫶 It means a lot. I hope it helps others too navigate this tricky subject. X
Still waiting on the new hEDS and HSD criteria? You’re not imagining the delay.Here’s what’s happening, why it matters, and what to hold onto meanwhile.
#EDS #hEDS #HSD #ChronicIllness #InvisibleIllness #PatientVoices #UnremarkableMe
www.unremarkableme.com/post/waiting...
Talking to children about chronic illness doesn’t have to be heavy or frightening. Calm truth, gentle language, and a reminder that love doesn’t disappear when bodies get complicated.
#ChronicIllness #KidsAndHealth #UnremarkableMe #hEDS #EDS #ChiariMalformation
www.unremarkableme.com/post/explain...
Hello my chronically ill friend, Thank you it means a lot. Check out my website it’s full of more stories and helpful tips and links. There are no adds unremarkable me has never been about money, I crated it for others like us. I know how hard it is being so isolated. Stay strong 🫶
Stay strong my chronically ill friend 🫶
Chronic illness isn’t a journey.
It’s a roller coaster with no seatbelt, no exit, and a very tired goblin holding on anyway.
#ChronicIllness #InvisibleIllness #SpoonieLife #UnremarkableMe #StillHere #ChronicPain #EDS #DisabilityVoices #hEDS
www.unremarkableme.com/post/the-emo...
Doctors and patients are not opponents. We are allies inside a system under strain. Saving the NHS means standing together, telling the truth, and backing each other when it matters most.
#SaveTheNHS #EveryDoctor#chronic-illness #StrongerTogether#UnremarkableMe
www.unremarkableme.com/post/saving-...
Thank you Stay strong my chronically ill friend. 🫶 if you ever just want to vent, 🥹 Unremarkable Me will always be there to listen xx
Chronic illness doesn’t come with neat story arcs. Sometimes there’s no crisis. No recovery. Just the long middle where staying alive takes everything you have. #EDS #NHS #ChiariMalformation
#ChronicIllness
#InvisibleDisability
#UnremarkableMe
www.unremarkableme.com/post/i-didn-...
"I stopped trying to fit in. I stopped apologizing for being ill. & equally important, I learned to #AskForHelp. I learned there are many ways to be seen & heard in the world. I learned the most important lesson of all: #trusting my own goodness.": buff.ly/lRtIwku
#spoonie #ChronicIllness #SelfLove
#UnremarkableMe #Chronicillness #EhlersDanlos #ChiariMalformation #hEDS #EDS
www.unremarkableMe.com
www.UnremarkableMe.com/Music
#UnremarkableMe #chronicillness #EDS&Chiari #hEDS
UnremarkableMe.com #hEDS
#EDS&Chiari
#ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
UnremarkableMe.com #hEDS
#EDS&Chiari
#ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
#UnremarkableMe #hEDS #EDS #EDS&Chiari
Beauty tips, chaos, and chronic illness—because glam doesn’t stop just ’cause your joints do.
#ChronicIllness #BeautyWithEDS #EDS #hEDS #DisabilityStyle #SpoonieBeauty #UnremarkableMe
www.unremarkableme.com/post/beauty-...
Wobbly spine? Brain too low? Same. 💀 Here’s my journey with Ehlers-Danlos Syndrome and Chiari Malformation—because one weird diagnosis clearly wasn’t enough.
#EDS #ChiariMalformation #ChronicIllness #UnremarkableMe #hEDS #Chiari #Chronicillnessawareness
www.unremarkableme.com/post/my-jour...
Denial: The worst timeshare you’ll ever inherit. Comes with guilt, excuses, and a complimentary minibar of lies. No beach. Just burnout.
#ChronicIllness #DisabilityHumour #UnremarkableMe #SpoonieLife #EDS #MCAS #POTS #InvisibleIllness #Chiari #hEDS
www.unremarkableme.com/post/denial-...
#Unremarkableme #EDS #hEDS #EDS&Chiari
When inpatient and outpatient teams stop working together, patients get caught in the crossfire. It’s not just miscommunication—it’s system failure.
#ChronicIllness #HospitalCare ##EDS&Chiari #EDS #hEDS #UnremarkableMe #NHS #chiariMalformation
www.unremarkableme.com/post/the-bat...