It's been a journey of learning, but I'm managing it one day at a time! Sending strength to anyone else navigating a chronic illness. 💜
#AOSD #AdultOnsetStillsDisease #ChronicIllness #Autoimmune #Arthritis #HealthUpdate
In a surprise turn of events, I mopped the living and dining rooms. Rinsed it even.
That was unexpected. Not complaining though.
#Disabled
#chronicpain
#trigeminalneuralgia
#CRPS
#YesThoseAreBothSuicideDiseases
#AOSD
I didn’t nap today!*
#Disabled
#Chronicpain
#Trigeminalneuralgia
#AOSD
#CRPS
#EffMe 🤦♀️
*Don’t call me tomorrow.
I did a super mega amazing power pack at some point and I think a “follow all” on all my followers would be super helpful. I have this weird wrist thing because I’m #disabled 🙄 and going through each one is taking a while. I’m gonna do it though.
#chronicpain
#TN
#CRPS
#AOSD (wrist thing)
Me: Where do I have to go today?
Also Me: The kitchen.
Me Again: Better rest up then.
#Disabled
#chronicpain
#chronicillness
#TrigeminalNeuralgia
#CRPS
#AOSD
#FML
Don’t sit down.
Don’t sit down.
Don’t sit down.
Don’t sit down.
#Disabled
#chronicpain
#chronicillness
#TN #CRPS
#AOSD
Reason 8764 why being #disabled sucks. I can’t sleep. That’s meaningless because I don’t work. So I’m beholden to no one to be somewhere and alert tomorrow.
And yet the guilt remains…
#chronicpain
#trigeminalneuralgia
#CRPS
#AOSD
And sometimes “Y”.
I may be showing up as new to some people because I followed a Disability Starter Pack. They should have something like that for our lives. Like a swag bag.
I advocate for social equity in medical care.
#Disabled
#ChronicPain
#TN
#CRPS
#AOSD
and a little #cPTSD because why not?
I have #TN and #CRPS but rn my #AOSD is like “wtf I’m not MIA. Here, hold my mmj.” And if you get that you must be a #CPP and know humor can be a distraction. I wish #Dateline was on. Not that it’s humorous. I’ll just stop now.
#Disabled
#ChronicPain
Is it tomorrow if for me it’s still today? The prednisone is making a rare appearance. I’ll be grumpy, hungry and sleep deprived.
Were those 3 of the elves?
#Disabled
#ChronicIllness
#AOSD