Thank you to Heath for standing up for #arachnoiditis sufferers, a rarely discussed and thus far not curable disease of the spinal cord causing mild to extreme pain and degeneration of multiple neurological functions.

youtu.be/BECkLGm8Xn4?... #arachnoiditis

Dealing with #chronicpain from #arachnoiditis and #tarlovcysts on top of getting older and digesting the daily horror of America the corrupt and the moral bankrupt has been too much to bear. When your whole life has been outdoors, gardening, growing, moving, then one day you can't. Sorrow.

Most doctors, not some. Especially true for those suffering form spinal inflammatory disease such as #arachnoiditis. Find a doctor willing to listen and learn. #illness #medical #spine

China Arachnoiditis Market Size, Growth Report 2035 China Arachnoiditis Market is expected to grow from 119(USD Million) in 2024 to 248 (USD Million) by 2035. The China Arachnoiditis Market CAGR (growth rate) is expected to be around 6.903% during the ...

🧠 Tackling rare neuro pain! China’s arachnoiditis market gains traction in neurological care 💊🇨🇳
#Arachnoiditis #NeuroCare #RareDisease #ChinaHealth #PainManagement 🧬

www.marketresearchfuture.com/reports/chin...

Woman, 33, Dies of Genetic Disorder a Doctor Said She Was Faking Stephanie Aston, who had Ehlers-Danlos Syndrome, died at age 33 following a misdiagnosis from a doctor who claimed she was faking her illness

#ChronicPain is a thief that steals so much of your life & health, & many times, ppl who have it aren’t taken seriously enough bc it’s an #invisibledisability. #Spoonie 💜🦓🥄 #Disability #ChronicIllness #CRPS #EDS #Arachnoiditis Here’s one of many examples:

McGill Pain Index / Pain Scale for CRPS The McGill Pain Index is a scale that shows the rating or level of pain. It was originally developed as the McGill pain questionnaire back in 1971 at the McGill University by two researchers, Ronald Melzack and Warren Togerson. The original McGill pain questionnaire in 1971 had three major classes of word descriptors, which were: • Sensory - Sensitivity, skin colour or temperature changes • Affective - How it affects you as a sufferer (e.g. fear, tension) • Evaluative - Finding where the pain is The McGill pain questionnaire also had an intensity scale to determine the properties of pain experience of sufferers. (Melzack, R. 1975)| McGill Pain Index - Burning Nights CRPS Support There are a large number of different pictorial versions of the McGill Pain Index for CRPS, the Burning Nights CRPS Support version is below. McGill Pain Scale CRPS Amputation of a finger/toe Fibromyalgia Non-terminal cancer After shingles nerve pain Arthritis Unprepared Childbirth Prepared Childbirth Ankylosing Spondylitis 黔鮮群器 Toothache Fracture Sprain 10) CRPS, is classed as the most painful chronic pain condition that is known. It reaches approx 42 out of 50 on the McGill Pain Scale, higher than non-terminal cancer, higher than amputation of a finger without anaesthesia... In some research it has been said that CRPS Type Il can reach as high as 47 out of 50. So, why is there not much really known about this terrible chronic pain condition? Why are people suffering from this burning, stinging pain? The McGill Pain Index for CRPS is an important part of chronic or persistent pain evaluation as well as evaluating Complex Regional Pain Syndrome. It is also a good way of showing those living with CRPS and their families, friends and loved ones that not only does CRPS exist, but is an extremely painful chronic pain condition.

It totally does! I have #CRPS , #EDS , #Arachnoiditis ,& many other co-morbidities. CRPS is the most painful condition known to medicine, per McGill University Pain Index. #ChronicPain #ChronicIllness #Disability #DisabilityRightsAreHumanRighta

Other kinds of #InvisibleDisability: #ChronicPain #ChronicIllness #Arachnoiditis #EDS #HerniatedDiscs #Immunocompromised folks, #MentalHealth conditions, even those w/ #mobility conditions, bc we're good @ masking, & society's even better @ ignoring us.Ty for bringing attention 2 this. #Disability 💜

Getting back to normal….. What is normal? I guess each of us would answer that question differently. Even using the word “normal” in my title…. I don’t know. I’m not totally at ease with it.  But, be that as it may, he…

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis #lumbarlordosis

painintheBECK Pain + Perserverence + A Sense of Humor= Living Each Day, One at a Time

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #phantosmia #dextroscoliosis #thoracickyphosis #lumbarlordosis #gratefulalways

#diabetes, #T1D, #AIDS, #HIV, #adenomyosis, #coeliacdisease, #leukodistrophy, #TrigeminalNeuralgia, #Arachnoiditis, #asthma, #HereditaryAngioedema, #spondylitis, #axSpA, #nraxSpA, #axialspondyloarthritis, #ankylosingspondylitis, #hashimotos, #brainInjury,

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painintheBECK Pain + Perserverence + A Sense of Humor= Living Each Day, One at a Time

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis #lumbarlordosis
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