Excited to share this new resource from the Michael J Fox Foundation for care partners. It’s filled with stories and practical advice for those caring for and with Parkinson’s disease viewer.joomag.com/care-partner...
#pd #parkinsons #yopd #chronicillness #carepartners
#GlobalPatientSurvey #PatientExperience #Lymphoma #CLL #PatientVoice #LivedExperience #PeopleCentredCare #EquityInCare #HealthResearch #PatientInsights #ExperienceData #LymphomaCommunity #CarePartners
Trust me... In this 22-minute, 26-second film, you will fall in love with the film’s star, Dan, and his entire care team…
And you'll also see the compassion of the filmmaker, who himself lost his dad to FTD. Beautiful, all around. 💜
#FTD #CerebralPalsy #CarePartners #Alzheimers #dementia #ENDALZ
Don't miss a special ARC Talks webinar for #Caregivers & #CarePartners, Oct 15 at Noon ET!
Hear practical advice, self-care tips, and real-life strategies to help make daily life a little easier for both you and the person you care about.
Register today: us02web.zoom.us/webinar/regi...
Fall is in the air! Browse through our September #PD newsletter (conta.cc/4lJLidq) for a list of unique programs for #PwP & #CarePartners! Make sure to secure a seat at our annual #Parkinson's Disease symposium.
Click here to receive future newsletters: www.bidmc.org/centers-and-...
It's hard to get patients and care partners sharing access to the portal... but there are some new recommendations in the latest research.
Read the Coalition for Care Partners' latest issue brief: publichealth.jhu.edu/sites/defaul...
#CarePartners #MedSky #PatientOutcomes
📢 Reminder
There will be no Zoom meeting tonight.
Meetings will commence in September.
If you need assistance, contact us directly at (401) 785-3340
#RISLTCOP #LongTermCare #CareMeeting #CarePartners #RhodeIsland
ZOOM MEETING UPDATE:
For the months of July and August, the Rhode Island State Long-Term Care Ombudsman Program will be pausing our monthly Zoom Meetings.
Meetings will commence in September.
We look forward to seeing you again!
#RISLTCOP #LongTermCare #CareMeeting #CarePartners #RhodeIsland
Q1: I’ve been involved with patient advocacy since 2019. After my mom passed, I needed to make sense of it all. I found the #Head2Hill event with @braintumor.org and it completely changed everything. Since then I’ve been focused on building a better future for patients & #carepartners. #btsm
💙 As caregivers, we already intuitively know that environmental risk is modifiable. We change our loved ones' environments constantly, reducing stressors and creating supportive spaces.
Once again, science is catching up to what caregivers already figured out (3/3)
#CarePartners #MentalHealth
Care Partner Burnout: Supporting Your Loved One While Taking Care of Yourself
Monday, May 19th 10 AM PT / 11 AM MT / 12 PM CT / 1 PM ET
#myositis #caregivers #carepartners
📣 Next week!
Join us next Wednesday, May 21, for a FREE webinar exploring the changing roles of #carepartners.
Together, we’ll talk about the challenges, the resilience, and the tools that can help you find your footing again.
🔗 Register now: parkinsoncanada.zoom.us/webinar/regi...
#Parkinsons
photo of yellow chick on grass
📩Get the FREE Dementia Connections Spring newsletter delivered right to your inbox. Sign up at www.DementiaConnections.Org or on Substack.
#dementia #CarePartners #Alzheimer's
Care Partner Webinar April 24th on Children and Parkinson's. Learn more and register for free: www.worldpdcoalition.org/4thcarepartner #CarePartners #Parkinsons #ParkinsonAwarenessMonth
Care Partner Webinar April 24th on Children and Parkinson's. Learn more and register for free: www.worldpdcoalition.org/4thcarepartner #CarePartners #Parkinsons #ParkinsonAwarenessMonth
"To care for those who once cared for us is one of the highest honors. Aging is not just about the passage of time. It is about the deepening of the human experience." -Tia Walker
#aging #carepartners #support
"This study aimed to characterize the symptoms managed by #MultipleSclerosis #CarePartners, recognize relationships between #SymptomManagement difficulty & other aspects of the caregiving role, and identify supplemental sources of care-giving #support used by care partners."
doi.org/10.7224/1537...
"Too often, the therapeutic choices that the #patients or the #CarePartners have to make about how invasive to be or when to stop need to be guided by a nuanced understanding of individual patient values": buff.ly/SKfNq5P
#PatientCare #caregiving #healthcare
Via Catalyst
The image is a Facebook post from the account Lamar University - Department of Speech & Hearing Sciences. Below the text-based message are two images. The top image has a title slide for a presentation to the left and an image of a woman to the right. The title slide reads, "Living with Dementia: A Qualitative Exploration of the Caregiver's Communicative Experience -Arpitha Susan Sherry - Department of Speech and Hearing Sciences, Lamar University." The second image is a tiled view of four women. Each is smiling. The text above both images reads: "Congratulations, Arpitha Sherry! Ms. Sherry, an MS-SLP student, successfully defended her research project, 𝘓𝘪𝘷𝘪𝘯𝘨 𝘸𝘪𝘵𝘩 𝘋𝘦𝘮𝘦𝘯𝘵𝘪𝘢: 𝘈 𝘘𝘶𝘢𝘭𝘪𝘵𝘢𝘵𝘪𝘷𝘦 𝘌𝘹𝘱𝘭𝘰𝘳𝘢𝘵𝘪𝘰𝘯 𝘰𝘧 𝘊𝘢𝘳𝘦𝘨𝘪𝘷𝘦𝘳𝘴’ 𝘊𝘰𝘮𝘮𝘶𝘯𝘪𝘤𝘢𝘵𝘪𝘰𝘯 𝘌𝘹𝘱𝘦𝘳𝘪𝘦𝘯𝘤𝘦𝘴. (celebration emoji) 𝐄𝐱𝐜𝐞𝐥𝐥𝐞𝐧𝐭 𝐰𝐨𝐫𝐤, 𝐀𝐫𝐩𝐢𝐭𝐡𝐚! Many thanks also go to her committee members, Dr. Karen Whisenhunt Saar & Ms. Chelsea Lyles from Lamar University and Dr. Laura E. Arrington from the University of Louisiana at Lafayette UL Lafayette Communicative Disorders Department, for supporting her through this research process."
What a week!
I’m so proud of my student, Arpitha Sherry, who successfully defended her master's research project today!
#dementia #StudentResearch #SLPeeps #CogComm #CarePartners #Qualitative
Thanks, @learrington.bsky.social & @talkthreads.bsky.social for serving on the committee!
📱 SZ Care Series Tip 4
Science confirms: consistent social connection = better outcomes in schizophrenia. Just being present - through regular calls, texts, or visits - makes a huge difference.
Care partners: your steady presence matters more than you know 💫
#Schizophrenia #CarePartners
My work life is better b/c of my amazing collaborations! I am thankful today in particular for my occupational therapy friends and colleagues. Congrats Kasey Stepansky, Elena Donoso Brown, and team on this new publication! #openaccess #strokerehab #carepartners
www.frontiersin.org/journals/reh...
Interested in aging research and multiple chronic conditions (MCC) related issues ? Apply to the Aging Initiative IP4 #Patients and #carePartners Panel Advisory Here is the link: (IP4) arcsapps.umassmed.edu/redcap/surve...
more on the #HCSRN #AgingInitiative theaginginitiative.wordpress.com
Editorial: Far More Than Burnout and Burden: Gerontological Nurses and Care Partners.#Olderadults #Geronurses #Carepartners #Burnout #Burden
Shout out to my mom!
...who signed a photo release for this @jmirpub.bsky.social paper about #sharedaccess (proxy access) in patient portals.
Hot tip: w/permission, you can upload custom images to JMIR! #mychart #olderadults #carepartners @amiainformatics.bsky.social
www.jmir.org/2024/1/e49394/
We are thrilled to support the @LupusResearch Breakingthrough Gala this year by sponsoring a table for passionate #LupusWarriors, #Carepartners, advocates and researchers who amplify the #PatientVoice. #LADAorg @caringforlupus.bsky.social @infusioncenter.bsky.social @lupuschat.bsky.social
This is a photo of the cover of the Nov 2023 IJMSC. It shows a lighthouse on a promontory with the aurora borealis in the background.
#MS #CarePartners
Have you checked out all the free research articles from the Internationsl Journal of MS Care?
November 2023 issue devoted to caregivers.
meridian.allenpress.com/ijmsc/issue/...
Shared study findings with participants & others at a community dissemination event at
@CHASSCenter
. Thanks to FAM-ACT participants who attended & gave feedback on the #CHW delivered FAM-ACT #DSMES program for adults w/#type2diabetes & #carepartners
