a close up of a girl with long red hair and fox ears laying down . ALT: a close up of a girl with long red hair and fox ears laying down .

Evening my dear Kindred

No stream tonight as you can see think I caught a bug from a roommate or its due to some of my meds interacting with a new one I was put on

Feeling really off at the moment and really in no mind to stream,

I'm sorry my darling Kindred
#ChonicPain | #ChronicIlless | #VTuber

#chronicilless

On bad days I use my massage ball on the trigger points.

2-panel, "holding back" meme. Panel 1 shows a person reaching for a bubble reading "the man she loves." Panel two shows a blob-person labeled "chronic illness making her terrified that she'll be a burden to him" holding the person away from a bubble reading "true reunion."

#ownVoices #disabliityrep #chronicilless

someecards "You don't know what fatigue is until you've had to rest after taking a shower"

If you know, you know. 🤪😄😉
What tips do you have for people struggling with this?

#chronicilless #raredisease #EDS #ehlersdanlossyndrome #dysautonomia #POTS #healthmeme #meme #memes #jokes

Who are your favorite chronic illness or caregiver creators on Instagram right now?
Drop their handles below. Let’s build a list people can come back to anytime they’re looking for support, inspiration, or just someone who gets it.

#chronicilless

Have had a really shitty 2.5 months thanks to #RA, including having to cancel a visit to see my dad and family on NY. Yesterday the Dr gave me hope again with plans to try a new med. #chronicilless sucks.

#disability #chronicpain #chronicilless #ehlers-danlos #dysautonomia #fibromyalgia

Insurance companies and amoral doctors are match made in Hell.

#chronicilless #chronicpain #chronicillnessawareness #disability #disabilityawareness #CPP #patientadvocacy

Be Careful Who You Believe! I had a very concerning conversation on social media across yesterday and today. I made a post (see below) and the reply poster (I'll call him RP from here on) told me my exercise regime was wrong, according to his doctor. Not only that, what he told me to do was COMPLETELY incorrect for my situation. What concerns me is people new to chronic illness life may be persuaded by him to follow his advice which may be COMPLETELY contraindicated for those people.

Always make sure you receive advice from QUALIFIED practitioners who ALSO know YOUR specific medical situation.

#ChronicIlless #Exercise

I have to admit I’ve been kind of hiding from books on #disability & #chronicilless
But I’d like to learn what people’s go-to books are & why?

I am kinda looking for recommendations more about that below

Maybe #booksky can help, too?

Very nice that when I exercise and my heart rate goes up too high I get heartburn. Apparently it’s a #POTS thing. Trying to figure out why it happens though. #ChronicIlless

This is #LongCovid: yesterday I socialized with 2 people for an hour at my house. Today I have a constant headache, #brainfog, difficulty finding words, trouble with spelling, and extreme fatigue. It's worse since my reinfection in Nov, but I'm going on 3 years of LC. #pwME #NEISvoid #chronicilless

Visible says it’s a 2 day (that I won’t have much energy & need to be very careful) &, from how I’m feeling, I’d say that’s spot on. I’m glad the app is working but damn, y’all, I had plans.
#me/cfs & #chronicilless sucks

.

It's been one of those freaking days #chronicilless #chronicpain #fibromyalgia

RibbonRx Raising Awareness About Life

I don’t blog anymore due to my cognitive issues, but if you’d like to read about my journeys with #mentalhealth, #chronicilless, #chronicpain, or specifically ##endometriosis, #infertility, #prolactinoma, #POTS, #aneurysm, or #spinalcsfleak, #csfleak… I have a blog at ribbonrx.com!

So vulnerable people are not protected at all .
They are not taken into account when decisions are made .
They are the first ones to extremely suffer in all adversities that are being inflicted upon human beings in all over the world .
#chronicilless