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Supporting Healthcare Heroes UK (SHH-UK)
Supporting Healthcare Heroes UK (SHH-UK)
@shh-uk.bsky.social
1 month ago
Post image

💙 A healthcare worker’s life changed by Long COVID.

📖 Read Star’s Story
👉 Link in bio or visit: shh-uk.org/stars-sto...

#LongCovid #LongCovidAwareness #PostCovid #LongCovidRecovery #ChronicIllness #CovidLongHaulers

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
1 month ago
Widespread ncaas Imprints in the Serum Proteome of COVID-19 Convalescents Uncovering Immune System Sequelae — Kun Liu et al. "Consistently, the dysregulated and sustained [non-coded amino acids] in COVID-19 convalescents were functionally correlated with the pathways relevant to immune responses, complement activation, and coagulation, suggesting the biological impacts of the molecular imprints."

Widespread ncaas Imprints in the Serum Proteome of COVID-19 Convalescents Uncovering Immune System Sequelae — Kun Liu et al. "Consistently, the dysregulated and sustained [non-coded amino acids] in COVID-19 convalescents were functionally correlated with the pathways relevant to immune responses, complement activation, and coagulation, suggesting the biological impacts of the molecular imprints."

From China

Widespread ncaas Imprints in the Serum Proteome of COVID-19 Convalescents Uncovering Immune System Sequelae

www.mcponline.org/article/S153...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

3 2 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
NET Biomarkers in COVID-19 and Post-COVID Syndrome: a Comprehensive Analysis — Monsalve et al. "Our findings revealed a significant increase in NET biomarkers during acute COVID-19 that persisted in PCS. This pattern was consistent with the in vitro study, where sera from PCS patients induced NET release."

NET Biomarkers in COVID-19 and Post-COVID Syndrome: a Comprehensive Analysis — Monsalve et al. "Our findings revealed a significant increase in NET biomarkers during acute COVID-19 that persisted in PCS. This pattern was consistent with the in vitro study, where sera from PCS patients induced NET release."

From Colombia

NET Biomarkers in COVID-19 and Post-COVID Syndrome: a Comprehensive Analysis

link.springer.com/article/10.1...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

2 3 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
Activation of the Lectin Pathway Drives Persistent Complement Dysregulation in Long COVID — Samuel B. K. Keat et al. "We found that plasma concentrations of MASP-2/C1Inh were significantly increased in patients with long COVID relative to healthy convalescent individuals with no persistent symptoms after contemporaneous infection with SARS- CoV-2 (p = 0.0003)."

Activation of the Lectin Pathway Drives Persistent Complement Dysregulation in Long COVID — Samuel B. K. Keat et al. "We found that plasma concentrations of MASP-2/C1Inh were significantly increased in patients with long COVID relative to healthy convalescent individuals with no persistent symptoms after contemporaneous infection with SARS- CoV-2 (p = 0.0003)."

Activation of the Lectin Pathway Drives Persistent Complement Dysregulation in Long COVID

onlinelibrary.wiley.com/doi/10.1111/...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

8 2 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
Video still with Dr Nancy Klimas Groundbreaking Long COVID Clinical Trial at NSU | Researchers Explore New Treatment Nova Southeastern University 4.49K subscribers Subscribe From an accredited US healthcare educator Learn how experts define health sources in a journal of the National Academy of Medicine 348 views Jan 28, 2026 #NSU #NSUFlorida #NovaSoutheasternUniversity Millions continue to struggle with the lasting effects of Long COVID years after the pandemic began. Researchers at Nova Southeastern University’s Institute for Neuro-Immune Medicine (INIM), led by Dr. Nancy Klimas, are conducting one of the few clinical trials focused on finding a cure for Long COVID. In this study, a monoclonal antibody treatment approved for COVID prevention is being tested as a possible treatment for the complex, chronic Long COVID condition. Over six months, researchers track patient responses, collect biological samples, and evaluate whether this treatment eases chronic symptoms and clears any lingering spike in protein from the initial infection. Funding for the study comes from the Florida Department of Health and the Schmidt Initiative for Long Covid (SILC). Long COVID patients can experience a range of debilitating symptoms that affect the brain, heart, and lungs, including fatigue and cognitive dysfunction, and one hundred patients are participating in this groundbreaking clinical trial to search for a cure. Learn more about Dr. Klimas’s groundbreaking work, the Long COVID clinical trial, and how NSU is shaping the future of neuroimmune medicine.

Video still with Dr Nancy Klimas Groundbreaking Long COVID Clinical Trial at NSU | Researchers Explore New Treatment Nova Southeastern University 4.49K subscribers Subscribe From an accredited US healthcare educator Learn how experts define health sources in a journal of the National Academy of Medicine 348 views Jan 28, 2026 #NSU #NSUFlorida #NovaSoutheasternUniversity Millions continue to struggle with the lasting effects of Long COVID years after the pandemic began. Researchers at Nova Southeastern University’s Institute for Neuro-Immune Medicine (INIM), led by Dr. Nancy Klimas, are conducting one of the few clinical trials focused on finding a cure for Long COVID. In this study, a monoclonal antibody treatment approved for COVID prevention is being tested as a possible treatment for the complex, chronic Long COVID condition. Over six months, researchers track patient responses, collect biological samples, and evaluate whether this treatment eases chronic symptoms and clears any lingering spike in protein from the initial infection. Funding for the study comes from the Florida Department of Health and the Schmidt Initiative for Long Covid (SILC). Long COVID patients can experience a range of debilitating symptoms that affect the brain, heart, and lungs, including fatigue and cognitive dysfunction, and one hundred patients are participating in this groundbreaking clinical trial to search for a cure. Learn more about Dr. Klimas’s groundbreaking work, the Long COVID clinical trial, and how NSU is shaping the future of neuroimmune medicine.

2/
Sympathetic 2-minute video piece on drug trial that is recruiting in Florida, USA

"Groundbreaking Long COVID Clinical Trial at NSU | Researchers Explore New Treatment"

www.youtube.com/watch?v=BcS1...

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

2 1 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
2 months ago
The Sick Times "Severe people may hold answers to Long COVID. They must be included in research." This article argues that research studies which include severe cases "may reveal what drives the disease at its core, mechanisms that remain invisible in milder cases." It also lists examples of research studies that have included severe cases to demonstrate that it is possible.

The Sick Times "Severe people may hold answers to Long COVID. They must be included in research." This article argues that research studies which include severe cases "may reveal what drives the disease at its core, mechanisms that remain invisible in milder cases." It also lists examples of research studies that have included severe cases to demonstrate that it is possible.

The Sick Times @thesicktimes.org : "Severe people may hold answers to #LongCOVID. They must be included in research" by @neurologistmom.bsky.social

thesicktimes.org/2026/01/13/s...

Screenshot from Science for ME update

#PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

33 7 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
3 months ago
Excess primary healthcare consultations in Norway in 2024 compared to pre-COVID-19-pandemic baseline trends — White et al. "Substantial increases were observed in primary healthcare consultations in 2024 compared to prepandemic levels. Many of the conditions with the greatest excess are associated with post-acute COVID-19 sequelae"

Excess primary healthcare consultations in Norway in 2024 compared to pre-COVID-19-pandemic baseline trends — White et al. "Substantial increases were observed in primary healthcare consultations in 2024 compared to prepandemic levels. Many of the conditions with the greatest excess are associated with post-acute COVID-19 sequelae"

Excess primary healthcare consultations in Norway in 2024 compared to pre-COVID-19-pandemic baseline trends

link.springer.com/article/10.1...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

8 2 0 1
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
3 months ago
Beyond COVID-19 in people with HIV: Specific miRNA expression profile persist after SARS-CoV-2 clearance — Grande-García et al. "our findings reveal a persistent alteration of circulating miRNAs in [people with HIV] following SARS-CoV-2 infection after 4 weeks, suggesting an epigenetic imprinting that may contribute to the development of post-COVID conditions."

Beyond COVID-19 in people with HIV: Specific miRNA expression profile persist after SARS-CoV-2 clearance — Grande-García et al. "our findings reveal a persistent alteration of circulating miRNAs in [people with HIV] following SARS-CoV-2 infection after 4 weeks, suggesting an epigenetic imprinting that may contribute to the development of post-COVID conditions."

Beyond COVID-19 in people with HIV: Specific miRNA expression profile persist after SARS-CoV-2 clearance

www.sciencedirect.com/science/arti...

Screenshot from latest Science for ME weekly update

#LongCovid #HIV #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers

4 2 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
3 months ago
Medscape logo Medscape News Canada Features Healthcare Workers With Long COVID Struggle to Find Support and Care in an Environment of Denial Alison Palkhivala logo Medscape Canada January 09, 2026

Medscape logo Medscape News Canada Features Healthcare Workers With Long COVID Struggle to Find Support and Care in an Environment of Denial Alison Palkhivala logo Medscape Canada January 09, 2026

New from Canada:

"Healthcare Workers With Long COVID Struggle to Find Support and Care in an Environment of Denial" by @alisonpalk.bsky.social

www.medscape.com/viewarticle/...

May require free registration

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

31 16 1 1
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
3 months ago
Blood pro-thrombotic analytes and platelet activation are associated with post-acute sequelae of COVID-19 — Whitcomb et al. "Among patients with active PASC, a distinct proteomic profile emerged which was characterized by persistent elevation of inflammatory markers and tissue remodeling proteins irrespective of initial disease severity. Pathway enrichment analyses identified neutrophil degranulation, platelet activation, and extracellular matrix remodeling as central processes, suggesting that unresolved inflammation and chronic vascular damage may also underlie the development of long-term sequelae."

Blood pro-thrombotic analytes and platelet activation are associated with post-acute sequelae of COVID-19 — Whitcomb et al. "Among patients with active PASC, a distinct proteomic profile emerged which was characterized by persistent elevation of inflammatory markers and tissue remodeling proteins irrespective of initial disease severity. Pathway enrichment analyses identified neutrophil degranulation, platelet activation, and extracellular matrix remodeling as central processes, suggesting that unresolved inflammation and chronic vascular damage may also underlie the development of long-term sequelae."

From the US

Blood pro-thrombotic analytes and platelet activation are associated with post-acute sequelae of COVID-19

link.springer.com/article/10.1...

Screenshot from Science for ME weekly update

#LongCovid #TeamClots #PASC #PwLC #postcovid #postcovid19 #Covidlonghaulers #PostCovidSyndrome

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Exaggerated IFN-I Response in Long COVID PBMCs Following Exposure to Viral Mimics — Humer et al. "our data indicate that PBMCs from LC patients exhibit an hyperresponsive IFN-I response following activation by viral mimics that trigger RIG-I and cGAS. The exact underlying mechanism that drives this requires further investigation"

Exaggerated IFN-I Response in Long COVID PBMCs Following Exposure to Viral Mimics — Humer et al. "our data indicate that PBMCs from LC patients exhibit an hyperresponsive IFN-I response following activation by viral mimics that trigger RIG-I and cGAS. The exact underlying mechanism that drives this requires further investigation"

From the Netherlands:

Exaggerated IFN-I Response in Long COVID PBMCs Following Exposure to Viral Mimics

link.springer.com/10.1007/s108...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Long COVID involves activation of proinflammatory and immune exhaustion pathways — Aid et al. "participants with LC exhibited reduced granzyme B and cytotoxic T cell signaling and increased immune exhaustion, suggesting dysregulated cross-talk between the innate and adaptive immune responses" "We also found that chronic upregulation of IFNγ signaling was associated with LC and correlated with signatures of reduced T cell activation and increased T cell exhaustion, suggesting that chronic immune stimulation may lead to functional impairment of T cells."

Long COVID involves activation of proinflammatory and immune exhaustion pathways — Aid et al. "participants with LC exhibited reduced granzyme B and cytotoxic T cell signaling and increased immune exhaustion, suggesting dysregulated cross-talk between the innate and adaptive immune responses" "We also found that chronic upregulation of IFNγ signaling was associated with LC and correlated with signatures of reduced T cell activation and increased T cell exhaustion, suggesting that chronic immune stimulation may lead to functional impairment of T cells."

From the US

Long COVID involves activation of proinflammatory and immune exhaustion pathways

www.nature.com/articles/s41...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Systems Immunology of Long Covid: Insights from the STOP-PASC Clinical Trial — Evan Maestri et al. "Despite considerable heterogeneity in LC, we have demonstrated via multicohort meta-analysis conserved dysregulation in inflammatory immune pathways. The proteins in the LCS Score which are consistently elevated in LC in multiple cohorts are associated with inflammation (IL6), monocyte (SIGLEC1/10) and neutrophil activation/granules (AZU1, PGLYRP1), and T/NK cell granzymes (GZMH, GZMA) suggesting a persistent dysregulated immune response."

Systems Immunology of Long Covid: Insights from the STOP-PASC Clinical Trial — Evan Maestri et al. "Despite considerable heterogeneity in LC, we have demonstrated via multicohort meta-analysis conserved dysregulation in inflammatory immune pathways. The proteins in the LCS Score which are consistently elevated in LC in multiple cohorts are associated with inflammation (IL6), monocyte (SIGLEC1/10) and neutrophil activation/granules (AZU1, PGLYRP1), and T/NK cell granzymes (GZMH, GZMA) suggesting a persistent dysregulated immune response."

From the US:

Systems Immunology of Long Covid: Insights from the STOP-PASC Clinical Trial

www.medrxiv.org/content/10.6...

Screenshot from Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Integrative multi-omics framework for causal gene discovery in long COVID — Pinero et al. "Most of the 32 genes are not strongly associated with individual symptoms when tested individually (AR is the only exception). However, their joint expression pattern reliably distinguishes patient subgroups, consistent with post-viral biology, in which pathway-level (not single-gene) dysregulation dominates."

Integrative multi-omics framework for causal gene discovery in long COVID — Pinero et al. "Most of the 32 genes are not strongly associated with individual symptoms when tested individually (AR is the only exception). However, their joint expression pattern reliably distinguishes patient subgroups, consistent with post-viral biology, in which pathway-level (not single-gene) dysregulation dominates."

Integrative multi-omics framework for causal gene discovery in long COVID

journals.plos.org/ploscompbiol...

Screenshot from Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Flyer

Flyer

Research Opportunity Do you live with long COVID and experience fatigue, brain fog, sleep problems, depression or anxiety? Researchers at Deakin University are testing whether gut-based therapy (faecal microbiome transplantation, FMT) could improve outcomes for people with long COVID. What’s involved: 5 visits at University Hospital Geelong 3 FMT or placebo enemas Blood, urine & stool samples Garmin watch to track activity, sleep & heart rate Online questionnaires you can complete at home Parking costs covered Eligibility: Adults 18–65 with a long COVID diagnosis and moderate to severe symptoms. Interested? Learn more by contacting the GLOW team at CTUClinicalTrialsUnit@barwonhealth.org.au | (03) 4215 3078

Research Opportunity Do you live with long COVID and experience fatigue, brain fog, sleep problems, depression or anxiety? Researchers at Deakin University are testing whether gut-based therapy (faecal microbiome transplantation, FMT) could improve outcomes for people with long COVID. What’s involved: 5 visits at University Hospital Geelong 3 FMT or placebo enemas Blood, urine & stool samples Garmin watch to track activity, sleep & heart rate Online questionnaires you can complete at home Parking costs covered Eligibility: Adults 18–65 with a long COVID diagnosis and moderate to severe symptoms. Interested? Learn more by contacting the GLOW team at CTUClinicalTrialsUnit@barwonhealth.org.au | (03) 4215 3078

Interesting long Covid research study recruiting in Victoria, Australia

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #auscovid19

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
4 months ago
Screenshot of page 1 of report at link

Screenshot of page 1 of report at link

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Virtual Healthcare Services for People Living with Long COVID
static1.squarespace.com/static/66c36...

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

6 1 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
5 months ago
 TheGLOWTrial Gut therapy to improve Long COVID Outcomes and Wellbeing Have you been diagnosed with Long COVID? Do you currently suffer from Long COVID Symptoms such as fatigue, insomnia, cognitive issues ("brain fog"), depression and/ or anxiety? Overview A team of Deakin researchers invite you to take part in a project that is aiming to test the feasibility of a clinical trial protocol of enema- delivered faecal microbiome transplantation (FMT) in adults living with Long COVID. This is a novel treatment option for those suffering from Long COVID. What's involved? • Attend five study visits at the University Hospital Geelong. • Receive three enemas of either the FMT OR a placebo product over three consecutive days/visits. • Attend two follow up appointments. • Provide blood, urine and stool samples. Complete online questionnaires- these can be completed at home on your own device. • Wear a Garmin smart watch to measure your activity levels, sleep and heart rate. • You are not required to stop your current medication or supplements. Participation in this research is free. • You will be reimbursed to cover the costof your parking This project is sponsored by Deakin University and has ethical approval by Monash Health RES-25-0000-040A If you meet the following criteria, you may be eligibility to participate • • • · • Adult aged 18-65 years Diagnosis of Long COVID by a Long COVID specialist Experiencing moderate to severe impairment due to their Long COVID Willing to wear a Garmin wrist health tracking device Willing to attend the study site for 5 in- person appointments • Able to commit to the ongoing use of contraceptive, if sexually active andof childbearing potential during study period • Access to a smart device capable of downloading apps Interested in learning more? Please contact the team or follow the QR code below for more information. GLOW Team: 4215 3078 CTUClinicalTrials Unit@barwonhealth.org.au Please scan the QR code for more information. Deakin Univer…

 TheGLOWTrial Gut therapy to improve Long COVID Outcomes and Wellbeing Have you been diagnosed with Long COVID? Do you currently suffer from Long COVID Symptoms such as fatigue, insomnia, cognitive issues ("brain fog"), depression and/ or anxiety? Overview A team of Deakin researchers invite you to take part in a project that is aiming to test the feasibility of a clinical trial protocol of enema- delivered faecal microbiome transplantation (FMT) in adults living with Long COVID. This is a novel treatment option for those suffering from Long COVID. What's involved? • Attend five study visits at the University Hospital Geelong. • Receive three enemas of either the FMT OR a placebo product over three consecutive days/visits. • Attend two follow up appointments. • Provide blood, urine and stool samples. Complete online questionnaires- these can be completed at home on your own device. • Wear a Garmin smart watch to measure your activity levels, sleep and heart rate. • You are not required to stop your current medication or supplements. Participation in this research is free. • You will be reimbursed to cover the costof your parking This project is sponsored by Deakin University and has ethical approval by Monash Health RES-25-0000-040A If you meet the following criteria, you may be eligibility to participate • • • · • Adult aged 18-65 years Diagnosis of Long COVID by a Long COVID specialist Experiencing moderate to severe impairment due to their Long COVID Willing to wear a Garmin wrist health tracking device Willing to attend the study site for 5 in- person appointments • Able to commit to the ongoing use of contraceptive, if sexually active andof childbearing potential during study period • Access to a smart device capable of downloading apps Interested in learning more? Please contact the team or follow the QR code below for more information. GLOW Team: 4215 3078 CTUClinicalTrials Unit@barwonhealth.org.au Please scan the QR code for more information. Deakin Univer…

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Gut therapy to improve long Covid outcomes and well-being

#LongCovid #PASC #Covidlonghaulers #PostCovidSyndrome #longhaulers

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
5 months ago
Experiences of accessing primary care by those living with long Covid in New Zealand: A qualitative analysis — Sarah Rhodes and Christina Douglas "With the current pressure on the NZ health system, and the failure of Government to provide dedicated funding for long Covid several undesirable outcomes look increasingly likely: inadequate support for patients presenting with this complex and disabling condition, even greater pressure on the primary care system, and wider health disparities, particularly for Māori and Pacific peoples."

Experiences of accessing primary care by those living with long Covid in New Zealand: A qualitative analysis — Sarah Rhodes and Christina Douglas "With the current pressure on the NZ health system, and the failure of Government to provide dedicated funding for long Covid several undesirable outcomes look increasingly likely: inadequate support for patients presenting with this complex and disabling condition, even greater pressure on the primary care system, and wider health disparities, particularly for Māori and Pacific peoples."

Experiences of accessing primary care by those living with long Covid in New Zealand: A qualitative analysis

journals.plos.org/plosone/arti...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

4 2 1 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
5 months ago
Visual Arts Art Show It Comes in Waves Brings Long COVID Stories to Light Artists and incarcerated illustrators share powerful depictions of living with Long COVID at Aurora’s People’s Building. By Toni Tresca November 5, 2025 A drawing of a woman with a ladder resting on a block labeled "Long COID," which is a long way from "Healthy" at the top. A piece created by incarcerated artist Riccardo Kirven for It Comes in Waves, a visual art exhibition about Long COVID. Courtesy of Riccardo Kirven Share this: Listen to the article now

Visual Arts Art Show It Comes in Waves Brings Long COVID Stories to Light Artists and incarcerated illustrators share powerful depictions of living with Long COVID at Aurora’s People’s Building. By Toni Tresca November 5, 2025 A drawing of a woman with a ladder resting on a block labeled "Long COID," which is a long way from "Healthy" at the top. A piece created by incarcerated artist Riccardo Kirven for It Comes in Waves, a visual art exhibition about Long COVID. Courtesy of Riccardo Kirven Share this: Listen to the article now

Relatively detailed article on new art exhibition on long Covid.

www.westword.com/arts-culture...

Includes some examples from the exhibition

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

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Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
6 months ago
Genome-wide association studies of Long COVID and post-acute complications of SARS-CoV-2 in the UK Biobank Data — Daniel Prieto-Alhambra et al. "Our genome-wide association study of Long COVID in the UK Biobank identified 15 lead genetic variants that reached suggestive statistical significance (p-value < 5×10⁻⁶) in the discovery cohort. Among these, eleven variants (73.3%) demonstrated robustness during validation analysis, with one variant (rs12335232 in the ADCY8 gene) achieving full validation"

Genome-wide association studies of Long COVID and post-acute complications of SARS-CoV-2 in the UK Biobank Data — Daniel Prieto-Alhambra et al. "Our genome-wide association study of Long COVID in the UK Biobank identified 15 lead genetic variants that reached suggestive statistical significance (p-value < 5×10⁻⁶) in the discovery cohort. Among these, eleven variants (73.3%) demonstrated robustness during validation analysis, with one variant (rs12335232 in the ADCY8 gene) achieving full validation"

Genome-wide association studies of Long COVID and post-acute complications of SARS-CoV-2 in the UK Biobank Data

www.researchsquare.com/article/rs-7...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

15 6 0 1
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
6 months ago
Global and Sex-Stratified Genome-Wide Association Study of Long COVID Based on Patient-Driven Symptom Recall — Polo-Alonso et al. "Although no genetic variants reached genome-wide significant level, suggestive signals (p-value < 5 × 10−6 ) were found in the three GWAS, supporting the idea that genetic susceptibility to long COVID may be sex-specific."

Global and Sex-Stratified Genome-Wide Association Study of Long COVID Based on Patient-Driven Symptom Recall — Polo-Alonso et al. "Although no genetic variants reached genome-wide significant level, suggestive signals (p-value < 5 × 10−6 ) were found in the three GWAS, supporting the idea that genetic susceptibility to long COVID may be sex-specific."

From Spain:

Global and Sex-Stratified Genome-Wide Association Study of Long COVID Based on Patient-Driven Symptom Recall

www.mdpi.com/1422-0067/26...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome

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Accessible Escapes LLC
Accessible Escapes LLC
@accessibleescapes.bsky.social
7 months ago
Video

Please join my #CovidCautious #PuntaCana #GroupTrip! November 2026! Deadline to decide in just a few days! #CovidSafe #CovidSafeTravel #CovidLonghaulers

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OFFSHIFT MEDIA
OFFSHIFT MEDIA
@offshiftmedia.bsky.social
7 months ago
Video

Everyone who lived through Covid deserves to hear this. Millions faced loss, hospital stays, and debt. Covid didn’t just change medicine—it changed trust + survival. Were you impacted? 🧵 #longcovid #longcovidrecovery #longcovidsymptoms #postviralfatigue #covidlonghaulers

3 6 2 1
Embodied WUNC
Embodied WUNC
@embodiedwunc.bsky.social
8 months ago
When #LongCovid Rewrites Your Love Story #loncovidrecovery #longcovidawareness #DisabilityRights
When #LongCovid Rewrites Your Love Story #loncovidrecovery #longcovidawareness #DisabilityRights YouTube video by WUNC North Carolina Public Radio

Philip & Lauren, our guests from our newest episode about #Longcovid share three things that have helped them navigate this illness in their relationship:

youtube.com/shorts/BhdyJ...

#mecfs #loncovidrecovery #longcovidawareness #lonccovidsymptoms #covid19 #DisabilityRights #covidlonghaulers

3 2 0 0
Tom Kindlon
Tom Kindlon
@tomkindlon.bsky.social
11 months ago
Trial By Error: In a Compelling Documentary, Five Doctors Discuss Being Sick | Virology Blog By David Tuller, DrPH *This is a crowdfunding period at University of California, Berkeley. If you appreciate my work and would like to make a donation (tax ...

From David Tuller @davetuller1.bsky.social :

excellent documentary from @anilvanderzee.bsky.social about doctors with ME and other infection-related chronic illnesses.

virology.ws/2025/05/01/t...

#MEcfs #CFS #PwME #LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #Lyme

10 5 3 1
Public Health Action Network
Public Health Action Network
@publichealthaction.bsky.social
1 year ago

Excellent Long COVID feed that finds posts with:
#LongCOVID,
"Long COVID",
#pwLC,
"post acute sequelae",
#PASC,
#LonghaulCovid, #CovidLonghaulers, #ChronicCovid, #PostCovidConditions, and #c19Longhauler

bsky.app/profile/did:...

3 1 0 0
✨️Jill Kelley (she/they)✨️
✨️Jill Kelley (she/they)✨️
@justicejoyandjill.bsky.social
1 year ago
UNREST Feature Documentary (With Captions and Multilingual Subtitles)
UNREST Feature Documentary (With Captions and Multilingual Subtitles) YouTube video by Unrest Film

Want to understand what life is like for millions of people disabled by ME/CFS & Long Covid? Watch this doc.
There was a Golden Girls episode on it not being believed by doctors.
When 85% of those with an illness are female - research ain't funded
#Unrest #MillionsMissing #MECFS #CovidLonghaulers

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GhostWarrior ⚔️🏳️‍🌈 🇨🇦🇺🇦
GhostWarrior ⚔️🏳️‍🌈 🇨🇦🇺🇦
@ghostwarrior.bsky.social
1 year ago

youtube.com/watch?v=fOux... @uriebay.bsky.social @beyerstein.bsky.social @tomlevenson.bsky.social @anniegirl.bsky.social @doloresquintana.bsky.social @merlinofcanada.bsky.social @maej43.bsky.social Short #documentary on #CovidLongHaulers

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