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#Cushings
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#cushings #disease #medicine #animals #dogs #veterinarian #vet #pets #proctorvilleanimalclinic #test #money #finances #help #donations #gofundme #hairloss #shitzu

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An illustration of four people in interlocking puzzle pieces. Text reads, "The Courageous Cushing's Support Group has a virtual meeting on Wednesday November 5th at 7:30pm ET with a special guest speaker from the HealthWell Foundation to discuss funds available for Cushing's patients. healthwellfoundation.org/fund/cushings-disease. Sign up! Email NADFSupport@NADF.us or visit NADF.us/calendar to join."

An illustration of four people in interlocking puzzle pieces. Text reads, "The Courageous Cushing's Support Group has a virtual meeting on Wednesday November 5th at 7:30pm ET with a special guest speaker from the HealthWell Foundation to discuss funds available for Cushing's patients. healthwellfoundation.org/fund/cushings-disease. Sign up! Email NADFSupport@NADF.us or visit NADF.us/calendar to join."

Join the Courageous Cushing's Support Group on Wednesday, November 5th at 7:30pm ET for a special presentation from @healthwellfoundation.org to discuss funds available for Cushing's patients. Email NADFSupport@NADF.us or visit NADF.us/calendar to join.

#Cushings #AdrenalDisease

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Machine Learning-based Classification of #Adrenal Tumors Using Clinical, Hormonal, and Body Composition Data by Seung Shin Park et al

EJE Volume 193, Issue 2, August 2025
👉 doi.org/10.1093/ejen...
ESE Members free via 👉 my.ese-hormones.org

#hyperaldosteronism #Cushings

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Survival probabilities in patients with ectopic Cushing’s syndrome – a systematic review and a single-arm meta-analysis by Marta Piasecka

EJE Volume 192, Issue 6, June 2025
Open access article 👉 doi.org/10.1093/ejen...

#endocrinology #cushings #hypercortisolism

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Costco Gives in to MAGA
Costco Gives in to MAGA YouTube video by Rebecca Watson (Skepchick)

WTF #Costco this is a safe medication used for many conditions not just abortion. I've known people on it for #Cushings, brain tumors, and endometriosis. It's absolutely nuts not to sell it. Don't kowtow to bigots 🤷🏻‍♀️🤦🏻‍♀️

ps we have stock through our retirement fund 👀

youtu.be/Fg4P7APepPY?...

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An illustration of four people talking in interlocking puzzle pieces. Text reads, "The Courageous Cushing's Support Group has a virtual meeting on Wednesday, August 6th at 7:30pm ET. Sign up! Email NADFSupport@NADF.us or visit NADF.us/calendar to join."

An illustration of four people talking in interlocking puzzle pieces. Text reads, "The Courageous Cushing's Support Group has a virtual meeting on Wednesday, August 6th at 7:30pm ET. Sign up! Email NADFSupport@NADF.us or visit NADF.us/calendar to join."

The Courageous Cushing's Support Group has a virtual meeting on Wednesday, August 6th at 7:30pm ET. Sign up to join! Email NADFSupport@NADF.us or visit NADF.us/calendar for more upcoming support group meetings.

#Cushings #AdrenalInsufficiency

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A picture of an older man holding a young boy on his lap with text that reads, "Is your child suffering from Cushing's syndrome? Children and adolescents 2 to <18 years of age with Cushing's syndrome may qualify to participate in the LINC-5 study, a phase-II, multicenter, open-label, non-comparative study to evaluate the pharmacokinetics, pharmacodynamics, and tolerability of osilodostat. If you/your child are interested in the study, please reach out to Dr. Maya Lodish maya.lodish@ucsf.edu University of California San Francisco, CA, Dr. Cristina Tatsi cristina.tatsi3@nih.gov National Institute of Child Health and Human Development, MD. Ricordati Rare Diseases. NADF.us/clinical-trials."

A picture of an older man holding a young boy on his lap with text that reads, "Is your child suffering from Cushing's syndrome? Children and adolescents 2 to <18 years of age with Cushing's syndrome may qualify to participate in the LINC-5 study, a phase-II, multicenter, open-label, non-comparative study to evaluate the pharmacokinetics, pharmacodynamics, and tolerability of osilodostat. If you/your child are interested in the study, please reach out to Dr. Maya Lodish maya.lodish@ucsf.edu University of California San Francisco, CA, Dr. Cristina Tatsi cristina.tatsi3@nih.gov National Institute of Child Health and Human Development, MD. Ricordati Rare Diseases. NADF.us/clinical-trials."

Children and adolescents 2 to <18 years of age with Cushing's syndrome may qualify to participate in the LINC-5 study to evaluate the pharmacokinetics, pharmacodynamics, and tolerability of osilodostat.

For more information, please visit NADF.us/clinical-trials

#Cushings

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Blue graphic with All Things Adrenal Podcast logo and headshots of Host Vanessa O'Rourke and Guest Hilary Hodge. Text reads, "New Episode June 24, 2025."

Blue graphic with All Things Adrenal Podcast logo and headshots of Host Vanessa O'Rourke and Guest Hilary Hodge. Text reads, "New Episode June 24, 2025."

New episode of #AllThingsAdrenal #podcast now available at NADF.us/podcast or wherever you get your podcasts.

#AdrenalInsufficiency #Addisons #Cushings #AdrenalDisease

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A 25 year old Arabian horse with Cushing's Disease eating his breakfast from a green bucket.

A 25 year old Arabian horse with Cushing's Disease eating his breakfast from a green bucket.

Twister has become a very hard keeper in his old age (horse lingo for "needs a LOT of food to keep his weight up"), and could use a few more pounds, but for a 25 year old #Cushings #horse, he is doing remarkably well.

#horsesOfBluesky #horsesky #arabian #horses #CushingsDisease #farmlife #animals

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A horse with Cushing's before his hair gets clipped

A horse with Cushing's before his hair gets clipped

A horse with Cushing's after his hair gets clipped

A horse with Cushing's after his hair gets clipped

A giant pile of horse hair on the floor of a barn.

A giant pile of horse hair on the floor of a barn.

Mr. Shaggy got a hair cut. Just his neck, face and belly today. The rest of him in a week or two when it is warmer. That giant pile of hair is just from his face and neck lol. Gotta love #Cushings #horses.

#horse #horsesOfBluesky #HorseskyHorsesky #CushingsDisease #CushingsHorse #arabianhorse

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Mortality in Cushing's syndrome: declining over 2 decades but remaining higher than the general population by Amit Akirov et al

EJE Volume 192, Issue 4, April 2025
Open access 👉 doi.org/10.1093/ejen...

#endocrinology #adrenal #Cushings #pituitary

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A graphic of two hands shaking in a blue heart. Text reads, "When we have the courage to walk into our story and own it, we get to write the ending." Brené Brown. Join an NADF support group and let us help you walk your path with pride. For more information and to sign up, contact NADFSupport@NADF.us or visit NADF.us/support-groups."

A graphic of two hands shaking in a blue heart. Text reads, "When we have the courage to walk into our story and own it, we get to write the ending." Brené Brown. Join an NADF support group and let us help you walk your path with pride. For more information and to sign up, contact NADFSupport@NADF.us or visit NADF.us/support-groups."

Walk your story with love and encouragement when you join a #NADFAdrenal support group. We have groups by age, disease, and location, plus the resources for you to start your own group if what already exists doesn't meet your needs.

#AdrenalInsufficiency #AdrenalDiseaseAwareness #Addisons #Cushings

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An illustrated group of people with their arms around each other and text reading, "The NADF Colorado Support Group has a virtual meeting Wednesday, May 14th at 5:30pm MST. Reach out to NADFSupport@NADF.us or visit our calendar to join, NADF.us/calendar."

An illustrated group of people with their arms around each other and text reading, "The NADF Colorado Support Group has a virtual meeting Wednesday, May 14th at 5:30pm MST. Reach out to NADFSupport@NADF.us or visit our calendar to join, NADF.us/calendar."

The NADF Colorado Support Group meets Wednesday, May 14th at 5:30pm MST. To join, reach out to NADFSupport@NADF.us or visit NADF.us/calendar for more information.

#AdrenalDiseaseAwareness #Addisons #Cushings #AdrenalInsufficiency

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An illustration of five people holding a long red thread. Text reads, "The NADF Utah Support Group has a virtual meeting on Thursday, May 8th at 6pm MST. For more information and to sign up, contact NADFSupport@NADF.us".

An illustration of five people holding a long red thread. Text reads, "The NADF Utah Support Group has a virtual meeting on Thursday, May 8th at 6pm MST. For more information and to sign up, contact NADFSupport@NADF.us".

The NADF Utah Support Group has a virtual meeting on Thursday, May 8th at 6pm MST. For more information and to sign up, contact NADFSupport@NADF.us or visit NADF.us/calendar.

#AdrenalDisease #AdrenalInsufficiency #Addisons #Cushings

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An illustration of four people talking and text that reads, "The Courageous Cushing's Support Group has a virtal meeting on Wednesday, May 7th at 7:30pm EST. Email NADFSupport@NADF.us or visit NADF.us/calendar to join."

An illustration of four people talking and text that reads, "The Courageous Cushing's Support Group has a virtal meeting on Wednesday, May 7th at 7:30pm EST. Email NADFSupport@NADF.us or visit NADF.us/calendar to join."

The Courageous Cushing's Support Group has a virtal meeting on Wednesday, May 7th at 7:30pm EST. Email NADFSupport@NADF.us to join.

Looking for a support group in your area? Check out NADF.us/support-groups for our full list!

#Cushings #AdrenalDisease

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Preview
What if the recovery is in the nervous system? What if healing isn’t just medical recovery—but nervous system repair after years of high-functioning survival?

I thought I was healing from a tumor.
But the real recovery has been unwinding a decade of chronic stress.

What if healing isn’t just physical?
What if the recovery is in the nervous system?

open.substack.com/pub/alexandr...

#MentalHealthAwarenessMonth #Cushings #NervousSystemHealing

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An image of a man and a child with text about the LINC5 study for pediatric Cushing's patients. For more information about the study, visit NADF.us/clinical-trials

An image of a man and a child with text about the LINC5 study for pediatric Cushing's patients. For more information about the study, visit NADF.us/clinical-trials

Is your child suffering from Cushing’s Disease? You may want to consider their participation in LINC-5 study. To learn more, please visit NADF.us/clinical-trials

#AADAM2025 #AdrenalDiseaseAwareness #Cushings

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Socioeconomic status and its association with outcome in patients with Cushing's disease by Daniel Bengtsson et al

EJE Volume 192, Issue 3, March 2025
Open access paper 👉 doi.org/10.1093/ejen...

#endocrinology #pituitary #cushings #pituitaryadenoma

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#cushingsawarenessday is important to me as a survivor and advocate of this not-so-rare illness! It takes an average of 7 years to be diagnosed, but the survival rate for active Cushing's is 4 years...clearly people have it and never survive long enough to get diagnosed. #cushings #cushingssyndrone

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Preview
Sometimes Its Zebras In honor of Rare Disease Day (the last day of February), I’m sharing my personal journey to help raise awareness and offer hope for others.

Today is Cushing’s Awareness Day. Earlier this year I wrote a narrative of my own story to help raise awareness and instill hope for others with a similar experience.

If you haven’t, I hope you’ll read my story:

open.substack.com/pub/alexandr...

#cushings #cushingsawareness #healthcare

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Cold but he’s laying on the blankie I would cover up with. #dogsfirst #dogsofbluesky #milo #puffins #diabetic #cushings #blind

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A teal graphic with a photo of two white women, one in a white doctor coat, looking over a clipboard. Text reads, "Clinical Case Challenge: Individualizing Diagnostic Approaches to Differentiate Cushing's Syndrome From Other Causes of Hypercortisolism. Free. Earn 0.25 CME/CE credit hours. Expires March 11, 2025. intended audience: Endocrinologists, primary care physicians, and their clinical teams of NPs, PAs, nurses, and pharmacists. bit.ly/3XbdUmn."

A teal graphic with a photo of two white women, one in a white doctor coat, looking over a clipboard. Text reads, "Clinical Case Challenge: Individualizing Diagnostic Approaches to Differentiate Cushing's Syndrome From Other Causes of Hypercortisolism. Free. Earn 0.25 CME/CE credit hours. Expires March 11, 2025. intended audience: Endocrinologists, primary care physicians, and their clinical teams of NPs, PAs, nurses, and pharmacists. bit.ly/3XbdUmn."

#Cushings Clinical Case Challenge for endocrinologists, primary care physicians, and their clinical teams of NPs, PAs, nurses, and pharmacists

✏️ Activity Type: Clinical Case Study
✏️ Expiration Date: March 11, 2025
✏️ Activity Price: Free

bit.ly/3XbdUmn

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Vetoryl used to be used for Cushings. Now, it is only used for Cushings in dogs. The cost is dependent on the weight and the severity of the condition. My 21 lb dog is on a lower dose.$170 per mo. Many can't get this life extending quality of life drug. Can you help?

@costplusdrugs.com
#Cushings

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Corgi flopped over on side. Exposing shaved belly.

Corgi flopped over on side. Exposing shaved belly.

Corgi in a fashionable parka.

Corgi in a fashionable parka.

Corgi in parka, side angle.

Corgi in parka, side angle.

For the past couple months, we have been working to officially diagnose Delphy with Cushing’s. One test was an ultrasound which meant shaving her poor little belly. Since we live in freezing Minnesota, it was a great excuse to buy her a jacket. She stylin’!

#corgis #dogsky #cushings

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A green graphic with blue accents and an illustration of a group of people in a circle putting their hands together in the center. Text reads, "The NADF Houston support group has a virtual meeting on Thursday, February 13th at 7pm CST. For more information and to sign up, email NADFSupport@NADF.us or visit NADF.us/calendar."

A green graphic with blue accents and an illustration of a group of people in a circle putting their hands together in the center. Text reads, "The NADF Houston support group has a virtual meeting on Thursday, February 13th at 7pm CST. For more information and to sign up, email NADFSupport@NADF.us or visit NADF.us/calendar."

#Houston, we have a support group: Join us tonight at 7pm Central for virtual companionship and commiseration. Email NADFSupport@NADF.us or visit NADF.us/calendar to sign up.

#Addisons #Cushings #AdrenalDiseases #AdrenalInsufficiencyAwareness

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A pale blue graphic with an illustration of a group of people facing away with their arms around one another's shoulders. Text reads, "The NADF Colorado support group has a virtual meeting tonight, February 12th at 5:30pm MST. Reach out to NADFSupport@NADF.us or visit our calendar to join! NADF.us/calendar."

A pale blue graphic with an illustration of a group of people facing away with their arms around one another's shoulders. Text reads, "The NADF Colorado support group has a virtual meeting tonight, February 12th at 5:30pm MST. Reach out to NADFSupport@NADF.us or visit our calendar to join! NADF.us/calendar."

Hey Colorado! It's support group time. Meet up with friends old and new - email NADFSupport@NADF.us or sign up through our website, NADF.us/calendar

#Addisons #Cushings #AdrenalDisease #AdrenalInsufficiency

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A photo of three people in silhouette jumping while hiking in the mountains. Text reads, "On National Make A Friend Day, give yourself the gift of friends who understand. Join on of our support groups and connect with others who live with adrenal diseases: NADF.us/support-groups."

A photo of three people in silhouette jumping while hiking in the mountains. Text reads, "On National Make A Friend Day, give yourself the gift of friends who understand. Join on of our support groups and connect with others who live with adrenal diseases: NADF.us/support-groups."

Celebrate #NationalMakeAFriendDay by joining a NADF support group! We have many regional groups ... and if there's not one in your area, you may be the leader we've been waiting for. To sign up, or to start a new group, email NADFSupport@NADF.us or visit NADF.us/support-groups

#Addisons #Cushings

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Blue graphic with illustration of a group of people holding a red thread. Text reads, "The NADF Utah Support Group has a virtual meeting on Tuesday, February 11th at 6pm MST. For more information and to sign up, contact NADFSupport@NADF.us. NADF.us/calendar."

Blue graphic with illustration of a group of people holding a red thread. Text reads, "The NADF Utah Support Group has a virtual meeting on Tuesday, February 11th at 6pm MST. For more information and to sign up, contact NADFSupport@NADF.us. NADF.us/calendar."

The NADF Utah support group meets on Tuesday, February 11th at 6pm MST. To join, contact NADFSupport@NADF.us.

For a full list of support groups, visit NADF.us/support-groups

#AdrenalInsufficiency #Addisons #Cushings #NADFAdrenal

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Blue and yellow graphic with cartoon of four people talking in interlocking puzzle pieces. Text reads, "The Courageous Cushing's support group has a virtual meeting on Wednesday, February 5th at 7:30pm EST. Sign up! Email NADFSupport@NADF.us or visit NADF.us/calendar".

Blue and yellow graphic with cartoon of four people talking in interlocking puzzle pieces. Text reads, "The Courageous Cushing's support group has a virtual meeting on Wednesday, February 5th at 7:30pm EST. Sign up! Email NADFSupport@NADF.us or visit NADF.us/calendar".

The Courageous Cushing's support group has a virtual meeting on Wednesday, February 5th at 7:30pm EST. Make new friends and reconnect with the old - #Cushings is challenging but friendship is gold 💙💛

Sign up to receive the zoom link. Email NADFSupport@NADF.us or visit NADF.us/calendar to join.

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Har aldrig haft så mycket illamående som sen jag fick Cushings. Är det utan tvekan det vanligaste symtomet.

I början var det för att kortisolet låg högt, efter operationen för att kroppen kämpar med att vänja sig lägre nivåer.

Ett år nu, och jag är så vansinnigt less på det! 😝
#cushings

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