#EDSawarenessmonth
In honour of the season, I've destabilised the right side of my jaw. My right dimple is disappearing into the swelling, and I'm a grouchy little stinker.
On the plus side, if it falls out completely, I might not have to publicly speak on Thursday night. So it ain't all bad 🤔
This EDS awareness month, Ciara Lee explains more about the interaction between Ehlers-Danlos Syndromes & autonomic dysfunction, and explores what we know about their relationship! 🖤🤍
🔗 www.womeninneuroscienceuk.org/post/autonom...
#Neuroscience #EDSAwarenessMonth #EDS #PoTS
For #EDSAwarenessMonth, we want to highlight some reasonable accommodations for the workplace. There's a place for everyone in archaeology! #chronicillnessawareness #zebrastrong #invisibleillness #disabilityinarchaeology #inclusivearchaeology #eds #diversityinarchaeology #inclusivity
In honour of Ehlers Danlos Awareness Month, here are some things I’ve (partially or fully) dislocated the last month:
Fingers
Toes
Ribs
Shoulder
Ankle
Wrist
Elbow
You could say I’m PAINFULLY aware. 0/10, do not recommend.
Do NOT get your connective tissue from Shein.
#edsawarenessmonth #eds
Amongst everything I keep forgetting to post for #EDSAwarenessMonth & it's almost over. Thankfully my books are out there doing the work without me. This month I heard from a GP in Canada who bought #TheCompanyOfOwls for the owls but found it gave him new understanding of his patients with #EDS.
I've missed a lot of #EDSawarenessmonth, partly due to EDS stuff.
My worst EDS symptom is realising how pathetically grateful I am when something breaks and you can SEE IT. Most of the time, my pain is invisible. Bruising actually makes me feel grateful because the people around me can see it.
It is the third #edsawarenessmonth in a row where I am recovering from a major EDS related joint surgery. I would like to be LESS aware, thank you. #ehlersdanlossyndrome
🕯️ New post up for #EDSAwarenessMonth 🕯️
Medical gaslighting nearly kept me from answers I desperately needed. If you’ve ever felt unheard by your doctors—you’re not alone.
📖 Read more on the blog.
📣Het is deze maand #EDSAwarenessMonth en tijdens deze maand vragen wij extra aandacht voor deze belangrijke overlap!
Het wordt tijd dat patiënten worden erkend en een tijdige diagnose kunnen krijgen.
🧵4/4
Thx @shibakaz.bsky.social for the useful shareable info👏 Lack of #EDS awareness, esp in health service, means my bff B is neglected/endangered by all services; vulnerable to abuse/violence; disabled; homeless; fighting for her life.
Pls #HelpMeHelpB www.gofundme.com/f/helpmehelpb
#EDSAwarenessMonth
To understand more about the interplay of EDS, Hypermobility and #neurodivergence, watch our CPD certified Community of Practice session Dr Jessica Eccles – Hypermobility, Pain & Neurodivergence: neurodivergencewales.org/en/resources...
#EDSAwarenessMonth
#HSDAwarenessMonth
I ddeall mwy am y cysylltiad rhwng EDS, Hypersymudedd a #niwrowahaniaeth, gwyliwch ein sesiwn Cymuned Ymarfer wedi’i hardystio gan CPD - Dr Jessica Eccles – Hypersymudedd, Poen a Niwrowahaniaeth: neurodivergencewales.org/en/resources...
#EDSAwarenessMonth
#HSDAwarenessMonth
May is #EDSawarenessmonth
So let's spread some knowledge with
#zebtastrongart
find more information about EDS here:
www.ehlers-danlos.org
For my lovely friend @sparklearts.bsky.social
❤️Help us raise awareness of vEDS today - Comment below with where in the world you're joining in from and share your photos!
Learn more about vEDS here www.ehlers-danlos.com/veds/
#vEDS #VascularEDS #Vascular #VascularEhlersDanlosSyndrome #EhlersDanlosSyndrome #MyEDSChallenge #EDSawarenessmonth
Knowing and loving the zebras in our lives #edsawarenessmonth #ehlersdanlos
I was going to stream at 8pm BST but my health has taken a dip and the exhaustion is piling on top so I'm gonna cancel tonight's stream. Gonna take the time to just exist for a bit.
Sorry to dissapoint >~<
#EDSAwarenessMonth #EDS #CFS #chronicfatigue
📢 “1 in 10 diagnosed. 10 in 10 deserve care.”
Too many are being missed. Join us this May to raise awareness and push for better access to diagnosis and care.
👉 www.ehlers-danlos.org/1in10
#1in10 #EDSAwarenessMonth #HSDAwarenessMonth #TeamZebra
I think you’re feeling like debating today. If you read what Kelly wrote, you’re arguing against straw men.
This is #MEAwarenessMonth & #EDSAwarenessMonth.
Our conditions are those which are frequently harmed by certain wellness practices.
Scientific advances are still needed for our conditions.
Received some donations since posting the update❣️
Thank you #NEISVoid #HelpSky #MAVoid❣️
665 OVERDUE RENT DEADLINE 1 Hour ⏰
190 utilities 💡
140 adjusted MCAS meds total 💊
#MutualAidBoost
#HelpFolksLive2025 #KeepPeopleHoused #DisabilitySOS #MEAwarenessMonth #LongCOVIDAwareness #EDSAwarenessMonth
To learn more about EDS and EDS Awareness Month, please follow these links:
buff.ly/17juUcz
buff.ly/6jha1AW
buff.ly/s8n3Efd
buff.ly/dqgNR9m
#edsawarenessmonth #ehlersdanlossyndromes #chronicillnessawareness #zebrastrong #invisibleillness #disabilityinarchaeology #inclusivearchaeology #eds
A visual aid (not made by me; I don’t see a visible credit/watermark, either) showing a Venn Diagram with three overlapping circles, in black text on white background, with a rainbow zebra print frame. (EDS patients are often referred to as zebras.) I’m gonna try my best to describe the contents of the Venn Diagram, but tbh it’s 2:45am and I have a migraine and my aphasia is acting up, so if it’s wrong I’m sorry! Please feel free to offer corrections. Circle 1 (upper left) reads: “hEDS: skin hyperextensibility, joint hypermobility, tissue fragility, hernias, easy bruising, pain”. Circle 2 (bottom) reads: “MCAS: flushing, pruritus, urticaria, angioedema, nasal congestion, nasal pruritus, wheezing, throat swelling, ocular itching, dermographism”. Circle 3 (upper right) reads: “POTS: lightheadedness, visual blurring, vertigo”. The overlap between hEDS and POTS reads: “dizziness, sleep disturbance, orthostatic intolerance”. The overlap between POTS and MCAS reads: “chest pain”. The overlap between MCAS and hEDS reads: “GERD, heartburn”. The center of the diagram, where all circles overlap, reads: “weakness, fatigue, abdominal pain, nausea, vomiting, diarrhea, bloating/constipation, hypotension, exercise intolerance, impaired cognition, headaches, palpitations”.
By the way, it’s #EDSawarenessmonth! TIME TO BE AWARE OF ME, Y’ALL 🤪
I have #EDS, and due to high comorbidity rates and me having ALL THE SYMPTOMS (haven’t been tested because America is so great at healthcare 🙄) it’s likely that I have #POTS, and my excessive allergic reactions are caused by #MCAS.
Today my zebra got stripes 🦓😁 #edsawarenessmonth #ehlersdanlos
May marks the beginning of #EDSAwarenessMonth a time when experts from across the globe are encouraged to speak out about an already under researched condition...
socialcare.today/2025/05/06/e... #health #EDS #awareness #care
An image of the fundraiser for The Ehlers Danlos Society. Our team name is "Disabled Devs" and there is an image of Jess Cookston and I smiling. Our fundraiser shows we have raised 1,004.40 dollars of our 1,000 dollar goal!
#EDSAwarenessMonth WE BEAT OUR GOAL!!! Thank you so much to everyone who shared and donated 🥹 the fundraiser will still be up through May, we will still be accepting donations! ❤️
Moving Mountains is published in Canada today! You can now support disabled nature writers and buy Canadian [from a wonderful Canadian indie bookstore] at the same time 😜 #NatureWriting #DisabledWriters #DisabilityWrites #TheChronicLife #BookSky #EDSAwarenessMonth
1/2 #ONLINE arte Mediathek I arte YouTube Kanal
Dokumentation, 92 Minuten
#ChronischKrank - #ChronischIgnoriert
Würde mich freuen, wenn Ihr zum #MEAwarenessMonth #EDSAwarenessMonth ##LymeAwarenessMonth nochmals auf die 92 Minuten Dokumentation aufmerksam macht 🙏
www.youtube.com/watch?v=YnnD...
paperback of some of us just fall on rock reflected in lake with green fells behind
stack of some of us just fall in bookshop window with paper flowers around it to match cover
Missed the 1st anniversary of paperback publication of Some of Us Just Fall as I can't hold dates in my head. It's 1 year and 4 days old! It's #EDSAwarenessMonth in a near future in which disabled people are under attack from our govt, and people w. EDS targeted as malingerers. #TheChronicLife
Had a really good day yesterday & I'm paying for it today with severe brain fog and fatigue.
Wanted to get a ton of work done & a few video edits finished & I've not been able to focus
#EDS is just as much a Neurological condition as it is a physical one
#EDSAwarenessMonth
One of my shoulder blades has seized up so I can't extend my arm fully making it look a good few inches smaller than the other when I hold them out 🤣🤣
I know for a fact this freaks some of the people I know irl when it happens 🤣
#EhlersDanlosSyndrome #EDSAwarenessMonth
