Books received in the post today (without the aid of a tripod—sorry).
#ReadingPoets
#TheChronicLife
@honnopress.bsky.social @serenbooks.bsky.social @littletollerbooks.bsky.social
#NatureWriting
#BookSky
The current contents of my uk.bookshop.org shopping basket. I am paralysed by the knowledge that I can't possibly buy them all, now ...
#BookSky #NatureWriting #TheChronicLife
every single day. How much of a fight it is to simply exist." Credit: Sarah_SC.10 #MySeveralWorlds #ChronicTruths #ChronicallyComplex #TheChronicLife
every single day. How much of a fight it is to simply exist."
Credit: Sarah_SC.10
#MySeveralWorlds #ChronicTruths
#ChronicallyComplex #TheChronicLife
Got the corrections in in the calm hours as owls yelled outside but in this pain flare and its can’t get to sleep then can’t wake up mode ran out of functional day light hours to get further than flower prep and forgot to ring phleb AGAIN! #TheChronicLife
"Shoutout to everyone who has exactly two modes: 1) Doing all the things 2) Doing absolutely nothing while recovering from doing all the things." Image Credit: @PolydotLand Source: kixxarse1986 #MySeveralWorlds #ChronicTruths #TheChronicLife
"Shoutout to everyone who has exactly two modes:
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
condition called garbage body Credit: Unknown #MySeveralWorlds #TheChronicLife #AutoimmuneDisease #ChronicTruths
condition called
garbage body
Credit: Unknown
#MySeveralWorlds #TheChronicLife #AutoimmuneDisease #ChronicTruths
"Autoimmune diseases aka "why are you hitting yourself stop hitting yourself" diseases." Credit: it's babs @babs_zone #AutoimmuneDisease #ChronicTruths #ButYouDontLookSick #MySeveralWorlds #TheChronicLife
"Autoimmune diseases aka "why are you hitting yourself stop hitting yourself" diseases."
Credit: it's babs @babs_zone
#AutoimmuneDisease #ChronicTruths #ButYouDontLookSick #MySeveralWorlds #TheChronicLife
6 CONFESSIONS OF LIVING WITH A CHRONIC ILLNESS I always feel guilty. I always feel like I'm alone. I'm almost always in pain. I don't look sick. Not all doctors understand. I feel like a failure. #ChronicIllness #LifeWithIllness #ChronicTruths #MySeveralWorlds #TheChronicLife
6 CONFESSIONS OF LIVING WITH A CHRONIC ILLNESS
I always feel guilty.
I always feel like I'm alone.
I'm almost always in pain.
I don't look sick.
Not all doctors understand.
I feel like a failure.
#ChronicIllness #LifeWithIllness #ChronicTruths #MySeveralWorlds #TheChronicLife
"The grief of carrying all the years you've been sick on your shoulders." Credit: @mindfullyevie (The one and only! 💜) #pwME #MillionsMissing #TheChronicLife #MySeveralWorlds #FibroNerds
"The grief of carrying all the years you've been sick on your shoulders."
Credit: @mindfullyevie (The one and only! 💜)
#pwME #MillionsMissing #TheChronicLife #MySeveralWorlds #FibroNerds
People Get Tired Of You Being Sick "When you first become ill, they will show you sympathy. They'll send you cards and hope you "get well soon." They'll call or text to check in and see how you're doing. They'll cut you slack. They'll be understanding when you have trouble keeping up. But once your illness becomes a chronic condition, they wonder why you can't get better. They show impatience and frustration. They stop trying to include you in plans. They ask why you aren't "trying harder." They don't get it. They just want you to be abled again so that you're not inconveniencing them. People get tired of you being sick, but they don't stop to think that you're probably fucking tired of being sick, too. They don't take the time to think about how you'd love to "just get over it." They don't care enough to realize you didn't choose this." Credit: mast_cell_activation_syndrome #TheChronicLife #MCAS #POTS #MySeveralWorlds #PainWarrior
"When you first become ill, they will show you sympathy. They'll be understanding when you have trouble keeping up.
But once your illness becomes a chronic condition, they show impatience and frustration."
@ mast_cell_activation_syndrome
#TheChronicLife #MCAS #POTS #MySeveralWorlds #PainWarrior
All the feels to hear an organisation talk about making #EquityOfAccess central to their values and their mission. @livetoyourlr.bsky.social #AccessibleArts #RuralLife #TheChronicLife
What is it they say? Slow it down and get a skeleton to sing it?
Me and my haunted piano possessed by a snippet of the new Florence and the Machine. #OneOfTheGreats #EverybodyScream #TheChronicLife #Piano #Halloween
Every time I think I might at last be able to 'draw breath' and have a 'normal' day, something new happens to set me back again. For friends and anyone who's missed me here, I'm likely to be only sporadically present for a while yet ...
Take care.
#TheChronicLife
"With complex, chronic illness nobody comes to save you. We're forced to dig ourselves out of crisis situations - time & time again. We have to navigate broken systems, assess risks, problem solve and research our own treatments. All while we're so unwell, we can barely function." Credit: Natalia @NataliaHodgins
One indicator of my disease getting worse AGAIN is non stop sobbing. It's because I know what's coming. 16 years - the patterns are so clear now.
#TheChronicLife #MySeveralWorlds #MedicalPTSD #LifeWithArthritis #MentalHealthMatters
In other news Kleenex seem to have added scent to tissues that previously were unscented and it doesn't say on the box they're scented so now we have tissues that actually make me sneeze. Just another daily #enshittification. #TheChronicLife
Splendid. Publishers and readers alike have lost sight of the fact that 'nature cure' as coined by Mabey referred to depression, not any physical illness or disability.
For me, #TheChronicLife admits varying degrees of contact with nature, day to day, which sometimes help mood, but that's all.
Up since 6am fasting for yet another scan would give anything for cuppa tea! #speirgorm #thechroniclife
If any of my moots also suffer from chronic gastrointestinal conditions I can’t say enough about aloe vera water. It has really made the difference in keeping a minor flare up from developing into an infection requiring medication. #TheChronicLife
And that too is ongoing. You can have diagnoses and be waiting decades on others (hi body! you know it! lets remember to call dermatology and gynaecology this month and also log that new allergy to raspberries!). But publishing, like society, is uncomfortable with all this chaos. #TheChronicLife
This is reflected in the books we write about our own illnesses. #TheChronicLife is messy, complicated, full of false-turns and wrong starts, full of red herrings. Full of uncertainty and trying. Most of us live decades in a limbo of #Undiagnosis, as Marcus Sedgwick wrote so beautifully about.
Personally I know several people with previously undocumented neurological conditions. The body is amazing in its variousness. This in itself is a classic but under-told illness story. But this uncertainty, uncertainty central to #TheChronicLife, tends to make Well people really uncomfortable.
Reading the Observer article I wondered if Moth's diagnosis shifted, as diagnoses often do, but Winn / editors decided that reality was too messy for narrative arc.
It's really important here to note that no one owes anyone disclosure of their condition. #DisabilityRights #TheChronicLife
More on this in light of Winn's rebuttal. 1. There is a lot of pressure on memoirists to simplify narratives. 2. As I write about in #SomeOfUsJustFall, diagnosis is an ongoing process, especially with complex chronic conditions. Theories are posed; the body concurs, or doesn't. #TheChronicLife
What's that bebe? You made it to the @wainwrightprize for Nature Writing longlist in splendid company?
Congrats everyone, especially to all our nonhuman co-writers. #NatureWriting #EcoWriting #TheChronicLife #TheCompanyOfOwls #BeMoreOwlet #Owlets #TawnyOwls
wainwrightprize.com/wainwright-p...
Image of invisible illness meme of pac-man, but instead of pac-man food, it's different colored and shaped pills lined up.
In my opinion, for humans to expect the natural world to cure us is as terrible for nature as for us - we value it for the service we expect from it, so the relationship is transactional, extractive - has no place for the needs or rights of nature itself. #NoNatureCure #TheChronicLife
A gold star please for practicing what I preach for once and recognising I did not have capacity to go for a swim this afternoon as well as preparing for this evening's @openbookreading.bsky.social #ChronicIllness #CreativeWriting group. The pressure of everydayness is the enemy of #TheChronicLife.
Anyone else newly removed from eligibility for the cvid booster this year? I've been today by my GP surgery they 'can't see I'm eligible' when I was 6 months ago. What's changed? Not my genetic conditions for sure. I hate hate hate all the extra work we have to do just to exist. #TheChronicLife
Moving Mountains is published in Canada today! You can now support disabled nature writers and buy Canadian [from a wonderful Canadian indie bookstore] at the same time 😜 #NatureWriting #DisabledWriters #DisabilityWrites #TheChronicLife #BookSky #EDSAwarenessMonth
Any by 'those who need to read it' I mean both other chronically ill people who, as I was with other books, have been helped by seeing their experiences represented. AND I mean all the [insert swear]s who deny our existence and rights. #EDSAwarenessWeek #TheChronicLife #DisabilityRights
