HERE'S WHAT LIVING WITH CHRONIC ILLNESS HAS TAUGHT ME You can't always predict your limits. Some days you'll crash after a five-minute walk, other days you'll do more than you thought possible. Guilt is inevitable, but it doesn't have to control you. Canceling plans doesn't make you unreliable- it makes you human. People will misunderstand or judge. That's on them, not you. Learning who deserves your explanation and who doesn't is key. Rest isn't a luxury or a punishment. It's a necessary part of the care plan. No one's advice or opinion is more important than your own experience with your body. Trust it. Credit @ARTHRITISMEGGIE #ChronicIllness #ChronicTruths #LifeWithArthritis #MySeveralWorlds #FibroNerds #ASWarrior #PsoriaticArthritis

HERE'S WHAT LIVING WITH #ChronicIllness HAS TAUGHT ME

Some days you'll crash after a 5 min walk, other days you'll do more
People will misunderstand
Rest is part of care
No one's opinion is more important than your own
Credit @ARTHRITISMEGGIE

#ChronicTruths #LifeWithArthritis #MySeveralWorlds

"With complex, chronic illness nobody comes to save you. We're forced to dig ourselves out of crisis situations - time & time again. We have to navigate broken systems, assess risks, problem solve and research our own treatments. All while we're so unwell, we can barely function." Credit: Natalia @NataliaHodgins

One indicator of my disease getting worse AGAIN is non stop sobbing. It's because I know what's coming. 16 years - the patterns are so clear now.

#TheChronicLife #MySeveralWorlds #MedicalPTSD #LifeWithArthritis #MentalHealthMatters

Dasha's Story - Arthritis Action My story began when I was at university at the age of just 19, after I woke up one morning with an inflamed red left eye. At first I just assumed it wasn’t anything serious, but it quickly became very...

Dasha was 19 when symptoms first appeared, it took several years before getting a diagnosis of Axial Spondyloarthritis. She says seeking others with the condition helped her a lot.

Read Dasha’s story: www.arthritisaction.org.uk/young_adults...

#LifeWithArthritis #AxialSpondyloarthritis

Carrie is seated in her RoBooter X40 Power wheelchair in Taiwan. Her wheelchair is art-funded. She is wearing a pair of black pants that have dragonflies on it and she is wearing her my several worlds t-shirt

Good morning from Taiwan! There is a human behind this page. I've worked for 18 years to write content for readers. This photo is from yesterday. I recorded a podcast with a friend about #LifeWithArthritis. I went out for a roll in the sun after!
#WheelchairLife #RobooterX40
#MobilityAidsAreFreedom

Carrie is wearing her MySeveralWorlds.com t-shirt. It features a hummingbird in flight over her heart. She is in front of her rainbow shelves in her home office/library in Taiwan.

Had a long, nerdy discussion today with Cheryl Crow for #ArthritisLife and #LifeWithArthritis
She asked me about my favorite #book. I have rainbow shelves. What does one say to that question? I went with My Several Worlds by Pearl S. Buck since it's the only book I brought to Asia in 2003. #SpA #PsA