My infection that I just did a week of IV antibiotics for is not gone 😭 #FuckLupus

Dragging out all the spf clothes (I don't have any regular clothes light enough) to deal with the 95+ degree heat and blazing sun. /ffs

#lupus #fucklupus #whining

Pity party time;

My lupus has come out of remission with all the joy it brings.

Fuck you, lupus.

#lupus #remission #fucklupus #pityparty

More "motivationals"
...
#autoimmune #lupus #SLE #ankylosingspondylitis #antiphospholipid #APS #fucklupus #transversemyelitis #ms #multiplesclerosis

Lupus Gang rise up

I do not need your advice, opinions, or thoughts and prayers.

Fuck you. 💜🦋
#fucklupus

I think I need to take a work break. I'm having a flare up again and it's been difficult to function, let alone work.

#fucklupus

It fits!! I sits!!

I'm already excited for shower time, which says a lot, considering it's usually my most daunting task.

#FuckLupus #SmallFiberNeuropathy #Dysautonomia #Spoonie #HealthSky

Broken glass hands and Lego feet have returned, but of course the neurology appointment isn't until January.

#fucklupus #ihatethis

Achievement unlocked

Went to the ER for pain

#fucklupus

New Symptom Unlocked
Extreme Sunsickness
You may experience:

Serve sun burn (even while using protection)
Shakes
Trouble breathing
Cognitive issues

Yay me.
#fucklupus

Selfie of woman in blue shirt

I’m having shoulder replacement surgery on my right shoulder June 17. I’m fucking exhausted & over this year & the 2020’s in general.😑 I always take a birthday selfie so here’s my 62nd, the smile attempt is courtesy of weed.🙃 #FuckCancer & #FuckLupus

#FuckLupus

From Rachelle Raelynn, altering a bit for the short form:
We have a few more days to fill. It would mean so much for you all to share our meal train!
www.giveinkind.com/.../show-lov....
Again, Ahéhee! Thank you!!! 🖤
#FuckLupus

I just want to be as normal as possible #fucklupus 😭🖕🏾

My body aches so much #fucklupus

Graphic showing the impact of lupus on the body: Central and Peripheral Nervous System: Seizures, Psychosis, Headaches, Cognitive Dysfunction, Neuropathies, Depression, fever Heart, Lungs: Pericarditis, Myocarditis, Endocarditis, Pleuritis, Pneumonitis Kidneys: Edema, Hypertension, Proteinuria, Cell Casts, Renal Failure Reproductive System: Pregnancy Complications, Miscarriages, Menstrual Cycle Irregularities Eyes and Mucous Membranes: Ulcers in the Eyes, Nose, Mouth or Vagina, Sjogren's Syndrome Gastrointestinal: Nausea, Vomiting, Diarrhea, Weight Changes Musculoskeletal: Extreme Fatigue, Arthralgia, Myalgia, Arthritis, Myositis Blood: Anemia, Thrombocytopenia, Leukopenia, Thrombosis, Circulating Autoantibodies and Immune Complexes Skin: Butterfly Rash, Cutaneous Lesions, Photosensitivity, Alopecia, Vasculitis, Raynaud's Phenomenon Lupus can affect any part of the body; however, most people experience symptoms in only a few organs. • Lupus is an incurable chronic autoimmune disease that causes inflammation in various parts of the body. The disease can range from mild to life-threatening. • The cause of lupus is unknown. Scientists believe that individuals are genetically predisposed to lupus, and that environmental factors "trigger" the symptoms. • 90% of people with lupus are women, 80% of them developed lupus between ages 15 and 45. • With proper treatment, most people with lupus can live a normal life span.

Thanks to flare-up pain only letting me have just 2 hours of sleep, I’m a cranky dragon today. At least the migraines are behaving themselves - barely any migraine activity since starting #ajovy 🎉

This is a good opportunity to spread #lupusawareness. 💜

#FuckLupus #lupus #chronicillness #disabilty

Me laying on a bed chronically ill

If anyone needs me, I'll be here. When will they make a body-sized heating pad? Asking for millions of friends. #FuckLupus

I struggle to watch my mom decline in health. It makes my heart break and all i wanna do is make it all go away.

Shit things shouldn’t happen to good people. 😞 #fucklupus #fuckMS