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“Understand we need your support”
A hand drawn young person has lots of speech bubbles above them, expressing their thoughts.

“Understand we need your support” A hand drawn young person has lots of speech bubbles above them, expressing their thoughts.

We want to hear your thoughts on how the medical needs of young people with Long Covid and overlapping illnesses could be better supported in school.

#LongCovidKids #LongCovidAwareness #YouthVoice #ParentVoice
#SENDSupport #ChronicIllness #SchoolSupport
#Education #Inclusion #EquitableEducation

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A colourful poster designed by a young person shows three people sitting on chairs and one person floating above. 

“I’m not fine”
“BUt you look fine”

A colourful poster designed by a young person shows three people sitting on chairs and one person floating above. “I’m not fine” “BUt you look fine”

When is the meeting?
📅 Wednesday 15th April
🕔 5:00pm – 6:00pm
📍 Online (joining details will be shared after registration)

#LongCovidKids #LongCovidAwareness #YouthVoice #ParentVoice
#SENDSupport #ChronicIllness #SchoolSupport
#Education #Inclusion #EquitableEducation

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Preview
The Jump Rope Queen of Beverly Hills

www.nytimes.com/2026/04/10/w...
GIFT ARTICLE:
Just the inspiration that we need on a Saturday in early April. 🌸
I'm even more determined to find a fun way to safely move my body, without the threat of P.E.M. following to punish me. (Maybe not jumping?) ⚡️✨️
#longcovidawareness #movement #healthyheart

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Email your MP about Long Covid Awareness Day

Lesley has written to their MP to support children with Long Covid during #LongCovidAwarenessMonth — will you join them? It only takes a minute: longcovidkids.eaction.org.uk/awarenessday... #LongCovidAwareness #LongCovidAwareness #ChildrensRights%0A

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Biggest heartbreak of your life. #LongCovidHeartbeats
#LongCovidAwareness

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Submit Contact Information Received Back from Long COVID Awareness Outreach Thank you for taking action to elevate Long COVID awareness. This form allows us to track outreach efforts, coordinate follow-up, prevent duplication, and strengthen our collective impact across state...

Share any contacts you made so we can continue strengthening these relationships:
docs.google.com/forms/d/1ago...

Every action matters. Let’s keep building. #LongCOVID #LongCOVIDAwareness #OneInfectionAway
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#LongCOVIDAwareness Month Roundup!

Many secured meetings, connected with lawmakers, & helped move this work forward—& we want to highlight & build on that momentum.

Tell us what you did! Meetings, outreach, events, or any action taken with C19LAP:
docs.google.com/forms/d/1yqP...
1/

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#ConnectTheDots #Covid #MaskUp #LongCovid #LongCovidKids #LongCovidAwareness

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Share Your Long COVID Story The World Health Network (WHN) is gathering stories in support of Long COVID awareness. We want to hear from those with lived experience—patients, caregivers, clinicians, and advocates--so that we can...

Your voice helps raise awareness, inform research, and push for real change.

docs.google.com/forms/d/1wed...

#LongCOVID #PublicHealth #COVID #COVID19 #LongCOVIDAwareness

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#LongCovidAwareness #LongCovid #LongCovidKids #MaskUp #Covid

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Video

Jo Dainow, Founding Member and Trustee of Long Covid Support, wants to see better funding, greater awareness and more attention from policymakers for Long Covid patients.

#LongCovid #LongCovidAwareness #LongCovidSupport

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International Long Covid Awareness 
Today is the last day of International Long Covid Awareness Month, but for millions of people suffering from Long Covid, this is not the end of anything. It is ongoing, daily, and life-altering.

Long Covid continues to impact peoples’ livelihoods and futures, yet the global response still falls incredibly short. Governments and healthcare systems must do more! 

We saw many buildings/landmarks lit teal for Long Covid, politicians speaking about Long Covid, proclamations, resolutions, and demonstrations. Awareness is important and creates a base of knowledge we hope continues to spread. What we need to see further is real and immediate action from our governments, health agencies, researchers, and medical fields!

We need more than words. We urgently need prevention. We need care. We need tests. We need treatments. We need solutions!

Long Covid must be recognized for what it is: an international public health emergency that needs dedicated funding and support. 

Grateful to all the Long Covid patients who have worked so hard to raise awareness this month. Your voices and efforts matter so much!
A heartfelt thank you as well to the allies, caregivers, and supporters who stand beside this community, we appreciate you more than words can express!

Long Covid awareness is every single day. For some, that means using whatever limited energy we have to push through the year to keep working on awareness projects behind the scenes or continuing to raise awareness in our daily lives, all while managing appointments and getting through each day with our symptoms.

We’re starting planning for next year now, so please start sharing your ideas and suggestions for 2027 International Long Covid Awareness Day/Week/Month!

Email your ideas to:
LongCovidAwareness@gmail.com

Solidarity

International Long Covid Awareness Today is the last day of International Long Covid Awareness Month, but for millions of people suffering from Long Covid, this is not the end of anything. It is ongoing, daily, and life-altering. Long Covid continues to impact peoples’ livelihoods and futures, yet the global response still falls incredibly short. Governments and healthcare systems must do more! We saw many buildings/landmarks lit teal for Long Covid, politicians speaking about Long Covid, proclamations, resolutions, and demonstrations. Awareness is important and creates a base of knowledge we hope continues to spread. What we need to see further is real and immediate action from our governments, health agencies, researchers, and medical fields! We need more than words. We urgently need prevention. We need care. We need tests. We need treatments. We need solutions! Long Covid must be recognized for what it is: an international public health emergency that needs dedicated funding and support. Grateful to all the Long Covid patients who have worked so hard to raise awareness this month. Your voices and efforts matter so much! A heartfelt thank you as well to the allies, caregivers, and supporters who stand beside this community, we appreciate you more than words can express! Long Covid awareness is every single day. For some, that means using whatever limited energy we have to push through the year to keep working on awareness projects behind the scenes or continuing to raise awareness in our daily lives, all while managing appointments and getting through each day with our symptoms. We’re starting planning for next year now, so please start sharing your ideas and suggestions for 2027 International Long Covid Awareness Day/Week/Month! Email your ideas to: LongCovidAwareness@gmail.com Solidarity

AWARENESS➡️ACTION

#LongCovid #CureLongCovid
#LongCovidAwareness
#LongCovidKids #Mask #COVID
#LongCovidHeartbeats
#OneInfectionAway
#LitForLongCovid
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
#LongCovidMakesUsOne

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#FirstDoNoHarm #ChronicAllies #LongCovidAwareness #MedEd #PublicHealth #IndigenousHealth #Stigma #LongCovid #LongCovidKids

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Today marks the end of #LongCovidAwareness Month. My thoughts and gratitude to everyone who have been advocating for #LongCovid. Thank you 💙🙏

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Video

Watch the full Long Covid in Children webinar, featuring leading pediatric Long Covid physicians and researchers Dr. Rachel Gross and Dr. Alexandra B. Yonts:
covidsociety.ca/priorities/l...

#LongCovid #pediatriclongcovid #LongCovidAwareness

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Video

Mars se termine.
Mais la sensibilisation au #CovidLong ne s'arrête pas là !
Le Covid Long existe, et il change des vies...
Continuons à en parler.
Continuons à partager.
#LongCovidAwareness #ApresJ20

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Lived experience Quote from a long Covid patient and advocate in the uk: “Not for this, nor any other epidemic should “living with” mean abandoning public health and treating people as disposable. We need to protect human biosystems, for the wellbeing of our societies, economies and survival as a species”.

Lived experience Quote from a long Covid patient and advocate in the uk: “Not for this, nor any other epidemic should “living with” mean abandoning public health and treating people as disposable. We need to protect human biosystems, for the wellbeing of our societies, economies and survival as a species”.

3/ and as always our lived experience will be front and centre.

This feels like the most fitting end to #longcovidawareness #longcovidawarenessmonth

Thank you to our community signatory for this 💛

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Post image

📢 RECENSEMENT COVID LONG – ÎLE-DE-FRANCE

Alors que le mois de sensibilisation au Covid long s’achève, nous lançons une action collective.

#ActionCovidLong #CovidLong #CovidLongPédiatrique
#LongCovidAwareness

🧵👇

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Video

Learn more about #LongCOVID and the respiratory system here: (insert respiratory YouTube link here)

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

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Video

Jo Dainow, Founding Member and Trustee of Long Covid Support, shares the story of how the charity was founded and what it's focus is now.

#LongCovid #LongCovidAwareness #LongCovidSupport

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I was in bed on Long COVID Awareness Day. This is what I would have said. New essay at Center Left.

#LongCOVID #MECFS #LongCOVIDAwareness #ChronicIllness #PEM

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Graphic with a computer screen showing the change.org petition titled “Demand Federal Action on Biomedical Care for Children Living with Long COVID” 
The French translation of this title is immediately below.

Below the titles is the Children’s Long Covid Network (CLCN) logo. This includes a graphic of a highly stylized hand, palm up, in a dark teal colour. In the hand are three figures in a coral pink colour. Beside this graphic is the organization’s name and tagline, which reads: “Children’s Long Covid Network
Their strength. Their journey. Our responsibility.”

The French translation of this text is directly below.

The computer screen sits on a background featuring a navy and teal gradient. There are blue-toned dots scattered across the background.

Graphic with a computer screen showing the change.org petition titled “Demand Federal Action on Biomedical Care for Children Living with Long COVID” The French translation of this title is immediately below. Below the titles is the Children’s Long Covid Network (CLCN) logo. This includes a graphic of a highly stylized hand, palm up, in a dark teal colour. In the hand are three figures in a coral pink colour. Beside this graphic is the organization’s name and tagline, which reads: “Children’s Long Covid Network Their strength. Their journey. Our responsibility.” The French translation of this text is directly below. The computer screen sits on a background featuring a navy and teal gradient. There are blue-toned dots scattered across the background.

Last fall, the Children’s Long Covid Network launched a petition calling on the federal government to take action for children living with Long Covid. Learn more, and add your name to those calling for action: chng.it/7ZSzLXnp5n
#LongCovid #ILCAD2026 #LongCovidAwareness #pediatriclongcovid
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Big thanks to @foushee.house.gov for introducing a resolution to recognize March as #LongCovidAwareness Month. Visibility matters!

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# 🫀 Atteintes cardiovasculaires dans le #CovidLong 🫀Atteintes cardiovasculaires dans le #CovidLong Le COVID-19 n’est pas seulement une infection respiratoire. Les données scientifiques accumulées depuis 2020 montrent que les survivants présentent un...

📄Dossier complet : urlr.me/Gx36Qw

#LongCovidAwareness #Apresj20 #LongCovid #SantéPublique #Cardiologie #POTS #Dysautonomie #HandicapInvisible @secardiologia.bsky.social @lcawarenessint.bsky.social @info.gouv.fr

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🎯Objectif : comprendre ses limites pour mieux se protéger

Dans le #CovidLong, écouter son corps fait partie intégrante du soin.

#ApresJ20
#LongCovidHeartBeats
#LongCovidAwareness
#EveryHeartbeatCounts
@lcawarenessint.bsky.social

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DANS LE COVID LONG, LES ATTEINTES CARDIOVASCULAIRES NE SONT PAS TOUJOURS VISIBLES.
MAIS ELLES AFFECTENT PROFONDÉMENT LA CIRCULATION, L'ÉNERGIE ET LA VIE QUOTIDIENNE.
RECONNAÎTRE LE POTS, C'EST MIEUX COMPRENDRE LE COVID LONG.
#LONGCOVIDAWARENESS
#LONGCOVIDHEARTBEATS
ApresJ20

DANS LE COVID LONG, LES ATTEINTES CARDIOVASCULAIRES NE SONT PAS TOUJOURS VISIBLES. MAIS ELLES AFFECTENT PROFONDÉMENT LA CIRCULATION, L'ÉNERGIE ET LA VIE QUOTIDIENNE. RECONNAÎTRE LE POTS, C'EST MIEUX COMPRENDRE LE COVID LONG. #LONGCOVIDAWARENESS #LONGCOVIDHEARTBEATS ApresJ20

#longcovidawareness #longcovidheartbeats
#LongCovid #POTS #Dysautonomie #Apresj20 @lcawarenessint.bsky.social

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COVID long : patients et recherche en déshérence La journée internationale de sensibilisation au Covid long, du 15 mars dernier, a été l’occasion de rappeler que cette forme de Covid a toujours du mal à être reconnu par les médecins malgré la défini...

#ApresJ20 #LongCovid #SantéPublique #Recherche #Médecine #HandicapInvisible #LongCovidAwareness
@info.gouv.fr @santepubliquefrance.fr @whoeurope.bsky.social @who.int

🔗Lire l'article au complet 👇

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Video

Learn more about #LongCOVID and the otolaryngologic (ENT) system here: https://youtu.be/I7eOYufaQ7I

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

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Dans le #CovidLong,
👉 s’adapter, c’est se préserver

#ApresJ20
#CovidLong
#LongCovidHeartBeats
#LongCovidAwareness
#EveryHeartbeatCounts

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#LongCovidAwarenessDay
#LongCovidAwarenessMonth
#LongCovidAwareness
#LongCovidHeartBeats
#ApresJ20 #CovidLong

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