Blue ribbon on light blue background... Today is the last day of #MECFSawarenessmonth 💙 ✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe! https://www.zeffy.com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755 ... #MECFS #RenegadeResearch

Today is the last day of #MECFSawarenessmonth 💙

✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!

www.zeffy.com/en-US/fundra... ... #MECFS #RenegadeResearch

#mecfswarrior #MECFS #mecfsawarenessmonth #invisibleillness #pots #potsawareness #potssyndrome #longcovid #longcovidawareness #longcovidrecovery #volunteer #volunteering #community #givebacktothecommunity #giveback #dontgiveup

There is so much in me begging to get out! I want to work, sweat, toil and exhaust myself working towards dreams and goals and see them become real in front of me!

Oh, but I forgot, I don't want any of that, you're right Simon Wessely I love this, please repress me more.

#MECFSAwarenessMonth

#MECFSAwarenessMonth – Day 22: Conclusion
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.

A blue ribbon on a light blue background to create awareness for #MECFSAWARENESSMONTH #MECFS

May is #MECFSAwarenessMonth!

✅️ Accelerate research and care for ME/CFS + Long COVID

Donations of any size are greatly appreciated. 💙 Please like + share this message to help create awareness. Thank you! #MECFS

www.zeffy.com/en-US/fundra...

#MECFSAwarenessMonth – Day 21
2021: After a comprehensive review, NICE finds all evidence for Graded Exercise Therapy and CBT to be of low or very low quality. GET is found to be harmful and is no longer recommended. CBT is downgraded to supportive use only.

#MECFSAwarenessMonth – Day 20
2018: Emma Shorter tells the Scottish Parliament how Graded Exercise Therapy left her needing a wheelchair. Prof. Jonathan Edwards submits evidence saying patients were vilified but they were right — the science was poor quality.

#MECFSAwarenessMonth – Day 19
2018: A re-analysis of the PACE trial, using the authors’ original plan, finds the results were inflated and that GET and CBT are not effective. If the authors had kept to their original plan, the PACE trial could not have been reported as a success.

#MECFSAwarenessMonth – Day 18
2018: MP Carol Monaghan leads the first of 3 UK Parliament debates on ME, including one about the PACE trial. She highlights patient harm and flawed research, calling it “one of the biggest medical scandals of the 21st century.”

#MECFSAwarenessMonth – Day 17
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.

#MECFSAwarenessMonth – Day 16
May 2017: Merryn Crofts dies of Severe ME. Merryn’s mum, Clare Norton, is very critical of the PACE trial and the NICE guideline, believing advice to slow down and rest earlier might have prevented her deterioration into Severe ME.

#MECFSAwarenessMonth – Day 14:
2015: Long-term PACE trial results show no long term benefit from CBT or GET compared to standard medical care. Yet authors still claimed effectiveness. The Science Media Centre backed the findings, and media reported success despite criticism.

#MECFSAwarenessMonth #MECFSAwarenessDay #MECFS

on.soundcloud.com/wM8wGwt9bUoZ...

#MECFSAwarenessMonth – Day 13
2015: A landmark report in the US reviews 9,000+ studies and concludes ME/CFS is a “serious, chronic, complex” disease — not psychiatric. It identifies post-exertional malaise as a key diagnostic feature and helps shift understanding.

Au milieu de l'illustration, il est écrit "12 mai. Journée internationale de sensibilisation à l'EM." Un ruban bleu clair est affiché sur un fond sarcelle avec le logo de l'Association québécoise de l'encéphalomyélite myalgique (AQEM) dans le coin inférieur gauche.

#JourneeSensibilisationEMSFC #MEAwareness #MEAwarenessDay #MEAwarenessMonth #MECFSAwareness #MECFSAwarenessDay #MECFSAwarenessMonth #MEAwarenessDay2025 #MECFSAwarenessDay2025
#EncephalomyeliteMyalgique #EMSFC #PAEM #MyalgicEncephalomyelitis #MECFS #pwME

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Picture of a woman with long dark hair sitting outdoors in a travel electric wheelchair. She has sunglasses on her head and she is wearing a blue long sleeve shirt that says "Still sick, still fighting. There's a caption on the left half of the picture that says, "Half of people with Long COVID develop Myalgic Encephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed ME, a complex, chronic, multisystem and disabling illness with no treatments and no cure. We need better clinical care, and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid catching unnecessary infections which put you at high risk of joining the #MillionsMissing from their lives due to ME."

#MEAwareness #MEAwarenessDay #MEAwarenessMonth #MECFSAwareness #MECFSAwarenessDay #MECFSAwarenessMonth #MEAwarenessDay2025 #MECFSAwarenessDay2025 #MyalgicEncephalomyelitis #MECFS #pwME

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#MECFSAwarenessMonth – Day 12
2011: Ian Gibson MP highlights a high-level block on biomedical #MECFS research. A study also reveals nurses’ frustration delivering psychological treatments — one supervisor reported a feeling of, “the bastards don’t want to get better.”

past puzzle Errate mithilfe von 4 historischen Ereignissen das gesuchte Jahr. Ein von Wordle und Geschichten aus der Geschichte inspiriertes Spiel.

Das weiß ich leider aus eigener Erfahrung und früherer Recherche. 😔
#Rätselspaß
#pastpuzzle ME/CFS Awareness Day
#MECFS
#MECFSAwarenessMonth
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www.pastpuzzle.de

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#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth

Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others

www.youtube.com/watch?v=9_Hw...

Day11

#PwME #SevereME
#mecfs @janetdafoe.bsky.social

#MECFSAwarenessMonth – Day 11
The Science Media Centre, which has strong ties to Wessely, launches a media campaign portraying #MECFS patients as dangerous activists who threaten researchers - it discredits patients and diverts attention from valid concerns about research.

#MECFSAwarenessMonth – Day 10
2011: The £5m PACE trial claims CBT and Graded Exercise Therapy are effective treatments for ME/CFS. It’s widely condemned as deeply flawed and later cited as a case study in bad science.

Busy May ahead of us 💜

Monday the 12th is National ME Day, and I'll be sharing my story on stream as well as others to spread awareness

Any money from that stream will be donated to MEASSOCIATION charity

#MECFS
#MECFSAwarenessMonth
#LongCovid #pwME #pwLC

www.twitch.tv/katyfear

#MECFSAwarenessMonth – Day 9
2007: NICE publishes a guideline recommending Graded Exercise Therapy and CBT for #MECFS. It’s condemned by doctors, charities, researchers, and patients due to weak evidence, bias on the committee, and concerns about harm.

#MECFSAwarenessMonth – Day 8
2005: Sophia Mirza dies of severe ME. Prior to her death, she was wrongfully sectioned for refusing to attend a clinic offering Graded Exercise Therapy. Mistreatment during her stay led to a dramatic deterioration, and she never recovered.

#MECFSAwarenessMonth – Day 7
1999: Wessely sets up the first NHS clinic for CFS. An influential GP training video calls patients “very frustrating” due to arguments, downplays severity, and promotes exercise even when they feel “rotten” — which is potentially very harmful.

A blue ribbon and message below May is #MECFS Awareness Month! 💙 ✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe! https://www.zeffy.com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755 #donate #MECFSawarenessmonth

May is #MECFS Awareness Month! 💙 #MECFSawarenessmonth

✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!

www.zeffy.com/en-US/fundra... ... #donate

#MECFSAwarenessMonth – Day 6
1993-96: Wessely lobbied the UK government to reject ME as a neurological disorder and led an influential report that downplayed biomedical causes, pushed psychological treatments, and resulted in the virtual disappearance of ME for the next decade.

#MEcfsAwarenessMonth

#MECFSAwarenessMonth – Day 5

1991, the Oxford criteria for CFS were published. Vague and overly broad, they effectively identified people with unexplained fatigue. Despite being seriously flawed, they became popular in UK research and distorted understanding of ME for decades.

Color photo of Suzanne, a fat older white woman, lying down holding a sign. The sign reads: ME/CFS is waking up every day feeling hungover and in heroin withdrawal - when you've been sober and off drugs since 1989.

May is #mecfsawarenessmonth. @openmedf.bsky.social is a nonprofit leading the effort to find treatments and a cure for ME/CFS & Long COVID. Their #mecfsis awareness campaign with @lowenergylounge.bsky.social is showing some faces of ME - some of us who can safely afford to disclose our disability.