I think they’re a great idea for hygiene reasons, but is it really necessary to have the sensor in such a silly position?! 🤦‍♀️😅

#PatientAdvocate #NoColonStillRollin #Ostomate #Stoma #Ileostomy #Urostomy #Colostomy #OstomyAwareness #OstomyBag #StomaBag #IBDSuperHeroes #Crohns #Colitis #IBD

Let’s break the stigma, raise awareness, and get gutsy together! 🦸

#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #InflammatoryBowelDisease #IBDWarrior #CrohnsColitis #LivingWithIBD #ItTakesGuts #NoColonStillRollin #IBDfighter #IBDlife #Ostomate

🫖 Herbal tea selection
💧 Oral rehydration solution tabs
🕯 Scented candle set
💎 Chakra aromatherapy bracelet

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate

Saturday morning chores 💊

The joy, and reality, of #ChronicIllness life.

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #Ostomy

Thanks so much to everyone who’s entered and shared so far 🫶

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #GiveawayContest #GiveawayTime

Time to do my weekly meds 💊 again. It would be great if they actually made me feel remotely "healthy" 🙄

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin

The bad news: I was back in the ER again yesterday. 🤕

The good news: I’ve now seen Ocean’s 11 through 13 whilst high as a kite on morphine & dilaudid. 😵‍💫

#ulcerativecolitis #jpouch
#nocolonstillrollin #chronicillness

And despite dealing with these 🤬 #ulcerativecolitis complications & several weeks in the hospital, we finally got our first🎄tree up last night! 🎁🥰

Decorations to come after my surgery later this week.

🎄❄️🧑‍🎄☃️

#IBD #UC #nocolonstillrollin
#NewMexico

#PoeTheCat always knows when I’m unwell & need her snuggles. She’s been constantly cozying up to me during the few days I’ve been at home & not in the hospital. 😻

Here’s a cute pic of Poe comforting me as I prepare emotionally/physically for tomorrow’s bowel surgery.

#UC #nocolonstillrollin
#IBD

#sunflower pic from my garden this past summer.

I’ve been in the hospital for nearly 3 weeks now thanks to #ulcerativecolitis and #rotavirus.

I miss the outside. 🦜🌻🕊️🌸☀️

#jpouch #nocolonstillrollin #gardening

A brilliant blue sky behind some yellow wild grass and a bush with fiery orange branches

Wishing I was outside enjoying these New Mexico #blueskies instead of being back in the hospital & getting ready for an upper endoscopy. At least I’ll get a nice nap out of the deal.

See you on the other side friends!

#ulcerativecolitis #IBD #nocolonstillrollin

Getting ever closer to goal of 20 5Ks in 2020. #TurtleKrawl5K makes 19. At 27:56 not quite my best time but close & final split of 8:18 tells me I can get to the sub 25min goal by year end.
#GetSome #WhateverItTakes #IamTheStorm #FasterWithoutThoseOrgans #NoColonStillRollin

1yr ago woke f/1st of 3 surgeries to save me & rebuild GI system. 6wks later, was back in sky & 6mos later, engaged, ran 1st of 20 5ks in 2020. Today, may have #Crohns but training at full speed, blessed, celebrating every day. #IAmTheStorm #StitchHadAGlitch #NoColonStillRollin

Beautiful day to have a beautiful day + run 5K to warm-up 4 a 5k. W/#CincoKMayoRun complete, 7 of 20 5Ks in 2020 done, 8-11 on deck in May. Thank u @ColRunner 4 keeping races going virtually!

#GetSome #WhateverItTakes
#IamTheStorm
#FasterWithoutThoseOrgans #NoColonStillRollin

Beautiful day 4 #EasterEscapade #5k. 5k number 6 of 20 for 2020 in the books. No virus keeping us f/having fun, pushing harder & crushing goals!

#PainIsWeaknessLeavingTheBody
#GetSome #BringIt #WhateverItTakes
#IamTheStorm
#FasterWithoutThoseOrgans #NoColonStillRollin

#5K number 4 of 20 in 2020 complete! Took 2min off last 5K 2 wks ago. 17th overall, 1st in age group. 4 down, 16 to go. Next one in 2 weeks.
#205KsIn2020
#PainIsWeaknessLeavingTheBody
#GetSome #BringIt #WhateverItTakes
#SecondChanceFirstPlace
#IamTheStorm
#NoColonStillRollin

Big goals on health & fitness front this year for both of us so 70 degrees + sunshine = time to run. Slowly getting pace up. 2020 goals include 20 5Ks with at least half sub 30 & at least one under 25 #GetOutside #5KTraining #GoRun #IAmTheStorm #NoColonStillRollin

With doc’s approval to return to full duty & play, seems like good time to get back to full-speed living & training. What better way to start the year than running a 5k? I know: two 5ks two days in a row 😁Here’s to #2 with my #1! #SharkBite5k #5k #NoColonStillRollin #IAmTheStorm