Do you live with a Hypermobility Syndrome?
DYK: There are 6 (known) Types of Hypermobility Syndromes. Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders are two.
#hypermobility #hypermobilitysyndrome #HSD #hEDS #EDS #ehlersdanlossyndrome #sticklersyndrome #marfan #osteogenesisimperfecta
ICYMI BOOK REVIEW: #HandleWithCare by JodiPicoult. A multi-POV story of a child born with osteogenesis imperfecta and a wrongful birth lawsuit.
suanneschaferauthor.com/book-review-...
#LiteraryFiction
#OsteogenesisImperfecta
#WomensFiction
#AmReading
#Bookstagram
#BookSky
#BookReviews
A targeted dietary interventions can mitigate not only metabolic risks but also key comorbidities, such as supine paradoxical breathing, in individuals with Osteogenesis Imperfecta. #osteogenesisimperfecta link.springer.com/article/10.1...
#OsteogenesisImperfecta or #FreeMasonGold.
#ShrinersHospitals are for the shriners.
Promotional graphic for a January 21 episode of the Disability Daily Podcast featuring Gaelynn Lea. The poster includes the podcast logo, a softly lit background with warm bokeh lights and a violin graphic, and a photo of Lea seated in a wheelchair playing the violin, the instrument resting across her left shoulder. Her eyes are closed, conveying focus and concentration. Text identifies her as a folk musician with osteogenesis imperfecta.
Today on the #Disability Daily #Podcast we celebrate Gaelynn Lea, #folk musician & disability #advocate with #OsteogenesisImperfecta.
Listen & read transcript: tinyurl.com/DisabilityDaily
#violin #music #wheelchair #TinyDesk #accessibility #Broadway #Macbeth #speaker @gaelynnlea.bsky.social
BOOK REVIEW: #HandleWithCare by Jodi Picoult. A multi-POV tale of a child with osteogenesis imperfecta and a wrongful birth lawsuit.
suanneschaferauthor.com/book-review-...
#MedicalMalpractice
#OsteogenesisImperfecta
#WomensFiction
#WrongfulBirthLawsuits
#AmReading
#Bookstagram
#BookSky
#BookReviews
#LegacyContent: Genotype and Phenotype Correlation of Patients with #OsteogenesisImperfecta.
Free in the #OpenArchive: www.jmdjournal.org/article/S1525-1578(24)00...
My legs are COVERED in bruises today 😫
My condition causes me to bruise extremely easily. All I did was use a basket on my lap while grocery shopping in my wheelchair 😅
#VTubersWithDisabilities #OsteogenesisImperfecta
Christine Sun Kim with a chin-length black, blue, and teal bob and round glasses. She wears a long-sleeved gray shirt and black pants, and deep purple lipstick. With a serious facial expression, she signs the word "day" in American Sign Language by holding her right arm vertically with pointer finger extended; her right elbow rests on the back of her left fingertips, with her left arm held horizontally.
Black and white photo of Ruth Benedict with short white or gray hair. She wears a long-sleeved dark top with white ruffles on her chest, and she sits in front of a full bookshelf holding a book open.
Philippe Rahmy wearing a braided straw fedora and glasses. He stands in front of water and looks at the camera. He has a mustache and goatee.
Black and white headshot of a smiling J. Glenn Beall with short white hair wearing a white shirt and dark tie and suit.
Today on the #Disability Daily #Podcast we celebrate politician & #polio survivor J. Glenn Beall, #HardOfHearing #anthropologist Dr. Ruth Benedict, #poet with #OsteogenesisImperfecta Philippe Rahmy & #Deaf sound artist Christine Sun Kim!
Listen & read transcript
#accessibility #a11y #EduSky
20 000 kutsua nummille ja muita kuulumisia!
youtu.be/nFfp3vVJZ8E?...
@karistonkirjat @sagafinland #kaisaikola #kaisaviitala #ylämaasarja #hulluluokka #kerälläsarja #bettykirjat #nummienkutsu #osteogenesisimperfecta #vammaisuus
Ohha, da hab ich ja fast noch "Glück" mit meiner #Osteoporose als Folgeerkrankung bei #Osteogenesisimperfecta.
Ich finde diese Bezeichnung einer so komplexen Behinderung ziemlich RTL2-mäßig, denn die Knochen sind nicht aus Glas. Es ist ein Kollagenmangel, der durch eine Hormonstörung hervorgerufen wird. Es betrifft das gesamte Bindegewebe und nicht nur Knochen. #OI #Osteogenesisimperfecta
Madge Bester wearing a black and white checkered dress, red socks, and glasses. Her hair is pulled back, and she smiles at the camera sitting in a wheelchair.
Black-and-white photo of roller derby skater Sammy Skobel wearing jersey number 14, knee pads, and quad skates. He is crouched slightly forward in an athletic stance, hands resting on his knees, with his name printed to the left.
Today on the #Disability Daily #Podcast we remember #SouthAfrican disability rights advocate with #OsteogenesisImperfecta Madge Bester & #blind American #RollerDerby skater Sammy Skobel.
Listen & read transcript
#dwarfism #SouthAfrica #LowVision #VisionLoss #accessibility #sports #skiing #a11y
Hope you had a lovely Easter!
Been looking back through some of my dad‘s photos over the holiday. This one made me smile.
That’s my Nan holding me. And yes, I’m wearing plaster cast trousers. 🤣
#osteogenesisimperfecta #brittlebones #memories #childhood #ifeelold #fashionstatement #fashionfail
Photos: National Geographic/Hugo van Lawick (Goodall); LIFE Magazine (LPA)
#accessibility #anthropology #chimpanzees #primates #advocacy #environmentalism #Reno #SpondyloepiphysealDysplasia #Achondroplasia #OsteogenesisImperfecta #Tanzania #chimps #JaneGoodall #HigherEd
Collage of three images. Left: Graphic for World Down Syndrome Day featuring colorful mismatched socks and a blue and yellow awareness ribbon on a clothesline, with the date "21 March." Middle: Kalyn Heffernan smiles and sits in a power wheelchair wearing a black ADAPT shirt, dark sweatshirt, black bowler hat, nose ring, and drawn-on mustache. Right: Title page from "The Gardener's Monthly and Horticulturist," edited by Thomas Meehan, dated 1877.
Today on the #Disability Daily #Podcast we celebrate World #DownSyndrome Day and the birthdays of disability rights activist & musician with #OsteogenesisImperfecta Kalyn Heffernan & #deaf botanist Thomas Meehan.
Listen & read transcript: disabilitydaily.podbean.com/e/episode81/
🗃️ #history #a11y
Black and white photo of Peter Radtke, seated on a stage wearing a white shirt and dark pants and suspenders, holding a bottle in one hand. He looks up, and he appears to be speaking.
Today on the #Disability Daily #Podcast we remember Dr. Peter Radtke, #German #actor, #playwright, & disability advocate with #OsteogenesisImperfecta who escaped the #Nazi euthanasia program.
Listen & read transcript: disabilitydaily.podbean.com/e/episode79/
#history #WW2 🗃️ #eugenics #AktionT4
Oh, I forgot: they mentioned my disease on the new Watson series this week.
In the beginning, some guy broke his wrist and they mentioned not only Osteogenesis Imperfecta but also the blue (meh, gray) sclera that can indicate it.
@orbitingoctagon.bsky.social
#OI #OsteogenesisImperfecta
Hyvää Kalevalan päivää ja harvinaisten sairauksien päivää! Video on viime vuoden karkauspäivältä, mutta asia ei muutu — ei tulevankaan Nummien kutsu -sarjan osan suhteen.
www.facebook.com/share/r/16Di...
#harvinaistensairauksienpäivä #osteogenesisimperfecta
4 images. First, Ethelda Bleibtrey with short blonde hair smiles in a one-piece swimming suit with both arms stretched out in front her, as if she were about to dive into the water below her. She stands at the edge of a wooden dock with her knees together and bent, and she looks up and smiles at the camera. Second, Quentin Kenihan seated in a wheelchair wearing a Marvel comic-themed T-shirt. He has a nasal cannula for oxygen support and a short beard. He holds up a Funko Pop! figure from Mad Max: Fury Road, featuring the character Rictus Erectus. His facial expression is intense, with wide eyes and an open mouth, while he points to the figure with his other hand. Third, a red banner with a nose icon for Anosmia Awareness Day on February 27. Last, a newspaper headline that reads Court Says Inmates Can Be Forced to Take Drugs.
Today we celebrate U.S. #polio survivor & Olympic swimmer Ethelda Bleibtrey & Australian #disability activist with #OsteogenesisImperfecta Quentin Kenihan. We also recognize #Anosmia Awareness Day & the anniversary of the Washington v. Harper decision.
disabilitydaily.podbean.com/e/episode-58/
Excited to share the first part of my dissertation! 🎉 This paper explores how the transition from suckling to chewing impacts cranial growth in an #osteogenesisimperfecta mouse model. So grateful for all the mentorship and support from @rachelmenegaz.bsky.social
Two photos. First, Bob Kafka in a wheelchair holding a sign that says We Will Ride. He has curly dark hair, a mustache, and a wiry beard, and a woman holds a microphone to his face. He wears an ADAPT t-shirt over a long-sleeved dark top and has a white hat on his lap. Second, Stella Young in a black dress with chin-length blonde hair. She sits in her motorized wheelchair and holds a microphone with her right hand. The wall behind her is a vivid pinkish purple.
Today we celebrate #disability rights activists Bob Kafka & Stella Young!
disabilitydaily.podbean.com/e/episode-55/
Transcript available!
#OsteogenesisImperfecta #quadriplegia #ADAPT #Australia #wheelchair #protest #transportation #Texas #History #activism #InspirationPorn #EduSky #ADA #comedy
Two photographs. First, a black and white headshot of Barbara Jordan with short curly black hair smiles and wears a back top with a white collar. Second, Fredrick Brennan with short brown hair wearing glasses and a dark teal shirt with yellow symbols holds a piece of notebook paper to the camera, which reads: Hispachan, preguntame lo que quieras. He is propped up on a pillow with a leopard print blanket and Pomeranian-chihuahua mix behind him.
Today we celebrate Dr. Barbara Jordan, civil rights leader with multiple sclerosis & Fredrick Brennan, software developer with osteogenesis imperfecta.
disabilitydaily.podbean.com/e/episode-52/
Subscribe & share!
#disability #OsteogenesisImperfecta #MultipleSclerosis #TX #tech #MS #a11y #8Chan
Tattoo design concept. #wishbone #osteogenesisimperfecta #sunflowers #tattoodesign #drawing #doodles
Two photos. First, Jessica Cox breaks a wooden board as she kicks it with her right foot. She wears a white martial arts uniform and black belt, and her long brown hair is in a ponytail. She has no arms. Second, Christopher Hewitt sits in a powered wheelchair and patterned sweater, smiling at the camera. He wears glasses and has a dark mustache, beard, and hair. A water bottle sits in a holder attached to his chair.
Today on the Disability Daily Podcast we celebrate armless American pilot Jessica Cox & British poet Christopher Hewitt.
Subscribe on Amazon,🍎 or Spotify:
disabilitydaily.podbean.com/e/february-2...
#disability #pilot #poetry #OsteogenesisImperfecta #LGBTQ #LimbDifference #armless #MartialArts
A zebra with a unicorn horn and flowing golden hair jumps out of a black void and through a neon zebra threshold.
I created this graphic for my shirt for the march — it's me as a zebracorn (because — as it turns out — I’m an ultra-rare mixed phenotype of hypermobile Ehlers-Danlos syndrome and #OsteogenesisImperfecta, or brittle bone disorder).
But that’s story for another memoir. Which I’m working on.
(5/6)
Some memories stay buried until you unpack them. On Breaking Bullying, I shared what it was like growing up with O.I., using a wheelchair, and moving to crutches. Tim asked: How did I feel during that transition? That question hit deep.
👉🏻 www.tonyjacobsen.com/bbpod #OsteogenesisImperfecta
What couild be the explanation of the clear elevated mortality risk for #osteogenesisimperfecta?
But, have you seen my new socket?
☮️💀⚡️🌹🦿
#osteogenesisimperfecta #resources #unbreakablespirit #breakingbarriers #amputee #prosthesis #oistrong #adaptandovercome #tiedye #oilife #spaceyourface #gratefuldead #deadhead #sunshinedaydream
