Clinical Trial Recruiting:
Lumbrokinase for Adults With Long Covid, Post-treatment Lyme Disease Syndrome, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
#mecfs #PTLDS #LongCovid #PAIS #pwME clinicaltrials.gov/study/NCT065...
Do you feel abandoned in your fight against Lyme disease?
.
.
#PostTreatmentLyme #PTLDS #LymeDisease #ChronicLyme #LymeAwareness #MedicalGaslighting #PersistentSymptoms #CoInfections #Babesia #Bartonella #LymeDoctor #lymetreatment #lymeclinic #lymecenter
EXCEPT in #energylimitingconditions, whammo – signs of aging set in over months, even weeks; many symptoms are surprisingly similar to old age, pts can suddenly feel 85yo. There is evidence for nearly all 12 hallmarks in #LongCOVID & #ME, & (despite little study) some in #FM, #PTLDS. 9/26
[Lyme] La @has-sante.bsky.social reconnait le syndrome post-borréliose de Lyme traitée #PTLDS = symptômes non spécifiques se prolongeant pendant plus de 6 mois après la fin du traitement
#Lyme #BL #recos #HAS #antibio
www.has-sante.fr/jcms/p_35910...
bad pain day + bad brain fog day = laying in bed, numb legs from back and knee pain, testing my new laptop stand (it's great), can barely spell to type this out, still thinking about jayvik
#chronicillness #chroniclymedisease #PTLDS #pots #disabled #jayvik #arcane
See www.sciencedirect.com/science/arti... Why is this not considered by neurologists instead of a label of #PTLDS and “normal MRI so don’t need to see you again” comment? If we pass this on, will anyone listen and consider?
Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: Proceedings of a Workshop National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Sciences Policy; Board on Global Health; Forum on Neuroscience and Nervous System Disorders; Forum on Microbial Threats Megan Snair, Julie Liao, Elizabeth Ashby, Claire Biffl , editors. Washington (DC): National Academies Press (US); 2024 Apr 3. The National Academies Collection: Reports funded by National Institutes of Health. PMID: 38648305 Bookshelf ID: NBK602977 DOI: 10.17226/27462 Free Books & Documents Excerpt The National Academies Forum on Microbial Threats and Forum on Neuroscience and Nervous System Disorders hosted a hybrid public workshop in June 2023 to explore opportunities to advance research and treatment of infection-associated chronic illnesses. The illnesses discussed in this workshop, including COVID-19, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),
Detailed report now available for free for:
Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: Proceedings of a Workshop
pubmed.ncbi.nlm.nih.gov/38648305/
#LongCovid #PTLDS #multiplesclerosis #MEcfs #CFS #PwME
MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants The Tal research group at MIT is recruiting people with Long COVID, chronic Lyme, as well as healthy controls, for the MIT MAESTRO (Mucosal And systEmic Signatures Triggered by Responses to infectious Organisms) study. This study will investigate incomplete recovery from infections by probing body samples (blood, urine, saliva) for immune response and pathogens, as well as studying eye movement, cognitive function and hypermobility to understand neurological symptoms. Participants need to be between 18 and 65 years old and able to travel to MIT. The first step is to fill out a brief survey to assess eligibility.
From Mass #MECFS & FM Assoc e-newsletter:
(#Boston, #Massachusetts)
MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
talresearchgroup.mit.edu/mitmaestro
intake.mit.edu/surveys/?s=W...
#longCOVID #Lyme #ChronicLyme #LongLyme #PTLDS #PwLC
Floating All Boats… Iwasaki’s ME/CFS, Long COVID, and Lyme Disease Awards Promises New Insights into Post-Infectious Diseases #MECFS #LongCOVID #PTLDS #Lyme
www.healthrising.org/blog/2023/10...
