PBK as a Potential Biomarker and Therapeutic Target for Metastatic Pheochromocytomas and Paragangliomas. Read more in #JCEM: https://bit.ly/3NZpeRj #PBK #Pheochromocytoma #Paraganglioma @endocrinesociety.bsky.social
The May issue is now online!
👉 Read our latest articles:
onlinelibrary.wiley.com/toc/13652796...
#oncology #tumors #immunotherapy #epigenetic #T1D #pregnancy #HLA #CIPO #gastrointestinal #gaucher #GD1 #pheochromocytoma #paraganglioma #cholesterol #ColorectalCancer #screening #ataxia #ITPR1
New article to read! Who can safely discontinue lifelong follow-up among patients with sporadic #pheochromocytoma and #paraganglioma?
➡️ Routine lifelong follow-up may be unnecessary for patients with sporadic PCC aged >40 years, size <6 cm, and PASS <4 or GAPP score <3
🔗 doi.org/10.1111/joim.70080
Off to a strong start at #SFEBES2026 in Harrogate this week with a special Patient and Public Involvement and Engagement session on Sunday and an update on the #UKISAT registry for metastatic #ACC and #paraganglioma, the advisory committee of which AMEND is a member.
The Role of Cortisol Secretion in Pheochromocytomas and Paragangliomas: Clinical and Perioperative Implications. Read more in #JCEM: bit.ly/4kTQw7x #Paraganglioma #CardiovascularDisease #MetanephrineConcentrations @endocrinesociety.bsky.social
Markedly Melanin-Pigmented Paraganglioma Associated With Decreased Dopa-Decarboxylase Expression. Read more in #JCEM Case Reports: bit.ly/4j30oLt #PigmentedTumor #Paraganglioma #Pheochromocytoma @endocrinesociety.bsky.social
Outcomes and Therapeutic Strategies for Head-and-neck Paragangliomas Associated With Succinate Dehydrogenase Mutations. Read more in #JCEM: bit.ly/48Rs0yg #Paraganglioma #Radiotherapy #TumoralProgression @endocrinesociety.bsky.social
📌NEW VIDEO: Clinical trials related to #pheochromocytoma and #paraganglioma.
📱Watch Dr. Justin Annes presenting an overview of the specifics in diagnostics and treatment of #pheochromocytoma and #paraganglioma, and the ongoing clinical trials: incalliance.org/dr-justin-an...
#LetsTalkAboutNETs
📢New video on pheo¶ clinical trials: Dr. Justin Annes presents an overview of the specifics in diagnostic and treatment of #pheochromocytoma and #paraganglioma, and the ongoing clinical trials related to that.
📱Watch the video here: incalliance.org/dr-justin-an...
#LetsTalkAboutNETs
#Adrenal #tumours are commonly encountered in every endocrinology practice & related subspecialties nowadays, & require the most accurate evidence-based management, treatment, and follow-up thelancet.com/journals/lan...
#phaeochromocytoma #paraganglioma #adrenocortical #carcinoma
#MedSky #EndoSky
New—Adrenal tumour imaging: clinical, molecular, and radiomics perspectives thelancet.com/journals/lan...
#adrenal #tumour #phaeochromocytoma #paraganglioma #adrenocortical #carcinoma
#MedSky #EndoSky #OncSky
📢NEW: Now we have an insightful video on NEN research with Dr. Justin Annes presenting an overview of the specifics in diagnostics and treatment of #pheochromocytoma and #paraganglioma, and the ongoing clinical trials.
📱Watch the video here: incalliance.org/dr-justin-an...
#LetsTalkAboutNETs
📢5 days to #NETCancerDay on November 10th! #Pheochromocytoma and #paraganglioma can be detected early.
Persistent flushing can be more than you think.
📌Join us to raise awareness of genetic NETs.
✅Get the banner you like in your language: incalliance.org/ncd-2025/cam...
#LetsTalkAboutNETs
🧬 The Paraganglioma Market sees growth fueled by improved genetic research & precision oncology. Check trends & outlook: link www.marketresearchfuture.com/reports/para...
#Paraganglioma #Oncology #Biotech
It’s that 🕒…every 3️⃣ years experts from around the 🌎 come together for the International Symposium on #pheochromocytoma and #paraganglioma. The 7th ISP begins today! #ISP2025
Explore the latest in #pheochromocytoma & #paraganglioma research with Endocrine-Related Cancer’s (@endocancer.bsky.social) special collection, featuring recent advances in genetics, metabolomics, nuclear medicine & more.
Explore the collection: erc.bioscientifica.com/page/PPGL
Timely carotid screening before #CABG can reveal rare but critical findings like carotid #paraganglioma. Combined surgery for coronary disease, severe carotid atherosclerosis, and tumor excision is safe and effective with expert planning. #endarterectomy onlinelibrary.wiley.com/doi/10.1002/...
🧠 This Rare Tumor Hijacked Her Nervous System.
Subscribe to read more on www.pouringpotions.com
#Paraganglioma #RareTumor #DopamineSurge #NeuroendocrineTumor #MedicalReels #BrainOverload #NeurologyFacts #HormoneCrash #TumorSymptoms #UnexplainedIllness
Management of an Endobronchial Pulmonary #Paraganglioma via #Bronchoscopic Resection:
Endobronchial debulking of a pulmonary paraganglioma - smaller risks, high rewards onlinelibrary.wiley.com/doi/10.1002/...
@ADL_IPPG
Every patient story is unique.
📌Jasmyn from USA: “Most of my doctors had never treated a tumor like this in their careers, over 100 years of collective experience with no knowledge of #paraganglioma.”
✅Watch her story: incalliance.org/stories/jasm...
#LetsTalkAboutNETs
Behind a diagnosis, there is a unique personal story.
📌Jack from New Zealand had an X-ray for a shoulder injury, which led to the diagnosis of #paraganglioma.
📱Watch his story: incalliance.org/stories/jack...
✅Help HCPs to prepare: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
Functional suppression of a #prolactinoma by a dopamine-secreting #paraganglioma. Featured in #JCEMCaseReports. #OpenAccess #dopamine
academic.oup.com/jcemcr/artic...
@endocrinesociety.bsky.social
Paraganglioma retrofaríngeo con extensión intracraneal a propósito de un caso clínico
#axónvet #informaciónveterinaria #saludanimal #Paraganglioma #casoclínico
Low psychosocial burden in patients with #paraganglioma syndrome: results from the Head and Neck Paraganglioma Registry in a single center by Carolijn J M de Bresser et al
EJE Volume 192, Issue 3, March 2025
Open access paper 👉 doi.org/10.1093/ejen...
FDA Approves Belzutifan (Welireg) for Advanced Pheochromocytoma and Paraganglioma: Results of LITESPARK-015 Trial
@fda.gov
oncodaily.com/oncolibrary/...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #Belzutifan #Welireg #Pheochromocytoma #Paraganglioma #LITESPARK-015
Jo (MEM2A) and Gill (MEN1) from AMEND are here and happy to speak with you. Let us show you how we help your patients. #sfeBES2025 @socendocrinology.bsky.social #multipleendocrineneoplasia #paraganglioma #adrenocorticalcancer
Bladder #paraganglioma
Membership of AMEND is free to anyone affected by MEN or PPGL syndromes, MTC and ACC, as well as to health professionals: www.amend.org.uk/patients/joi...
#MEN1 #MEN2 #MEN3 #MEN2A #MEN2B #PPGL #paraganglioma #phaeochromocytoma #Adrenocorticalcancer #ACC #MTC #medullarythyroidancer
This study highlights why we study rare diseases such as #paraganglioma as a window into how we can better understand and treat more common diseases.
We studied how a genetic variant in hypoxia signaling, which is a hallmark of #cancer, leads to tumor development. 🧵