Two women in a selfie. Both are smiling. In the front is a young disabled woman in a white coat , a green top can just be seen. Her hair is in a high pony and decorated with green and white accessories. Her Mammy is beside her and in black with black sunglasses. Strands of brown hair are blowing across her face
Keeping my princess happy 😊
#Disability #ProfoundDisability
#StPatricksDay
I’m not a fan of the IOT, but I got a smart light bulb for security, and now B is in charge of switching it on when we’re at home (with support) and you should see the joy on her face when the lamp lights up 🤩
#disability #ProfoundDisability
Crying with pain and exhaustion- all it took was a 40 minute meeting with a FG TD ha ha
Anyway, job done, he listened , and hopefully took my points on board (he was actually very pleasant!) and met B
#FuckLongCovid #Disability #ProfoundDisability
When your daughter gives you one of her big soulful stares because you abandoned her to go to the bathroom 🤣
#Disability #ProfoundDisability
So the main carer has gone on her holidays and been replaced by *two* others! B is lapping up the attention and currently showing off her toast eating skills 😊
#Disability #ProfoundDisability
New home care worker is looking shell shocked at the amount that has to be done to help B get up and ready for her day service!
#Disability #ProfoundDisability #FeelingStressed
Just learned that the number of staff supporting disabled young adults in my daughter’s day service has been cut by 1/3 by the HSE 😢😡
This country is awash with cash, so why cut services to those who desperately need them?
#Disability #ProfoundDisability #Speirgorm
Praise be to the gods of sleep: my daughter has settled for the first time this week
#Disability #ProfoundDisability
We had a singing Carer this time last year, and she left sheets of carols for me. I’ve just done a full concert for B while I get her up! She’s feckin delighted. My only fan ha ha.
#disability #ProfoundDisability
We’re having a picnic on the Donnybrook Road as B likes watching the cars go by
So far we haven’t been asked to move on
#Disability #ProfoundDisability
A young disabled woman in a pale pink sweatshirt is looking down, revealing hair in bunches tied with bright pink scrunchies
A pic of the top of a head with beautifully done tight plaits
There seems to be an unspoken hairstyling competition going on between B’s Home and Day service support workers ☺️.
She goes in with one style and comes home with another!
#Disability #ProfoundDisability
“The best journey in the world is the one that gets you home”
(My daughter, translated from her expression)
#Disability #ProfoundDisability
A photo of two smiling women The one on the left has a brown bob, black sunglasses and a black tank top on, she is quite old The one on the right is much younger and in a disability buggy. Her hair is tied back in a ponytail and she is wearing a denim Jacket
Banoffee makes everything better!
At the Coach House in Palmerston after another look see visit to the proposed respite facility for B
#Respite #Disability #ProfoundDisability
Viewing point in Salthill with a sandy coloured wall and a beach and blue green sea beyond. There are white waves in the sea and a handful of swimmers. In the distance high hills below a pale blue sky . The light is sunny and so so clear
Just back from a trip to Galway with B and @audsme.bsky.social - without whose help it would never have happened ! We haven’t been away for more than five years. It’s getting harder as the years go by
#UnpaidCarer #Disability #ProfoundDisability
The Wayne and Garth of North County Dublin 🙈
#ProfoundDisability #Fun
(I’d just parked when I took this video)
.....it certainly should keep me out of mischief on long train journeys!
#postdoclife #PIMD #PMLD #profounddisability #autismawareness #autismacceptance #autismawarenessmonth #AutismAcceptanceMonth #AutismAcceptanceEveryDay #autismawarenessandacceptance
#autismawareness #autismacceptance #autismawarenessmonth #autismacceptancemonth #autismacceptanceeveryday #autismacceptanceandawareness #autistic #profounddisability #PMLD #PIMD
Me and my princess A mother and her disabled daughter gaze lovingly at each other Mam is wearing a purple anorak and underneath the hood you can see some untidy brown hair and a painted nose. She is smiling The young woman is in a disability buggy and wearing a pink cot, white tee and white scrunchie jn hwe golden brown hair, she has a zebra striped Gary B blanket covering her legs An empty coffee cup and crumb strewn plate are in the foreground. The background is blurred
#3GoodThings
1. Lie in achieved with the cooperation of DD2
2. Great kitchen disco after breakfast, and so glad DD2 likes my stuff as well as Britney
3. Fab walk in drizzly Kilcock this afternoon with great company and reasonably good coffee
#Disability #ProfoundDisability
“Don’t lick your seat belt,” is another thing I never expected to have to say to another adult
#ProfoundDisability
My thesis is out, people are reading it, and I didn't even know!
If you're curious it is free here: eprints.soton.ac.uk/497372/
#phdlife #phdstudent #InclusiveResearch #belonging #PMLD #PIMD #profounddisability @cri-uos.bsky.social @scdtp.bsky.social @uoseducation.bsky.social
Many films from the PMLD Conference are now freely available here: youtube.com/playlist?lis... #PMLD #PIMD #Profounddisability
The Teletubbies are back in favour here 🙈☺️
#ProfoundDisability
Our main home care worker from the new agency has no prior experience of #ProfoundDisability and didn’t know how to relate to my daughter. But she started reading to her, and today I suggested letting my daughter choose between two titles, and showed the carer how to help her choose. 1/
