Senator Elissa Slotkin has acknowledged my message supporting the SOAR Act! This legislation is critical for PF & ILD patients who need supplemental oxygen.
Add your voice today 👇
https://www.pulmonaryfibrosis.org/soar-act
#SOARAct #PatientAdvocacy #PulmonaryFibrosis
I’ve sent my message supporting the SOAR Act to improve access to supplemental oxygen for PF & ILD patients. This is so important—add your voice today!
👉 https://www.pulmonaryfibrosis.org/soar-act
#SOARAct #PatientAdvocacy #PulmonaryFibrosis
In a recent opinion piece, Diana Derbas shares her support for the #SOARAct as someone who relied on supplemental oxygen before receiving a double lung transplant.
Learn more about her story: buff.ly/n9tE7UW
In a recent opinion piece, Keith Nelson, an American Lung Association advocate, shared his support for the #SOARAct.
Keith was diagnosed with pulmonary fibrosis in 2018 and faced many challenges with accessing supplemental oxygen.
Learn more: buff.ly/iKfwskK
There’s still time to register for PHA’s advocacy webinar during #PHAwarenessMonth.
Learn more about key #legislation affecting the #PH community, including updates on the #SOARAct and how to use PHA’s Action Center to connect directly with lawmakers.
Register today: buff.ly/XwKhdq7
For many living with #PH, access to supplemental #oxygen means the freedom to leave their house and live a full life.
The #SOARAct would improve oxygen access and reform insurance reimbursement.
Learn how advocates are getting creative to build support: buff.ly/JduiiU9
In a recent opinion piece from the DC Journal, hear from Harold Wimmer, president and CEO of the American Lung Association, on how the #SOARAct could improve supplemental oxygen access for patients.
Read the full story: buff.ly/F29wMvo
Join PHA on Tuesday, Nov. 4, for an advocacy webinar reviewing key #legislation affecting the #PH community.
Get important updates on the #SOARAct and how to use PHA’s Action Center to connect directly with lawmakers.
Register today: buff.ly/Tf4LR6C
On #World Lung Day, join the Week of Action in support of the #SOARAct.
Help educate Congress on how the SOAR Act will improve #oxygenaccess for those who need it most.
Use PHA's call script and legislator look-up tool to make your calls today: buff.ly/VLzUO74
This week, PHA joins the Oxygen Coalition for a weeklong campaign in support of the #SOARAct.
Educate Congress about how the SOAR Act will improve #oxygenaccess for those who need it most.
Visit the PHA website for a call script and legislator look-up tool to call today:
buff.ly/VLzUO74
Health care professionals are kicking off the PHPN Symposium with the PHPN Day of Action advocacy training workshop.
Attendees are learning how to get involved in #PHA’s advocacy efforts and putting their new skills to work by asking legislators to support the #SOARAct.
#PHPN2025
During the 2025 PH Professional Network Symposium, health care providers will be calling lawmakers to ask for their support of the #SOARAct.
You can amplify their message by contacting your legislators too. Visit the #PHA website for #advocacy tips and talking points.
buff.ly/wIDyYA3
From Sept. 22-28, #PHA joins the Oxygen Coalition for a weeklong campaign in support of the #SOARAct.
Each organization leads a day of action. Join PHA on Thursday, Sept. 25, to call your legislators and make your voice heard. Use PHA’s #advocacy tool for your calls.
buff.ly/wIDyYA3
In a recent opinion piece from the Times of San Diego, patient advocate Angela Merkens discussed how the #SOARAct would improve #supplementaloxygen access for #Medicare beneficiaries.
Read more about her story: buff.ly/U2QMk4O
To close out the first season of PH Insights, #PHA partnered with the @atscommunity.bsky.social Breathe Easy podcast for a two-part series on the #SOARAct.
The second episode, shared on PH Insights, features patients who share their experiences navigating oxygen access.
Listen now: buff.ly/YMJhrql
Since the launch of PH Insights in 2024, the podcast has shared inspiring stories, expert insights and support for the #PH community.
PHA recently partnered with the @atscommunity.bsky.social Breathe Easy podcast for a two-part series on the #SOARAct.
Listen to episode one now: buff.ly/ceOjkEm
After PHA advocates visited members of Congress for #WorldPHDay2025, Rep. Cleo Fields (D-La.) stepped up right away. Fields signed on as a cosponsor of the #SOARAct the day after our in-person advocacy event.
Read more about the event: buff.ly/Hen0VxY
During our virtual Hill Day, 14 PH advocates from eight states met with House and Senate offices.
They urged legislators to co-sponsor the #SOARAct and protect funding for #Medicaid, #NIH and #ACA insurance subsidies. Thank you to everyone who shared their stories.
#WorldPHDay2025
Earlier today, PH patients met with legislators on Capitol Hill to advocate for the #SOARAct and to protect #Medicaid and #NIH funding.
Thank you to everyone who traveled to make this event happen. We look forward to continuing our advocacy efforts during our virtual Hill Day event tomorrow!
