Wave II is built around the people who make it possible. Every participant and caregiver has travel, meals & lodging covered—because living with Long QT Syndrome is already complex enough. 🌊
wavestudies.com/wave-2
#LongQTSyndrome #ClinicalTrials #RareDisease #LQTS2
Every step forward begins with a moment 💚
Long QT Syndrome affects ~1 in 2,000 people, with no approved treatments today.
Wave II is now open for enrollment in the U.S.
👉 Click here for study details: www.wavestudies.com/wave-2
#LongQTSyndrome #LQTS2 #RareDisease #HeartHealth #ClinicalResearch
Among Amish carriers of a #LongQTSyndrome founder variant, return of results was well received, but beta-blocker use was low, highlighting gaps in cascade testing and treatment uptake. bit.ly/3JedYOt #GIMO #KCNQ1 #OldOrderAmish #ReturnOfResults #CascadeScreening
Atenolol reduced heart rate and QTc interval, without affecting seizure load in both mouse models of SUDEP.
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #atenolol #cardiacarrhythmia #KCNH2 #longQTsyndrome #SUDEP
Hey #disabled fam! I’ve been finding new ways to cope with my health. Gardening & gardening shows help. Loving “The Instant Gardener” on Prime. So many of the guests are disabled &/or #chronicallyill.🩷🌱🪴
#♿️ #mentalillness #bipolar #ptsd #t1d #fibromyalgia #cfs #longqtsyndrome
watch.amazon.com/detail
I have LQTS Type 1... My Dad did (likely what killed his Dad) my brother has it, all 4 of my boys inherited it... thankfully ours is pretty controllable with knowledge, medication and awareness to make lifestyle changes or activity decisions.
#lqts #longqtsyndrome #longqt #mymutation #canibeanxmen
Fresh #lilyandfoxnails tonight… Crazy Love. It is Heart Month so I wear hearts for #longqtsyndrome #lqts I have Type 1. #heartmonth #hearthealthmonth #nails #nailsnailsnails #nailwraps #selfcare @lilyandfox
Fresh #lilyandfoxnails tonight… I’ll Be Yours. It is Heart Month so I wear hearts for #longqtsyndrome #lqts I have Type 1. #heartmonth #hearthealthmonth #nails #nailsnailsnails #nailwraps #selfcare #lilyandfox
Honored to have spoken at the #JESFC about inherited arrhythmia syndromes and syncope
#LongQTSyndrome #Brugada #CPVT #Andersen-TawilSyndrome #TimothySyndrome #ShortQTSyndrome
www.cardio-online.fr/Lectures/202...
@hospicescivilslyon.bsky.social @hcl-recherche.bsky.social
🚨 New research using genomic analysis has uncovered undiagnosed cases of Long QT syndrome, a rare but dangerous heart disorder. This breakthrough could lead to better detection of genetic diseases. 🧬🫀 #Genomics #HeartHealth #LongQTSyndrome #ScienceNews @VUMChealth scienceblog.com/548103/new-g...
#PaulKornerSeminar speaker Dr @ChaiAnn_Ng explains “using high-throughput assays to overcome #genetic purgatory in #longQTsyndrome” #ScienceTwitter
