#FactCheck Friday: #AI is being rapidly adopted into medical practice. TRUE. But patients’ needs & expectations aren't fully considered in the application of AI in healthcare. #PatientCentered care means patients' voices need to be heard & accommodated institutionalrepository.aah.org/jpcrr/vol11/...

We need a more holistic assessment of health (physical, mental, and social) and emphasize the need for #MentalHealth interventions as an avenue to increase functional independence in #OlderAdults and improve #PatientExperience and #PatientCentered care institutionalrepository.aah.org/jpcrr/vol12/...

FDA panel details cross‑center programs to help small‑population drug and device development FDA speakers from CDER, CBER, CDRH and the Rare Disease Innovation Hub described educational programs (LEADER3D), patient listening meetings, manufacturing flexibilities, and workshops (RISE) to help developers design feasible trials and integrate patient voices into endpoints and long‑term follow‑up.

The FDA is revolutionizing rare disease product development with new programs that prioritize patient-centered outcomes and innovative trial designs.

Click to read more!

#US #ClinicalTrials #CitizenPortal #PatientCentered #RegulatorySupport #RareDiseaseInnovation

Patients as partners in a research advisory council role: describing the APERSU Patient Engagement Network - Journal of Patient-Reported Outcomes Journal of Patient-Reported Outcomes - Patient and public involvement and engagement (PPIE) is crucial for developing patient-centered healthcare research and improving health outcomes. While...

The Alberta PROMs and #EQ5D Research and Support Unit operates across the health system. Read about the development of its engagement network, that aims to connect those whose experiences reflect the broad scope of PROMs use in Alberta
link.springer.com/article/10.1...

#PPIE #PatientCentered #HRQOL

Priscilla is kind, attentive, and truly collaborative. I felt supported and involved in every step. #MentalHealthRenton #CompassionateCare #PatientCentered

Conference banner with a picture on the left and some text on the right. The picture shows on the right hand side a hill with houses along streets winding up, some trees, and a mooring area and water in the front. In the background, tall bridge connects the hill to the other side of the water on the left hand side of the picture. (Probably Bristol, as this is where the conference is) The text on the right announces that the 7th Joint UK SPR and EU-SPR (Society for Psychotherapy Research) Conference will take place 2nd to 5th of September at the University of the West of England in Bristol, UK. The conference theme is "Putting Psychotherapy Practice at the Heart of Research: Amplifying the Clients' Voices.

Submissions to the UK-EU @sprofficial.bsky.social conference are open
🔥📆 Friday 27th Feb
www.psychotherapyresearch.org/page/uk-eu-s...

Conference theme:
Putting #Psychotherapy Practice at the Heart of Research: Amplifying the Clients' Voices

#PsychotherapyResearch #PatientCentered #ClientCentered

Welcome, Dr. Hans Lee, MD, to the Advisory Board! As Director of Myeloma Research at SCRI, he leads innovative work advancing new therapeutic strategies through early-phase clinical trials. 🩺

His insight will help strengthen our #PatientCentered, video-first oncology education. 🔗 bit.ly/4rpCI6R

Honored to welcome Dr. Ghassan Abou-Alfa, MD, JD, MBA, PhD(hc) to the Advisory Board. As a Professor of Medicine & an Attending Physician at @mskcancercenter.bsky.social, he brings deep expertise in hepatobiliary cancers to our #PatientCentered digital education. 👏💡

Read more 🔗 bit.ly/4q9GPD4

#FactCheck Friday: #AI is being rapidly adopted into medical practice. TRUE. But patients’ needs/expectations aren't fully considered in the application of AI in healthcare. #PatientCentered care means patients' voices need to be heard & accommodated. institutionalrepository.aah.org/jpcrr/vol11/...

The comprehensibility continuum: a novel method for analysing comprehensibility of patient reported outcome measures - Quality of Life Research Purpose Evidence of comprehensibility is frequently required during the development of patient reported outcome measures (PROMs); the respondent’s interpretation of PROM items needs to align with inte...

Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
link.springer.com/article/10.1...

#PatientCentered #Psychometrics #ScaleDevelopment #HRQOL

10th UK Patient Reported Outcome Measures (PROMs) Research Conference We are delighted to announce that the 10th UK Patient Reported Outcome Measures (PROMs) Conference will be hosted in Sheffield on Tuesday 23 June 2026.Now in its tenth year, the UK PROMs Conference br...

Webpage live for the

10th UK Patient Reported Outcome Measures Research Conference
sheffield.ac.uk/smph/events/...

An opportunity to reflect on progress, to explore the future of PROMs, and going back to where it all began in 2016:
Sheffield #SCHARR
23rd June 2026

#HRQOL #PatientCentered #ISOQOL

Susie Singer Carter shares: people with Alzheimer’s still feel connection, love, and presence. What they need is a healthcare team that truly sees them — and recognizes caregivers as essential partners in care.
vist.ly/4fz7q
#DementiaCare #CaregiverAwareness #PatientCentered @CareBrains

Improving Collaborative Engagement in Health State Valuation: A Scoping Review of Current Practices and Emerging Recommendations - PharmacoEconomics Background and Objective Collaborative engagement with individuals invested in or affected by health research, beyond researchers themselves, is advantageous and encouraged by major funding bodies. Ho...

How to engage w collaborators in health state valuation, how to include their voices?
link.springer.com/article/10.1...

Based on 37 guidance documents and studies, the team develops a 15pt framework for developing guidance to improve practice in the field.

#HealthEconomics #PatientCentered #PPIE

Journal of Patient-Reported Outcomes The Journal of Patient-Reported Outcomes (JPRO) is an international, open-access, fully peer-reviewed multi-disciplinary journal publishing original ...

Three calls for papers from JPRO:
jpro.springeropen.com/articles/col...

Translation and Validation of Patient-Reported Outcome (PRO) Measures

PROs in Clinical Registries

Patient-Reported Outcome Measures (PROMs) in Telehealth

#PatientCentered #HRQOL #HealthEconomics #CrossCultural

📄 Our latest manuscript breaks down the creation of a survey designed to capture the clinician and organizational factors that shape goals-of-care communication. Excited to share this work! @ArpanPatelMD #PalliativeCare #PatientCentered rdcu.be/eNGn1

Shifting organizational culture to ensure patient safety Find out how Mackenzie Health achieved a significant reduction in patient falls and safety events, enhancing patient safety.

Shifting organizational culture to ensure patient safety.
https://ow.ly/nanf50XrU67
#PatientSafety #HealthcareCulture #SafetyFirst #PatientCentered #HealthcareInnovation

After a diagnosis of Alzheimer’s, let’s focus on what remains — joy, purpose, connection & independence. Laurie reminds us we don’t just survive but thrive. Hear her story vist.ly/4cr53 #DementiaCare #PhysicianEducation #CaregiverAwareness #PatientCentered #AgitationInDementia

🔗 Learn more:

👉 O’Hehir University

👉 OHU Publishing

#healthbehaviorchan #OHU #dentalhygienist #degreecompletion #mastersdegree #onlinedegree #onlineeducation #onlinemastersdegree #oralhealthpromotion #clinicalresearch #inclusivecare #patientcentered #OHUGrad #dentalresearch #SDG3 #SDG4

Study looking for people with experience in #CoreOutcomeSet development 👇

Wide remit:
Researchers, clinicians, patients, people with lived experience, carers...

An interview (c60min, online).

#Psychometrics #PatientCentered #HRQOL #HRQL #Consensus #Delphi

Add your answer to the comments.
🔗 Learn more:👉 O’Hehir University👉 OHU Publishing
#healthbehaviorchange #OHU #dentalhygienist #degreecompletion #mastersdegree #onlinedegree #onlineeducation #onlinemastersdegree #oralhealthpromotion #clinicalresearch #patientcentered #OHUGrad #dentalresearch

Evaluation of a Novel Goals-of-Care Discussion Priming Tool (MyCare) in Inpatient General Internal Medicine Ward Settings: #feasibility, Acceptability, and #usability Study Background: For patients who are seriously ill, conversations about prognosis, values, and goals can improve person-centered care; however, these conversations do not occur consistently. Objective: We aimed to develop an online, interactive goals-of-care discussion priming tool called MyCare to facilitate conversations about patient goals among physicians, patients, and family members. Our objective was to determine the #feasibility, acceptability, and #usability of MyCare for patients who are seriously ill in hospitals. Methods: We conducted a mixed methods study on internal medicine wards with patients who were seriously ill at 2 hospitals. Participants completed MyCare with a research assistant in their hospital room, and their responses were sent to their attending physician team. Patients, family members, and physicians participated in semistructured interviews to assess advance care planning engagement, #usability, and acceptability. Patients also completed the System #usability Scale, the eHealth literacy scale, and survey questions about acceptability. Results: Patients took a median time of 32 (IQR 21-43) minutes to complete MyCare, with a range of 12 to 101 minutes. The mean eHealth literacy score was 56 out of 100. In total, 19 (76%) out of 25 patients indicated that MyCare helped them think about and understand what was most important to them, and 16 (64%) stated that MyCare helped them think about the type of care they would want if their illness progressed. The mean advance care planning engagement scores on a 5-point scale before and after MyCare were 4.11 (SD 0.77) and 4.20 (SD 0.74), respectively (mean difference 0.09, 95% CI –0.08 to 0.34; P=.22). After completing MyCare, 16% (4/25) of the patients reported feeling more prepared to talk to their medical decision-maker about the type of care they would want if they were very sick or near the end of life, and none felt less prepared. The most useful elements for patients were (1) clarifying goals and wishes for care, (2) identifying people who supported them, and (3) having a resource to facilitate conversations with their families. The most useful elements for physicians were patients’ prioritized values and goals. Conclusions: MyCare and similar tools will be more usable and acceptable if they are short and simple, focus on shared physician-patient priorities, and empower patients to advocate for their own goals.

JMIR Formative Res: Evaluation of a Novel Goals-of-Care Discussion Priming Tool (MyCare) in Inpatient General Internal Medicine Ward Settings: #feasibility, Acceptability, and #usability Study #HealthCare #PatientCentered #GoalsOfCare #MyCare #InternalMedicine

Using feedback tools to enhance the quality and experience of care

Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
pmc.ncbi.nlm.nih.gov/articles/PMC...
#ISOQOL

Great example of papers that elucidate practical challenges of PRO capture (see rdcu.be/eMp57 )

#HRQL #PatientCentered

Conference logo for ISOQOL 2025 32nd Annual Conference

Just dialling up into the #ISOQOL conference live event.

Great opportunity that part of the conference is available hybrid / on-demand!

www.isoqol.org/events/32nd-...

#HRQL #HealthEconomics #PatientCentered

#IME professionals: AAFA & @medliveofficial.bsky.social go live on Oct. 16 to explore what it takes to build education that evolves with patient needs.

The panel will explore how a #PatientCentered approach helps patients & clinicians connect more meaningfully.

🔗 Register now: bit.ly/3IhxvwX

Psychiatriekritik: engagierte Menschen und Initiativen – glossAI

Ich habe meiner Webpräsenz eine neue Seite hinzugefügt: eine kommentierte Übersicht zur Psychiatriekritik.🌿
👉 wp.glossai.de/psychiatrie-...
Ich freue mich sehr über Resonanz, Gedanken & Impulse.
#Psychiatrie #Recovery #Psychiatriekritik #patientcentered #Gemeindepsychiatrie #MentalHealth #psychiatry

The Development of a Patient-Centered Digital Health Care Technology for Young Adults in Opioid Use Disorder Treatment: Qualitative Study Background: Young adults, defined as individuals between the ages of 18-29, drop out of opioid use disorder treatment more often than older adults. Premature treatment drop-out substantially increases fatal overdose risk. Self-monitoring through #TextMessaging #mhealth has been researched extensively among people with opioid use disorder to identify drop-out risk factors. Self-monitoring could potentially improve methadone treatment engagement among young adults, who are a population that is both hard to reach and more likely to use technology compared to older adults. Self-monitoring can increase risk factor awareness and help patients and counselors develop targeted coping strategies and treatment plans. However, embedding a discussion of risk factor information into existing counseling sessions has been limited, and may offer a promising opportunity to improve engagement among young adults. Objective: This pilot proof-of-concept study examined the implementation of self-monitoring intervention, AWARE (Awareness and Response to the Environment), designed to bring attention to treatment drop-out risk factors among young adults and create discussion about risk factors with their existing treatment counselor Methods: In this formative research, a convenience sample (N=8) of young adults (n=3) in methadone treatment, their counselors (n=3), and clinic leadership (n=2) were recruited from an opioid treatment program after referral from treatment staff. Participants were interviewed to obtain feedback as AWARE was developed. In semi-structured interviews, perspectives regarding barriers to treatment for young adults and AWARE utility were obtained. Concurrently, three dyads of young adults (n=3) and counselors (n=3) piloted the intervention daily for 4 weeks. Results: The 3 consented YAOUD participants (67% female, 67% Latino/a) were sent daily surveys for 28 days (53% overall completion rate). Young adults and counselors found AWARE relevant to their treatment experience and acceptable to complete over 4 weeks. The most reported daily stressors included concerns about the health and well-being of a family member, challenges with staying organized, and feeling overwhelmed by responsibilities without adequate support. ’ In qualitative interviews, counselors and clinic leadership reported that AWARE presented a relevant, new way to engage young adults daily, in addition to weekly counseling sessions. Young adults felt that prompts sent by AWARE offered a type of social support they lacked, like ‘someone checking in on them’. Conclusions: Overall, young adult and counselor participants were able to engage in AWARE in a busy clinic environment, and participants and clinic leadership found it valuable. By addressing common stressors and providing a sense of social connection, AWARE may help fill a gap in support between counseling sessions. However, the study was limited by the small number of young adults engaging in methadone treatment. Further research is needed to refine the measures and methods of AWARE and evaluate its effectiveness.

JMIR Formative Res: The Development of a Patient-Centered Digital Health Care Technology for Young Adults in Opioid Use Disorder Treatment: Qualitative Study #DigitalHealth #PatientCentered #OpioidUseDisorder #YoungAdults #MentalHealth

#AI is being rapidly adopted into medical practice, but patients’ needs and expectations aren't fully considered in the application of AI in #healthcare. #PatientCentered care means patients' voices need to be heard and accommodated. institutionalrepository.aah.org/jpcrr/vol11/...

Data meets humanity in healthcare. 📊❤️ Using metrics to improve care while keeping empathy at the center is the art of balanced leadership. #SmartCare #PatientCentered

95% of #patients say clear, understandable communication from #clinicians is vital—yet many lack tools to connect science to patient experience. Join us for this live webinar to explore #PatientCentered strategies w/ #PatientAdvocacy partners like @aafanational.bsky.social. RSVP 👉 bit.ly/4pn0qk1

Sexual abuse of patients by #physicians is rare but does occur. Check out this brief report for a #PatientCentered resource guide that raises awareness about physician wrongdoing, the value of patient chaperones & options for responding to #SexualAbuse institutionalrepository.aah.org/jpcrr/vol9/i...