PSC is no joke. It's hard to pronounce and even harder to explain.
Share this graphic to help raise awareness and understanding of this rare, complex disease.
ℹ️ pscsupport.org.uk/all-about-psc/
#LetsBeatPSC #PSCSupport #RareDisease #LiverDisease #ChronicIllness #primarysclerosingcholangitis
If you need a safe space to talk about PSC, our Helpline Nurse is here. Book a confidential call, email, or Zoom pscsupport.org.uk/helpline/.
You are not alone. #PSC #ChronicIllness #LiverDisease #HealthSupport #pscsupportuk #LetsBeatPSC #pscsupport #raredisease #primarysclerosingcholangitis
𝐏𝐒𝐂 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐃𝐚𝐲 𝐢𝐬 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 𝟐𝟗𝐭𝐡.
#𝐏𝐒𝐂 𝐈𝐒 𝐀 𝐑𝐀𝐑𝐄 & 𝐂𝐎𝐌𝐏𝐋𝐄𝐗 𝐃𝐈𝐒𝐄𝐀𝐒𝐄 𝐨𝐟 𝐭𝐡𝐞 𝐥𝐢𝐯𝐞𝐫.
#primarysclerosingcholangitis
www.facebook.com/share/17D6HW...
#PrimarySclerosingCholangitis is a slowly progressive disease with typically non-uniform, patchy manifestations of both mild peribiliary changes and later stages with concentric fibrosis, with early events that are largely unknown. https://www.nature.c
#PSCAwarenessDay
Hope is our lighthouse in the storm 💙 #GlobalPSCAwareness #GlobalPSCAwarenessDay #LetsBeatPSC #HopeInAction #primarysclerosingcholangitis @EuropeLiver @AlbiEspana
ℹ️ pscsupport.org.uk/global-psc-a...
Do you work on PSC or know people who do?
Hepatologists? Gastroenterologists? Very special scientists?
Get in touch to join the PSC Starter Pack.
We're a rare bunch, a bit like PSC, so let's connect and #letsbeatPSC
#primarysclerosingcholangitis
go.bsky.app/6hLJsJT
Great to be hosted at the VUmc in Amsterdam for a #PSC meeting. It was a new experience to attend a small highly-specialised meeting. We are rare people who work on a rare disease!
So much interest in DYNAMHIX in PSC and the gut-liver axis.
#microbiome
#primarysclerosingcholangitis
#LetsBeatPSC
I had a rare complication of my PSC last summer, and we nearly missed it. Can’t believe I made it out of that one alive, honestly.
Working on recording+producing the full version. Follow along to hear the rest ❤️🔥
#ibd #chronicillness #psc #primarysclerosingcholangitis #independentartist #newmusic
Location in the digestive tract matters!
💩 microbiota ≠ duodenal microbiota
As our understanding of the effect of the #microbiome in #PSC grows, it beomes more nuanced.
#LetsBeatPSC
#primarysclerosingcholangitis
Illustration credit: Becci Such
#PSC #PrimarySclerosingCholangitis #PSCaware #PSCFacts #LetsBeatPSC #PSCSupport
For this month, we're experimenting with a new #virtualreality video release, with a presentation on basic liver anatomy for patients affected by Primary Sclerosing Cholangitis (#PSC).
tvasurg.ca/pe-pscanatomy
#VR
#primarysclerosingcholangitis
#RareDiseaseDay2025
Lots of Hepatologists joining Bluesky recently!
Are any keen PSC specialists?
Comment, tag or chat to be added to the PSC Starter Pack go.bsky.app/6hLJsJT
#liversky
#hepatology
#PSC
#primarysclerosingcholangitis
Looking for a podcast to listen to?
Check out my interview with Crohns and Autism Awareness Advocate!
I waffle about my IBD journey (and I do mean waffle) and then we have a blether about Dr Who!
open.spotify.com/episode/6djg...
#crohns #Ulcerativecolitis #PrimarySclerosingCholangitis
The DYNAMHIX in PSC cohort includes:
PSC with UC
UC only
PSC only
Stay tuned for updates
#liversky #PSC #microbiome #primarysclerosingcholangitis
www.kennedy.ox.ac.uk/research/res...
7/n
I'm going to move permanently over to hear so interested in connecting with scientists in #microbiome #bioinformatics #immunology #inflammation #primarySclerosingCholangitis #liverDisease research.
Having a stay at The Christie while they stabilise a liver infection (probably from Chemo + my PSC).
Seems a timely moment to mention I'm fundraising for PSC Support with all proceeds from my calendars to help find a cure for #PrimarySclerosingCholangitis
Kieranmetcalfephotography.co.uk/calendar
